DYING: A Book of Comfort

Companion website about dying, bereavement, loss, grief — and aging with spirit

Aging with grace and spirit

"Inside every older person is a younger person wondering what the heck happened."

Please let me know what I've left out!

Age Doesn't Matter Unless You're a Cheese by Kathryn and Ross Petras (a gift book for those 70 and older: quotations reflecting wisdom, humor, and experience from mostly famous people 70 and over)

Can't Remember What I Forgot: The Good News from the Front Lines of Memory Research (Sue Halpern’s research into what really works about limiting normal memory loss)

"I think the seniors that are the happiest are the ones that are active," [Bob] Anderson said. "Very little television is what I'm saying."
"I think the first thing is to enjoy what you're doing when you are doing it," [Owen] Comora said. "And think before you do anything stupid."
~ in the story Capturing seniors' stories while she still can, by David Ball (Herald Tribune, 2-10-2010--check out the box, "Words to the Wise")



Intentional Communities (ecovillages, cohousing communities, residential land trusts, communes, student co-ops, urban housing cooperatives, intentional living, alternative communities, cooperative living, and other projects where people strive together with a common vision)

Julia Child's co-author succeeded in the kitchen but also in second half of life. Abigail Trafford, in her WashPost column (My Time, 3-2-2010), quotes psychiatrist Harvey L. Rich, author of In the Moment: Celebrating the Everyday: "We snicker at the young -- we say the problem with youth is that it's wasted on the young. . . . But young people have a different job than older people. They are trying to build a life; we're at the stage of trying to make sense of life. The young haven't acquired the language. They're not there yet."

Listen to An Old Wise Man Once Said. Henry Alford, author of How to Live: A Search for Wisdom from Old People (While They Are Still on This Earth), goes to Washington Square Park to get strangers to share their hopes and fears about growing old.

Long-term care insurance, advice and information about:
ElderLaw Answers (What to Look for In a Long-Term Care Insurance Policy, When Should You Purchase Long-Term Care Insurance?, How Much Insurance Should You Purchase?, Which Spouse Should Get Coverage?,Long-Term Care Insurance and Medicaid Planning,
Partnership Policies, The Tax Deductibility of Long-Term Care Insurance Premiums, The Taxation of Benefits, Consult With a Qualified Agent, Books on Long-Term Care Insurance)
National Clearinghouse for Long-Term Care Information U.S. Dept of Health & Human Services
ResearchLTC (get comparisons of top 10 insurers & policies: Allianz, Bankers Life & Casualty, Genworth Life, John Hancock, MassMutual, MetLife, Mutual of Omaha, New York Life, Prudential, State Farm)
The Coming Caregiver Crunch and Why This Gerontologist Owns Long Term Care Insurance by Ken Dychtwald, Huffington Post
Long-Term Care Insurance: The Essentials (free PDF from MetLife, an insurer)
J.K. Lasser's Choosing the Right Long-Term Care Insurance by Benjamin Lipson
Long-Term Care: Your Financial Planning Guide by Phyllis Shelton

Program of All-Inclusive Care for the Elderly (PACE), an optional benefit under Medicare and Medicaid that helps older people frail enough to meet state standards for nursing home care stay in their home.PACE offers and manages all the medical, social and rehabilitative services enrollees need to preserve or restore their independence, stay in their homes and communities, and maintain their quality of life. Listen to this interview on Kansas Public Radio about PACE. There is evidence that this new model of care is effective, but it is not yet widely available. Here is a current list of PACE-provider organizations

A Woman Like Me, Lesléa Newman's classic piece (for Obit Magazine) on watching obits for the woman who dies childless. ("Will I suffer? Will I become helpless and undignified? Will there be anyone at my bedside to pat my hand and tell me to look towards the light?")

Working a Bronx Parking Lot, at Age 100 Times video about Joe Binder, still working as a valet in a restaurant parking lot.

Traveling with limited mobility and other disabilities, books on:
Access Anything: I Can Do That! - Adventuring with Disabilities by Andrea & Craig Kennedy
Barrier-Free Travel:A Nuts And Bolts Guide For Wheelers And Slow Walkers by Candy B. Harrington (author of 101 Accessible Vacations: Vacation Ideas for Wheelers and Slow Walkers and There Is Room at the Inn: Inns and B&Bs for Wheelers and Slow Walkers
Rick Steves' Easy Access Europe: A Guide for Travelers with Limited Mobility
If I Had My Life to Live Over

I'd dare to make more mistakes next time.
I'd relax. I would limber up.
I would be sillier than I have been this trip.
I would take fewer things seriously.
I would take more chances.
I would take more trips.
I would climb more mountains and swim more rivers.
I would eat more ice cream and fewer beans.
I would perhaps have more actual troubles but I'd have fewer imaginary ones.

You see, I'm one of those people who live sensibly and sanely hour after hour, day after day.

Oh, I've had my moments and if I had it to do over again, I'd have more of them. In fact, I'd try to have nothing else. Just moments. One after another, instead of living so many years ahead of each day.

I've been one of those people who never go anywhere without a thermometer, a hot water bottle, a raincoat and a parachute.
If I had my life to live over, I would start barefoot earlier in the spring and stay that way later in the fall.
If I had it to do again, I would travel lighter next time.
I would go to more dances.
I would ride more merry-go-rounds.
I would pick more daisies.

~ Attributed to 85-year-old Nadine Stair

Buy Now - Dying: A Book of Comfort


"Often what we define as health problems are really support problems."
~ Judith Snow, quoted in Consequential Strangers: The Power of People Who Don't Seem to Matter. . . But Really Do by Melinda Blau and Karen L. Fingerman

MY MOTHER, THE LION
by Ruth Little


When my partners Holly Hanson, Judie Suit, and I started Elders’ Eden, our dream was to create for our mothers (and Judie’s aunt) a real home — a place where they were loved and valued as the remarkable people they are, each with special skills, achievements, and quirks. We wanted them to have close and continuing relationships with caregivers, children, and pets. And we wanted them to be able, if at all possible, to die at home.

For my mother, Elinor Kester Driedger, this dream was a reality and I am so very grateful. Her last years were rich with love, and every day was full and meaningful because of our wonderful family of caregivers. And they really ARE family to us all. She was deeply contented in these last years, and her gentle passing is exactly what I hoped to make possible.

Mom moved to Rockford in 2000, when dementia had already begun to take a toll. Her caregivers know she could be feisty. Most of you who met her met the lamb. I remember the lion…

Let me talk a little about my mother, the lion — a woman who packed her chain saw when she came to visit, when she was well over 80, just in case we needed something cut down.

She was basically an artsy person. She loved music, books, poetry, theater, and dance. She taught me many Gilbert & Sullivan songs, sparking my interest in music, language, and rhyme—for instance, this song from Pirates of Penzance: “When a felon’s not engaged in his employment, or maturing his felonious little plans, his capacity for innocent enjoyment is just as great as any other man’s. Our feelings we with difficulty smother when constabulary duty’s to be done, take one consideration with another, a policeman’s lot is not a happy one.” I know I was NOT over four when I learned this; I remember asking the meaning of most of the long words.

Elinor whistled; she didn’t hum or sing. She whistled a LOT. Her repertory included show tunes, classical music, and pop tunes of her era. Many of her favorites I learned from her whistling.

She was determined, and not given to compromise. Not about anything. I couldn’t leave home until I made my bed. When I missed the school bus, I walked the 7 miles to high school, and she was never apologetic about my extreme lateness to the school administration.

Elinor was aggressively honest. In my high school, there was no after-school activity bus, so after sports or band practice, kids would call home to summon a ride. Most had a code to avoid paying for the phone call: put your money in the phone and let it ring a certain number of times and hang up. But I never had a code. My mother believed that was cheating the phone company, and she wouldn’t do it. That made an impression. I suspect that was her goal.

I learned to play piano because she strictly enforced a daily hour of practice – and an hour meant a full hour with your fingers on the keys. I’m grateful that when I wanted to make the New Jersey All-State band in high school, I had developed the discipline to practice clarinet the hour or two a day it took to get in that band.

She was incredibly compassionate — always concerned about people who were poor, or exploited, or coping with disabilities or health issues. Wherever we lived, she was active in one or more social service organizations. Over the years, she worked to help recent immigrants and people with disabilities — physical disabilities and mental illness. She worked on race relations, open housing, and women’s rights and probably other things I wasn’t aware of.

Our parent’s friends were diverse and interesting. My mother was intrigued by differences, and actively sought out relationships with a wide variety of people. Our lives were richer because of the several families of new Americans who were welcomed into our home and became a large part of our lives. The autistic child of family friends was a frequent playmate. I was nearly 8 when it dawned on me that my friend Dimi didn’t talk.

Many years ago, the YWCA in Baton Rouge started some groups to plant the seeds of better race relations. “Dialogue groups” of about 20 women, half white and half people of color, were signed up for 8 weeks of meetings to get to know one another. My mother’s group didn’t disband. After many, many weeks, they moved out of the Y and started monthly meetings. Over the years, their lives were entwined…they shared weddings, funerals, trips, parties, and vacations together. When my folks left Baton Rouge, her Dialogue group had been meeting for more than 20 years.

She had such a variety of interests and hobbies. She loved archeology and relished each of the many trips my folks took around the world. She loved gardening, and she was a serious about her compost. Nearly every time we visited our favorite fancy restaurant in Louisiana we had to stop at the kitchen before we left so she could collect a big bag of shrimp and crawdad shells because “these are good for the compost.” She brought a lot of strange things home because they were good for the compost. Living with this woman was always interesting.

And she was fiercely independent. She had hoped to drive until she was 100, and you may all be thankful that she eventually forgot that idea. When she was in therapy to recover from a broken hip, she told the gait therapist “I’ve been walking for nearly 90 years, and I don’t need any lessons.”

We have a very large framed photo of my dad, and after my dad died, she would carry that from room to room so he could be with her. As the mist of memory loss descended, he seemed quite real to her. I once arrived in her apartment to find her sitting with the TV facing away from her, and the photo on a chair facing the TV. When I asked her “What’s going on here?” She said “Oh, he’s watching sports or something.”

Eventually Elinor lived only in the present. Memory loss is not such a terrible thing once you learn to appreciate the new opportunities it presents.

Once I brought her flowers, which we put on her dresser. The next day, as we walked by those flowers, I pointed them out …and she said “Oh yes, they’ve been there as long as I can remember.” And she laughed – I think she knew that was a great line.

In her last years, she was not able to speak very often or very well. While she could still talk a little, I asked her if we managed to understand what she wanted and what she meant, and she said yes. It took me a while to realize why that was true. If she had not stopped talking, I never would have realized how very expressive her face was. She had an incredible variety of expressions: a raised eyebrow, a furrowed brow, a big smile, a slight nod of the head, and a devilish wink, augmented by a few key sounds, .the most notable being what we called “the whoop.” We always knew what she meant.

I loved my mother….I’m grateful for her spirit, her eagerness to embrace life, her love and her example of integrity, compassion, and community involvement.

We have an Elders’ Eden blessing:

May there always be work for your hands to do
May you share your home with a pet or two
May your life be filled with growing things
May you know the comfort that family brings
May the sun always shine on your windowpane
May a rainbow be certain to follow each rain
May the hand of a friend always be near you
May love fill your heart with gladness to cheer you.

I’m grateful for Elders’ Eden and my friends there who gave my mom love and support and dignity, and made it possible for her to have her toes in the grass in summer, a child by her chair, a cat on her bed and a smile on her face, for so long.

Copyright © by Ruth Little. Reprinted here by permission.


Buy Now - Dying: A Book of Comfort
The Thing About Life Is That One Day You'll Be Dead, David Shields' excellent autobiography of his body, is a fascinating little book about life and death and about what's happening to your body enroute from one to the other. Don't read it if you don't want to hear the bad news, but it does help explain things like why you have to make more trips to the bathroom as you age.

Attitude is (nearly) everything

"When you are fifty, you're neither young nor old, you're just uninteresting.
When you are sixty, and still dancing, you become something of a curiosity.
And boy! If you hit seventy and can still get a foot off the ground, you're phenomenal!"
~ Ruth St. Denis, modern dance pioneer

"When I was young I was amazed at Plutarch's statement that the elder Cato began at the age of eighty to learn Greek. I am amazed no longer. Old age is ready to undertake tasks that youth shirked because they would take too long."
~Somerset Maugham, in The Summing Up

"It is not by muscle, speed, or physical dexterity that great things are achieved, but by reflection, force of character, and judgment; and in these qualities old age is usually not only not poorer, but is even richer."
~ Cicero (106-43 B.C.)

"Ripe old age, cheerful, useful, and understanding, is one of the finest influences in the world."
~ Ida Tarbell, The Business of Being a Woman

"You're never too old to become younger."
~ Mae West

Life may not be the party we expected, but while we're here, we might as well dance.
~ spotted on a tee shirt at Glen Echo's Spanish Ballroom

Oh, life is a glorious cycle of song,
A medley of extemporanea;
And love is a thing that can never go wrong;
And I am Marie of Romania.

~ Dorothy Parker, in Not So Deep as a Well

"Some people are so afraid to die that they never begin to live."
~Henry Van Dyke

"The idea is to die young as late as possible."
~Ashley Montagu

"The years between 50 and 70 are the hardest. You are always being asked to do things, and yet you are not decrepit enough to turn them down."
~ T. S. Eliot

“I will age ungracefully until I become an old woman in a small garden, doing whatever the hell I want.”
~ Robin Chotzinoff

The Paradox of Choice. Psychologist Barry Schwartz takes aim at a central tenet of western societies: freedom of choice. In Schwartz's estimation, choice has made us not freer but more paralyzed, not happier but more dissatisfied. "The secret to life is low expectations." Great cartoons.

"Old age would be the most happy of the stage of life, if only it did not know it was the last."
~ Comtesse Diane, Les Glanes de la Vie

"If old age in the shape of waning strength says to me often, 'Thou shalt not!' so do my years smile upon me and say to me, 'Thou needst not.'
~ Mary Heaton Vorse, Autobiography of an Elderly Woman (1911)



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