Complex and Difficult Endings
Complex, difficult, and intentional deaths
“Holding onto anger is like drinking poison and expecting the other person to die.”
Or as Buddy Hackett put it
"Don't carry a grudge. While you're carrying a grudge, they're out dancing."
• End-of-life decision-making
• End-of-life decision-making in the critical care unit
• Aid in dying (assisted death)
• Assisted dying and VSED (voluntarily stopping eating and drinking)
• Death with Dignity
• Domestic violence
• Euthanasia (physician-assisted dying)
• Gun violence and violent deaths
• Helpful organizations and Web resources
• Help Lines, hotlines, and lifelines
• How to tell children their parent is dying
• Mass shootings, including school shootings
• A reading list
• Suicide, suicidal thinking, suicide prevention and awareness
• Suicide and surviving suicide (books and stories)
• Sudden death
• Useful links, general
• Buying drugs and procedures smartly, cheaply, safely
• Conversations about dying
• Death cafes and conversations about end-of-life concerns
• Death, dying, and end of life care
• Long-term care and long-term care insurance
• Grieving the loss of a child
• 'Right to try' laws, early or expanded access programs, compassionate use of experimental drugs (pro and con)
• Statistics about death, mortality, long-term care, hospice care, and palliative care
Suicide, homicide, physician-assisted suicide, violence (including domestic violence and gun violence), sudden death (from accidents and otherwise), dementia and other forms of lingering illness -- complex and difficult endings may bring complicated losses and complicated grief. You'll find some resources to deal with such losses here. Alternatives include assisted dying ("aid in dying") and VSED (voluntarily stopping eating and drinking).
• National Suicide Prevention Lifeline If you are considering suicide, call 800-273-8255 (TALK) (en español: 1-888-628-9454; deaf and hard of hearing: 1-800-799-4889) or the Crisis Text Line by texting HOME to 741741.
• PoisonControl (Poison Control Centers) Need immediate assistance? In the U.S., there are two ways to get help for a poison emergency. Call 1-800-222-1222 or Use the webPoisonControl tool.
• Calling 911 and Talking with Police (NAMI tips) What the police can do.
• NAMI (National Alliance on Mental Illness) When a friend or family member develops a mental health condition, it's important to know that you're not alone.
• Speaking of Suicide (Friends and Family) A site for suicidal individuals and their loved ones, survivors, mental health professionals, & the merely curious.
• Crisis Text Line Text "Start" to 741-741
• Veterans Crisis Line 1-800-273-8255 and press 1. Support for deaf and hard-of-hearing: 1-800-799-4889 or chat online.
• Trans Lifeline (by and for trans and gender nonconforming people) The Hotline: 1-877-565-8860
• 7 Cups of Tea 7 Cups connects you to caring listeners for free emotional support.
• National Domestic Violence Hotline1-800-799-7233 or TTY 1-800-787-3224. Computer use can be monitored and is impossible to completely clear. If you are afraid your internet usage might be monitored, call the National Domestic Violence Hotline.
• The Childhelp National Child Abuse Hotline 1-800-422-4453
• National Human Trafficking Hotline If you or someone you know is a victim of human trafficking, call now. We'll listen. We'll help. 1-888-373-7888 (TTY: 711) or Text 233733
• VictimConnect (National Center for Victims of Crime) "Reach us by phone and chat: 855-4-VICTIM (855-484-2846)
• Rape, Sexual Assault, Abuse, and Incest National Network (RAINN) 1-800-656-HOPE
• Boys Town Hotline 1-800-448-3000. Serving all at-risk teens and children. Spanish-speaking counselors and translation services representing more than 140 languages are available, along with a TDD line (1-800-448-1833), that allows counselors to communicate with speech-impaired and deaf callers.
• National Runaway Safeline 1-800-RUN-AWAY
• National Teen Dating Violence Hotline ("Love is respect." 1-866-331-9474 or text “loveis” to 22522
• The Trevor Project ("Saving young LGBTQ lives") 1-866-488-7386, text or chat, 24/7
OTHER RESOURCES LISTING HOTLINES AND HELPLINES:
• Common Hotline Phone Numbers (Psych Central staff)
• NAMI's Top HelpLine Resources (National Alliance on Mental Illness)
• Please Live list of hotlines
• A Voice at the Table, developed by Marcia Epstein
An assisted dying law would not result in more people dying, but in fewer people suffering."
Two national U.S. organizations, Compassion & Choices and Death with Dignity, advocate and provide information about death with dignity and right to die laws. Find out what the laws are in your state, and learn more from the articles below.
People with dementia are unable to qualify for the Death with Dignity Act because by the time they are eligible to receive a terminal diagnosis with a six-month prognosis, they are no longer deemed mentally competent.
• How Death with Dignity Laws Work This page is for patients and others interested in learning how death with dignity laws work. If you are a physician or a pharmacist seeking information about implementing these laws as a healthcare provider, including forms, see this page of Information for health care providers. Death with dignity laws allow qualified terminally-ill adults to voluntarily request and receive a prescription medication to hasten their death.
• The Last Day of Her Life (Robin Marantz Henig, New York Times Magazine, 5-14-15) When Sandy Bem found out she had Alzheimer’s, she resolved that before the disease stole her mind, she would kill herself. The question was, when? (Read this beautiful story with a tissue on hand.)
• Death with Dignity Acts "Death with dignity laws, also known as physician-assisted dying or aid-in-dying laws, stem from the basic idea that it is the terminally ill people, not government and its interference, politicians and their ideology, or religious leaders and their dogma, who should make their end-of-life decisions and determine how much pain and suffering they should endure.
"Death with dignity statutes allow mentally competent adult state residents who have a terminal illness with a confirmed prognosis of having 6 or fewer months to live to voluntarily request and receive a prescription medication to hasten their inevitable, imminent death."
• Gov. Mills’ explains Death with Dignity Act support (posted on Fosters.com, 6-14-19) The very thoughtful comments Maine Gov. Janet Mills offered June 12 when signing LD 1313, Maine's Death With Dignity Act. The law establishes the procedures to allow those with a terminal illness and a short time to live to be prescribed medication to end their life. See also Mills Signs 'Death With Dignity' Bill Into Law (Steve Mistler, Main Public, All Things Considered with Nora Flaherty, NPR, 6-12-19) Maine Gov. Janet Mills agonized over a decision to join Maine with seven other states that allow terminally ill patients to end their lives with medication. And, like many of the lawmakers who grappled with the morality of a measure dubbed "death with dignity" by supporters and "assisted suicide" by opponents, the governor says she made her decision based on a legal review of an issue that encompasses the rights of self-determination and government-sanctioned suicide.
• ‘No One Is Ever Really Ready’: Aid-In-Dying Patient Chooses His Last Day (JoNel Aleccia, KHN and NBC News, 8-14-18) More than 3,000 people in the U.S. have chosen such deaths since Oregon’s law was enacted in 1997, according to state reports. Even as similar statutes have expanded to more venues, it has remained controversial. Supporters say the practice gives patients control over their own fate in the face of a terminal illness. Detractors — including religious groups, disability rights advocates and some doctors — argue that such laws could put pressure on vulnerable people and that proper palliative care can ease end-of-life suffering. Data from Oregon show that the median time from first request to death is 48 days, or about seven weeks. But it has ranged from two weeks to more than 2.7 years, records show. Neurodegenerative diseases like ALS are particularly difficult, said Dr. Lonny Shavelson, a Berkeley, Calif., physician who has supervised nearly 90 aid-in-dying deaths in that state and advised more than 600 patients since 2016. “It’s a very complicated decision week to week,” he said. “How do you decide? When do you decide? We don’t let them make that decision alone.” Along with the pain, the risk of losing the physical ability to administer the medication himself, a legal requirement, was growing. He could lose his window of opportunity.
• Religion and Spirituality (Death With Dignity) Summaries of viewpoints of the differing faith traditions on Death with Dignity.
• My Right to Die: Assisted suicide, my family, and me. (Kevin Drum, Mother Jones, Jan./Feb. 2016) Framed by a particular story, this is an excellent overview of the social and legal (U.S.) history of assisted suicide, physician-assisted suicide, aid-in-dying, right to die legislation. Will assisted suicide be the next civil rights battle? Drum faces the issue himself, as little by little multiple myeloma resists his battle against it. "My choice has always been clear: I don't want to die in pain—or drugged into a stupor by pain meds—all while connected to tubes and respirators in a hospital room. When the end is near, I want to take my own life. ... I suspect that taking your own life requires a certain amount of courage, and I don't know if I have it. Probably none of us do until we're faced with it head-on." The piece concludes: 'When he signed California's right-to-die bill, Gov. Brown attached a signing statement. "I do not know what I would do if I were dying in prolonged and excruciating pain," he wrote. "I am certain, however, that it would be a comfort to be able to consider the options afforded by this bill. And I wouldn't deny that right to others."
• How Death with Dignity Laws Work (Death With Dignity) "Death with dignity laws allow qualified terminally-ill adults to voluntarily request and receive a prescription medication to hasten their death." As of January 1, 2019, these states have death with dignity statutes: California, Colorado, District of Columbia, Hawaii, Oregon, Vermont, and Washington. "In Montana, physician-assisted dying has been legal by State Supreme Court ruling since 2009." On this page, the processes to hasten death are explained.
• I’m dying, and I’d like D.C.’s Death with Dignity Act to help (Mary Klein, OpEd, WashPost, 4-6-18) "I would like the option of medical aid in dying, which is authorized under D.C.’s Death with Dignity Act and that took effect in February 2017 for those terminally ill patients who meet strict requirements. The law allows mentally capable terminally ill adults with six months or less to live to get prescription medication they can decide to take if the suffering becomes unbearable, so they can die peacefully in their sleep, at home, surrounded by loved ones....March 23 also was the 20th anniversary of the first prescription for medical aid in dying in the nation, under the Oregon Death With Dignity Act, the model for medical aid-in-dying laws in the District and five other states.
• Death with Dignity Acts (Deathwithdignity.org) "Death with Dignity laws, also known as physician-assisted dying or aid-in-dying laws, stem from the basic idea that it is the terminally ill people, not government and its interference, politicians and their ideology, or religious leaders and their dogma, who should make their end-of-life decisions and determine how much pain and suffering they should endure. Death with Dignity statutes allow mentally competent adult state residents who have a terminal illness with a confirmed prognosis of having 6 or fewer months to live to voluntarily request and receive a prescription medication to hasten their inevitable, imminent death."
• Final Exit Network Q&A Q&A concerning your questions on death-with-dignity, Final Exit Network, and related topics. Q1: When and where did the modern voluntary euthanasia movement start? Answer: In 1935 in Britain, in 1938 in the U.S., and in 1980 in Canada. The British and North America groups were very small and insignificant for the next two decades. Derek Humphry is credited with kick-starting the modern euthanasia movement in America in 1980 when he started the Hemlock Society. Derek Humphry is author of Final Exit: The Practicalities of Self-Deliverance and Assisted Suicide for the Dying.
• Good Life, Good Death (watch and listen to Humanist Society teleconference, 55 minutes) In this presentation, Dr. Martin Seidenfeld of the Final Exit Network (voice and visuals) discusses the very practical issues involved when suffering persons want to exercise their right to determine their own deaths, and how The Final Exit Network works with qualified people to achieve death with dignity.
• The Prison Where Inmates Help Each Other Die With Dignity (Maura Ewing, Jeremy Leung, Narratively, 3-23-17) More Americans are dying behind bars than ever before. At one correctional facility (Osborn Correctional Institution, a medium-security prison in northern Connecticut), volunteer death-doulas offer care and comfort to their fellow prisoners. "The mantra of hospice is “death with dignity.” It is a comfort-oriented approach to death in which quality of life is deemed as important as the number of days the patient has left. Pain management is a priority, and unlike the sterile anonymity of a hospital, hospice patients die at home or in a place that feels like home, surrounded by family. Hospice care is meant to address not just the physical needs of the dying, but their mental and emotional needs as well. Osborn’s hospice may not be as cozy as a living room, but it is a definite step up from a cell or the general medical ward down the hall. Many inmates don’t have family who are willing or able to spend their last weeks, or days, with them. So in addition to medical duties, the inmate volunteers serve as a stand-in family."
• After Colorado, ‘Right To Die’ Movement Eyes New Battlegrounds (Melissa Bailey, Kaiser Health News, 11-9-16) Fortified by a solid victory in Colorado Tuesday, a controversial campaign to let terminally ill patients access life-ending medication is moving on to other battlegrounds across the country. An overview of where such campaigns stand.'
• Support Death with Dignity (Compassion & Choices) Nearly 7 in 10 Americans support giving terminally ill, mentally competent adults the option to access life ending drugs, yet it is not authorized in 45 states.
• Death With Dignity Should Not Be Equated With Physician Assisted Suicide (Peter Ubel, Forbes, 8-26-13)
• Death with Dignity and Palliative Care (Melissa Barber, Living with Dying blog, Death with Dignity National Center, 8-28-13).
• The Dying of the Light (Craig Bowron, Washington Post, 1-11-09) This isn't about euthanasia. It's not about spiraling health care costs. It's about the gift of life -- and death. It is about living life and death with dignity, and letting go. ...At some point in life, the only thing worse than dying is being kept alive.
• Aid-in-Dying Laws Are Just a Start (Katy Butler, Opinionator, NY Times, 7-11-15) "In the hour of our deaths, most of us will yearn not to cut short our time but for a “soft technology” of compassion, caring and interpersonal skill... To truly die with dignity, we will need good nursing, practical support, pain management and kindness. All should be better reimbursed by Medicare."
• 111 people died under California's new right-to-die law (Ben Tinker, CNN, 6-28-17) Between June 9 and December 31, 2016, 258 people initiated the process, according to the report. One hundred ninety-one people were prescribed the lethal medication, of which 111 patients "were reported by their physician to have died following ingestion of aid-in-dying drugs prescribed under EOLA....The majority of the 111 people who utilized the law were cancer patients, according to the report....In California, a mentally capable adult is eligible to partake in the End of Life Option Act if he or she is determined to have a terminal illness -- meaning they have six months or less to live. The patient must make two verbal requests of their doctor, at least 15 days apart, as well as one written request. The patient must affirm his or her request 48 hours before ingesting the medication, which they must be able to self-administer, without the help of a physician, family member or friend....Physician-assisted aid-in-dying is different from euthanasia (commonly referred to as physician-assisted suicide), which is illegal in all 50 states. Aid-in-dying advocates such as former California state Sen. Lois Wolk and state Sen. Bill Monning -- who co-authored the End of Life Option Act -- dislike the term "suicide," because it implies an impulsive and irrational act."
• My right to death with dignity (Brittany Maynard, CNN, 10-7-14) Diagnosed with terminal cancer, turning 30, a young woman chooses to die on her own terms, "Having this choice at the end of my life has become incredibly important. It has given me a sense of peace during a tumultuous time that otherwise would be dominated by fear, uncertainty and pain."
• My Decision to Die: A terminal cancer patient's controversial choice (Nicole Weisensee Egan, People, 10-27-14) Headline: Terminally Ill Brittany Maynard: Why I'm Ending My Life in Less Than Three Weeks. Maynard, 29, has terminal brain cancer and has made plans to end her own life with the sedative Secobarbitol on Nov. 1 if her suffering becomes too much to handle. See links to more stories about this death-with-dignity advocate on website for The Brittany Maynard Fund. "With one six-minute video, Brittany Maynard started a global conversation about death with dignity."
• Long Legal Battle Over as Schiavo Dies (Manuel Roig-Franzia, Wash Post, 4-1-05) Florida Case Expected To Factor Into Laws For End-of-Life Rights
• Death with Dignity: The Oregon Experience by Susan Hedlund (Association for Death Education and Counseling, or ADEC)
• Why Americans Can't Die With Dignity (Mother Jones, 9-7-13) Katy Butler on overtreatment, end-of-life suffering, and the need for a Slow Medicine movement.
• Exit International
• Elderly couple got ‘deepest wish’ — to die together — in rare euthanasia case (Lindsey Bever, WashPost, 8-17-17) "They were both 91 years old and in declining health. Nic Elderhorst suffered a stroke in 2012 and more recently, his wife, Trees Elderhorst, was diagnosed with dementia, according to the Dutch newspaper, De Gelderlander. Neither wanted to live without the other, or leave this world alone....The Netherlands became the first country to legalize euthanasia in 2002, allowing physicians to assist ailing patients in ending their lives without facing criminal prosecution."
• The Last Thing Mom Asked (Sarah Lyall, NY Times, 8-31-18) I am not a doctor. I am not very brave. I’m also a resident of New York State, where assisted suicide is illegal. But I want to do what she wants.
• The neurosurgeon Henry Marsh on why assisted dying should be legalised Assisted dying is not euthanasia. It is about people making their own free choice that it’s time for their life to end, argues bestselling author Henry Marsh. "...only rarely is dying easy, and most of us now will end our lives in hospitals, a few of us in hospices, in the care of strangers, with little dignity and no autonomy — unlike our ancestors, who mostly died in their own homes. Although scientific medicine has brought great and wonderful blessings, it has also brought a curse — dying, for many of us, has become an unpleasantly prolonged and institutionalised experience." In several countries "it is not illegal for doctors to prescribe a drug (usually a barbiturate) with which people can bring their life to a dignified and peaceful end." A long, excellent read.
• A terminally ill woman had one rule at her end-of-life party: No crying (Lindsy Bever, WashPost, 8-16-16) Betsy Davis had ALS. “The idea of her taking charge of her departure was something she had talked about from the early stages of the diagnosis because everyone knows where this disease goes,” Niels Alpert, a longtime friend who once dated her, told The Washington Post. “She knew she would rather take control of her final destiny before she entered total locked-in syndrome and was completely helpless.”
'California’s new law states that the patient must be at least 18 years old, terminally ill and expected to die within six months. The patient must also be mentally capable of making the decision to die and physically capable of self-administering the aid-in-dying drug, according to the law. It adds that using an aid-in-dying drug under the allowed circumstances “is not suicide” and that medical personnel and insurance companies should not treat it as such.' Related story: What I Learned Helping My Sister Use California’s New Law to End Her Life (Kelly Davis, Voice of San Diego, 8-9-16)
• I didn't like it, but this was the death she chose (Cindy Schweich Handler, Washington Post, 6-21-16) "While her pronouncement that she’s “had a good run” has left Harry and me sidelined with shock, our eldest son, Ted, understands. A graduating fourth-year medical student in Boston, he has often relayed horror stories about the hospital patients whose bodies are kept alive long after their occupants have experienced any pleasure in them."
• Life, Death & Lee (a collection of stories chronicling how Northampton resident Lee Hawkins'got the death she planned for)
---Full of life, Lee Hawkins decides to plan her death (Laurie Loisel, Daily Hampshire Gazette, 9-22-14, photos by Carol Lollis) At age 90, Lee stopped taking in food and water, a method now common enough to have its own acronym: VSED, for voluntarily stopping eating and drinking. "Neither Lee nor her doctor saw this as an act of suicide, but something far more natural." This three-part series chronicles Lee’s "decision to bring about her death and the health care workers, family members and friends who accompanied her on a journey of her choosing."
---About this series
---After decision made, time for Lee Hawkins’ slow goodbye to friends, family (9-23-14)
---Decision by Lee Hawkins to stop eating and drinking prompts new policy at VNA & Hospice of Cooley Dickinson (9-24-14) “In every state this is an option, it’s a legal option,” Kirk said. “You don’t need anybody’s permission to stop eating and drinking.”
• Aid-In-Dying Laws Only Accentuate Need For Palliative Care, Providers Say (Anna Gorman, Kaiser Health News, 12-1-15) KHN staff writer Anna Gorman reports: "More times than she can count, Dr. Carin van Zyl has heard terminally ill patients beg to die. They tell her they can’t handle the pain, that the nausea is unbearable and the anxiety overwhelming. If she were in the same situation, she too would want life-ending medication, even though she doubts she would ever take it. 'I would want an escape hatch,' she said. Earlier this month, California law became the fifth — and largest — state to allow physicians to prescribe lethal medications to certain patients who ask for it."
• Dying vets cannot use life-ending drugs at many state homes (Julie Watson, AP, WashPost, 3-7-18) Suffering from heart problems, Bob Sloan told his children he wants to use California’s new law allowing life-ending drugs for the terminally ill when his disease becomes too advanced to bear. But then the 73-year-old former U.S. Army sergeant learned that because he lives at the Veterans Home of California at Yountville — the nation’s largest retirement home for veterans — he must first move out
• A Conversation About Assisted Death with Author Miriam Toews (YouTube, video) "It was the first time that we had sort of articulated our major problem. She wanted to die and I wanted her to live and we were enemies who loved each other" - All My Puny Sorrows
• Voluntary stopping of eating and drinking at the end of life – a ‘systematic search and review’ giving insight into an option of hastening death in capacitated adults at the end of life (BMC Palliat Carev.13; 2014, cited on Kaiser Health News (8-21-17) This analysis of VSED research concluded that “terminally ill patients dying of dehydration or starvation do not suffer if adequate palliative care is provided.” A 2003 survey of nurses in Oregon who helped more than 100 patients with VSED deaths said they were “good” deaths, with a median score of 8 on a 9-point scale. Unlike aid-in-dying laws or rulings now in place in six states, VSED doesn’t require a government mandate or doctor’s authorization.
• The Traveler's Final Journey (Carrie Seidman, Herald Tribune) Dorothy Conlon's final journey took 16 days. See End-of-life resources (sidebar for Dorothy's Final Journey).
• Diane Rehm: My Husband's Slow, Deliberate Death Was Unnecessary (Maggie Fox, NBC News) Polls show that 65 percent or more of the U.S. population supports having an option available to help people choose a quicker, more painless death, Compassion & Choices says. This is different from assisted suicide or euthanasia, the group stresses. “Assisted suicide is a crime in many states, including Oregon and Washington, where aid in dying is legal,” the group says....Compassion & Choices says it doesn't support euthanasia or "mercy killing," "because someone else — not the dying person — chooses and acts to cause death." What is called euthanasia and is legal in some European countries more closely resembles what the group calls aid in dying. “We do not let our little animals suffer and people shouldn’t have to suffer.” John Rehm had to deliberately die by dehydration. It took nine days. “John said he felt betrayed,” Rehm said. He said, ‘I felt that when the time came, you would be able to help me.’”
• Diane Rehm Advocates for Aid in Dying Nationwide After Husband’s Painful Death From Parkinson’s (Compassion & Choices)
• NPR host Diane Rehm's disclosure about her husband's death puts light on end-of-life choice (Jodie Tillman, Tampa Bay Times, 7-11-14) A more complete piece than most of them on this story.
• To Achieve Radical Change End-Of-Life Providers Need To Address Some Home Truths (Lloyd Riley, HuffPost, 5-23-17) Dr BJ Miller, a consultant in palliative medicine "passionately believes in the principle of person-centeredness that underpins end-of-life care and argues that the shift away from over-medicalization must be adopted by other specialties." One needn't choose between "assisted dying" and improved end-of-life care. "Dying people need to be involved in decisions about their care; and treatment preferences need to be recorded, shared and acted upon. Doctors are central to this -- caring for dying people as they want to be cared for should be seen as fundamental, not desirable. " But "fear of expressing support for assisted dying within the palliative care community in the UK is widespread." "Dying people need to know their voice matters and legalizing assisted dying can bring about the culture change the medical profession repeatedly calls for."
• American Foundation for Suicide Prevention (AFSP). Walk to save lives: Out of the Darkness Walks
• The Columbia Lighthouse Project. Identify risk. Prevent suicide. Kelly Posner Gerstenhaber, founder and director. Her Columbia-Suicide Severity Rating Scale (C_SSRS) has been adopted in thousands of public health settings, her methods rolled out worldwide.
• Compassion & Choices (committed to improving care and expanding choice at the end of life)
• Compassionate Friends (national self-help organization for help grieving the loss of a child of any age). Resources include a Chapter Locator and online brochures on topics ranging from Understanding Grief, Sudden Death, Surviving Your Child's Suicide or Homicide, The Death of an Adult Child, Death of a Special-Needs Child, Adults Grieving the Death of a Sibling, Suggestions for Various Professionals Dealing with Someone's Loss of a Child. Compassionate Friends' credo: The Compassionate Friends credo: "We reach out to each other in love to share the pain as well as the joy, share the anger as well as the peace, share the faith as well as the doubts, and help each other to grieve as well as to grow. We need not walk alone. We are The Compassionate Friends." Here Linton Weeks describes the healing that goes on at a Compassionate Friends conference. He writes: "No matter how your child dies, there is an undeniable sense of failure among bereaved parents. Jan and I are haunted by Stone's and Holt's violent, senseless deaths, and all of the wrongs that can never be righted. Including the biggest of them all — we could not save our sons from death. We should have been the ones who died first, not our precious boys. We carry that guilt in our already shattered hearts, and we relearn every morning when we wake up that the loss of our children is something we will never get over. Or past. Or through." The Compassionate Friends conference brings together parents isolated from their friends, family, work by pain and inexperience with such loss.
• ERGO bookstore (Euthanasia Research & Guidance Organization). For the rights of the terminal or hopelessly physically ill, competent adult. Sells editions of Final Exit, and specialized items such as Derek Humphrey's How to Make Your Own Inert Gas Hood Kit
• Euthanasia Research & Guidance Organization (ERGO) (Euthanasia World Directory, website of Hemlock Society founder Derek Humphrey)
• Final Exit Network (www.finalexit.org)
• Growth House provides access to over 4,000 pages of education materials about end-of-life care, palliative medicine, and hospice care, including the full text of several books.
• HALOS, a support group for families and friends who have lost a loved one to homicide (not a therapy group and not associated with any religious group)
• The Hemlock Society, founded as a right-to-die organization in Santa Monica, California, by Derek Humphrey, merged with and changed its name to Compassion & Choices in 2003, helping with end-of-life consultation.
• Homicide Outreach Project Empowering Survivors (HOPES program), William Wendt Center for Loss and Healing, Washington DC
• International Association for Suicide Prevention (IASP) Go here to find suicide crisis centers throughout the world.
• Mothers in Charge Stop the Violence! Prevention, Education, and Intervention
• National Child Traumatic Stress Network (NCTST)
• National Organization for Victim Assistance (NOVA)
• National Suicide Prevention Lifeline. Call 1-800-273-TALK (8255)
• Now I Lay Me Down to Sleep (NILMDTS), a nonprofit organization of professional photographers who, as volunteers, take photos for grieving parents, when a baby dies.
• Papyrus (UK, prevention of young suicide)
• Parents of Murdered Children (POMC, for family and friends of those who have died by violence)
• Reporting on Suicide website. Download PDF of Recommendations for Reporting on Suicide (PDF, American Foundation for Suicide Prevention) Journalists are advised to stress the effects on the bereaved family and not go into detail about means, to prevent copycat suicides.
• Right to die organizations (world directory, Final Exit)
• SAVE (Suicide Awareness, Voices of Education), suicide prevention
• Teen Suicide Prevention Campaign (American Foundation for Suicide Prevention). Watch these brief public service announcements (PSAs)
• Speaking of Suicide, A site for suicidal individuals and their loved ones, survivors, mental health professionals, & the merely curious
• Violent Death Bereavement Society
• The World Federation of Right to Die Societies(ensuring choices for a dignified death)
• The sudden death of a child (Compassionate Friends)
• Their baby died during his nap. Then medical bureaucrats deepened the parents’ anguish (Eric Boodman, STAT, 3-27-19) "a group of STAT reporters and editors met Holly and Eric High during a visit to Boston Children’s Hospital last fall. It wasn’t only that the Highs experienced the unthinkable tragedy of losing their 4-month-old, James. Their grief and self-blame were compounded by the authorities in charge of the subsequent investigation, even though there was no evidence of wrongdoing. While the point of such inquiries is to protect other kids, how the protocols are carried out can have profound negative effects on parents, especially given the widespread misconception that a sudden infant death must be the result of abuse or carelessness....Eric Boodman will also host an online chat on April 5  about the myths and misconceptions that accompany the cases of the thousands of babies each year who die suddenly and unexpectedly."
• Sudden Cardiac Death (Sudden Cardiac Arrest) (Cleveland Clinic) Sudden cardiac death (SCD) is a sudden, unexpected death caused by loss of heart function (sudden cardiac arrest). It is the largest cause of natural death in the United States, causing about 325,000 adult deaths in the United States each year -- responsible for half of all heart disease deaths. It occurs most frequently in adults in their mid-30s to mid-40s, and affects men twice as often as it does women. This condition is rare in children, affecting only 1 to 2 per 100,000 children each year.
• Sudden death in young people: Heart problems often blamed (Mayo Clinic) Sudden death in people younger than 35, often due to undiscovered heart defects or overlooked heart abnormalities, is rare. When these sudden deaths occur, it's often during physical activity, such as playing a sport. Most often, death is due to a heart abnormality. For a variety of reasons, something causes the heart to beat out of control. This abnormal heart rhythm is known as ventricular fibrillation. Specific causes of sudden cardiac death in young people include hypertrophic cardiomyopathy (HCM), coronary artery abnormalities, long QT syndrome. These and other causes explained briefly here.
• Why Do People Drop Dead? Causes of Sudden Death (Dr. Mary Williams, CPR Certified, 8-23-17) Describes causes, risk factors, symptoms, and how to respond in an emergency (specifically for heart attack, stroke, pulmonary embolism, aortic rupture)
• Heart attack (Medline Plus information page)
A Life-or-Death Situation (Robin Marantz Henig, NY Times Magazine, 7-17-13). A Right to Die, a Will to Live: As a bioethicist, Peggy Battin fought for the right of people to end their own lives. Suffering, suicide, euthanasia, a dignified death — these were subjects she had thought and written about for years, and suddenly, after her husband’s cycling accident, they turned unbearably personal. Follow-up story: Choosing to Die After a Struggle With Life (Henig, The 6th Floor, NY Times, 8-21-13) On Saturday, July 27, six days after the article was published in print, , Brooke Hopkins finally decided he’d had enough. "Later, Peggy told the Tribune reporter, Peggy Fletcher Stack, that 'it was peaceful and painless, just as he wanted it' — close to the kind of ending he described to me earlier as a 'generous death.'" Here's a video slideshow of about the peaceful end of Brooke Hopkins' life (Peggy Fletcher Stack, Salt Lake Tribune, 8-29-13
• Nukes (Latif Nasser, Radiolab, 4-7-17) President Richard Nixon once boasted that at any moment he could pick up a telephone and - in 20 minutes - kill 60 million people. Such is the power of the US President over the nation’s nuclear arsenal. But what if you were the military officer on the receiving end of that phone call? Could you refuse the order? If you're worried about the dangers of nuclear war, check out the excellent links alongside this thoughtful piece.
A Life Worth Ending (Michael Wolff, NY Times Magazine, 5-20-12). The era of medical miracles has created a new phase of aging, as far from living as it is from dying. A son’s plea to let his mother go. I agree with Robin Henig: ""One of the most beautifully done, searing articles I've ever read about death in the age of medical intrusion." Quoting from the article: "The traditional exits, of a sudden heart attack, of dying in one’s sleep, of unreasonably dropping dead in the street, of even a terminal illness, are now exotic ways of going. The longer you live the longer it will take to die. The better you have lived the worse you may die. The healthier you are – through careful diet, diligent exercise and attentive medical scrutiny – the harder it is to die. Part of the advance in life expectancy is that we have technologically inhibited the ultimate event. We have fought natural causes to almost a draw. If you eliminate smokers, drinkers, other substance abusers, the obese and the fatally ill, you are left with a rapidly growing demographic segment peculiarly resistant to death’s appointment – though far, far, far from healthy."
At the end of a loved one's life, why is it so hard to let go? (Craig Bowron, Washington Post, 2-22-12). Craig Bowron is a hospital-based internist in Minneapolis. "When families talk about letting their loved ones die 'naturally,' they often mean 'in their sleep' — not from a treatable illness such as a stroke, cancer or an infection. Choosing to let a loved one pass away by not treating an illness feels too complicit; conversely, choosing treatment that will push a patient into further suffering somehow feels like taking care of him. While it's easy to empathize with these family members' wishes, what they don't appreciate is that very few elderly patients are lucky enough to die in their sleep. Almost everyone dies of something."
UNNATURAL CAUSES | SICK AND DYING IN SMALL-TOWN AMERICA (Washington Post series, April 8, 2016)
• ‘We don’t know why it came to this’ ( Eli Saslow, Washington Post, 4-8-16) As white women between 25 and 55 die at spiking rates, a close look at one tragedy, in rural Oklahoma.
• A new divide in American death (Joel Achenbach, Dan Keating, Washington Post, 4-8-16) An urban-rural mortality gap emerges among whites as risky behaviors work to defy modern trends. White women and men in small cities and rural areas are dying at much higher rates than in 1990, while whites in the largest cities and their suburbs have steady or declining death rates. INCREASING DEATH RATES: From 1990 through 2014, the mortality rate for white women rose in most parts of the country, particularly around small cities and in rural areas. Rates often went up by more than 40 percent and, in some places, doubled. DECLINING DEATH RATES: Mortality rates were most likely to decline in the Northeast corridor and in large cities that anchor metropolitan areas of more than a million people, including Chicago, Los Angeles, Miami, St. Louis and Houston.
• Some regions are hit especially hard, such as the belt of poverty and pain that runs across the northern tier of the South, incorporating much of West Virginia, Kentucky, Tennessee and Arkansas. But significant increases in white mortality also showed up in the small-town and rural Midwest — such as Johnson County, Iowa, home of the University of Iowa — and in parts of the American West, such as Nye County, Nev., and Siskiyou County, Calif.
• Multiple factors are converging to produce this corrosion of American health. Foremost is an epidemic of opioid and heroin overdoses that has been particularly devastating in working-class and rural communities.
• Another killer is related to heavy drinking. Deaths of rural white women in their early 50s from cirrhosis of the liver have doubled since the end of the 20th century, The Post found.
• Suicides are also on the rise. The suicide rate is climbing for white women of all ages and has more than doubled for rural white women ages 50 to 54.
• Other trends may be contributing to the die-off, including obesity.
• Where living poor means dying young (Emily Badger and Christopher Ingraham, WaPo, 4-11-16) Men in the bottom income quartile live longer along the West Coast than in Las Vegas, Louisville and industrial Midwest towns, such as Gary, Ind. Life "expectancies continuously rise with income in America: The modestly poor live longer than the very poor, and the super-rich live longer than the merely rich." "...places with high shares of college graduates, high population density, high home values and high government expenditures per capita were correlated with better life expectancies for the poor. In some ways, this finding is surprising..."
Compassionate Friends (national self-help organization for help grieving the loss of a child of any age). Resources include a Chapter Locator and online brochures on topics ranging from Understanding Grief, Sudden Death, Surviving Your Child's Suicide or Homicide, The Death of an Adult Child, Death of a Special-Needs Child, Adults Grieving the Death of a Sibling, Suggestions for Various Professionals Dealing with Someone's Loss of a Child. Compassionate Friends' credo: The Compassionate Friends credo: "We reach out to each other in love to share the pain as well as the joy, share the anger as well as the peace, share the faith as well as the doubts, and help each other to grieve as well as to grow. We need not walk alone. We are The Compassionate Friends." Here Linton Weeks describes the healing that goes on at a Compassionate Friends conference. He writes: "No matter how your child dies, there is an undeniable sense of failure among bereaved parents. Jan and I are haunted by Stone's and Holt's violent, senseless deaths, and all of the wrongs that can never be righted. Including the biggest of them all — we could not save our sons from death. We should have been the ones who died first, not our precious boys. We carry that guilt in our already shattered hearts, and we relearn every morning when we wake up that the loss of our children is something we will never get over. Or past. Or through." The Compassionate Friends conference brings together parents isolated from their friends, family, work by pain and inexperience with such loss.
Complicated Losses, Difficult Deaths: A Practical Guide for Ministering to Grievers (Roslyn A. Karaban, an eBook)
Dad's Last Visit (Pat Jordan, AARP, 2006, posted on Alex Belth's Bronx Banter). He spent his life pretending to be someone he wasn't. Now he wanted me to know the real deal.
Darcy at Her Days’ End :A beloved dog afflicted with the disease of old age brings her owner face to face with responsibility in its purest form (Verlyn Klinkenborg, NYTimes, 12-18-09)
The Death Penalty: Righteous Anger or Murderous Revenge?. A Conversation with Thomas Cahill, David R. Dow and Robert K. Elder. Moderated by Jill Patterson (posted on Creative Nonfiction)
The Depressed Child
‘Everyone Welcome’—Even Now (Chris Buice, The Daily Beast, 1-9-09). After a senseless act of violence in our church, we did not give in to anger. We sought a better way.
A Facebook story: A mother's joy and a family's sorrow. Ian Shapira, Washington Post, has edited and annotated Shana Greatman Swers Facebook page to tell her story from pre-baby date nights to a medical odyssey that turned the ecstasy of childbirth into a struggle for life.
Families of Military Suicides Seek White House Condolences (James DAO, NY Times, 11-25-09, on pressure to change a hurtful policy)
Farrah Fawcett's Long Goodbye (Jim Rutenberg, NY Times, 5-27-11). Dying of cancer, she authorized a documentary of her final days. "Ms. Fawcett had intended the film to address shortcomings she saw in American cancer treatment and to present it in art-house style....After [Ryan] O’Neal and NBC gained full control of the documentary, the film took on the feel of network celebrity fodder — at once more glossy and more morbid....Many scenes addressing the American medical system were scrapped or truncated." Her final story became the object of a lengthy battle.
The Good Short Life by Dudley Clendinen (NYTimes, 7-9-11). Living with Lou Gehrig's disease (ALS) is about life, when you know there's not much left. And Writer Dudley Clendinen has chosen not to go to the great expense and limited potential of extending his life--but to enjoy what he can of it, while he can. He learned he had the disease when he was 66, and Maryland Morning, an NPR news station, has been airing conversations with him about how he and his daughter Whitney have been dealing with the disease and its implications. Listen to the podcasts
The Guardians: An Elegy by Sarah Manguso. “A bittersweet elegy to a friend who ‘eloped’ from a locked psychiatric ward . . . [Manguso] explores the extent to which we are our friends’ guardians and, in outliving them, the guardians of their memory . . . Manguso’s writing manages, in carefully honed bursts of pointed, poetic observation, to transcend the darkness and turn it into something beautiful. The results are also deeply instructive, not in the manner we’ve come to fatuously call “self-help” but in the way that good literature expands and illuminates our realm of experience.” —Heller McAlpin, Barnes and Noble Review
How the mother of a slain 9-year-old sank into despair, then sought justice (Neely Tucker, Washington Post 1-20-10, part 1. Slow-loading. Part 2: Carol Smith fought for justice after daughter Erika's murder in Silver Spring
How to Die by Joe Klein, reads the cover of Time Magazine (June 11, 2012). Inside the story is called "The Long Goodbye." Klein writes about the dramatic improvement in his parents' care when they were moved to a facility with no incentives for unnecessary interventions. "For five months, I was my parents' death panel. And where the costly chaos of Medicare failed, a team of salaried doctors and nurses offered a better way."
How to Die: Safeguards for Life-Ending Decisions (by James Leonard Park). Read this book free online. He defines terms for the right to die (e.g., distinguishes between "irrational suicide" and "voluntary death") and writes about protecting patients from greedy relatives, from family pressure to die, and from health-care administrators who must save money, and other safeguards. Very informative and in useful linked format.
If You Have Dementia, Can You Hasten Death As You Wished? (Robin Marantz Henig, All Things Considered, NPR, 2-10-15). Choosing an endgame is all but impossible if you're headed toward dementia and you wait too long. Part of what happens in a dementing illness is that the essential nature of the individual shifts. Listen or read transcript.
In death, a promise for the future. As her world diminished, Elizabeth Uyehara signed her body over to researchers to help unravel the mystery of Lou Gehrig's disease. (Thomas Curwen, Los Angeles Times, 8-28-10, on the course of Uyehara's ALS and on what happens when organs are donated for science)
In Romania, bribery is a health problem (Dan Bilefsky, NY Times, 3-8-09, from a story in International Herald Tribune) Medical Care in Romania Comes at an Extra Cost
Is Your Patient a Victim of Human Trafficking? (Amy Wasdin, The Doctors Company) Human trafficking is on the rise in every state throughout the nation. The National Human Trafficking Hotline statistics for 2017 include 8,524 cases reported and 26,557 calls received. This crime occurs when a trafficker uses force, fraud, or coercion to make an individual perform labor or sexual acts against his or her will. If you suspect that a patient is a victim of human trafficking, contact the National Human Trafficking Hotline (Call 1-888-373-7888, TTY: 711, Text: 233733) If you or someone you know is a victim of human trafficking, call now.
KOTA blog (poems of grief, Knowing Ourselves Through Art)
Let's talk about dying (Lillian B. Rubin, Salon.com, 12-27-12). "At 88 and ailing, I refuse to live at any cost. I only hope that when the time comes, I'll have the courage to act. ... At 88-going-on-89 and not in great health, what’s cowardly about my deciding to turn out the lights before putting my family through the same pain they’ve already lived through with their father and grandfather? What’s courageous about spending our children’s inheritance just so we can live one more month, one more year? Is it courage or cowardice to insist on staying alive at enormous social cost – 27.4 percent of the Medicare budget spent in the last year of life – while so many children in our nation go hungry and without medical care?"
Lives Cut Short by Depression (Daniel Ofri, Well, NY Times 6-9-11)
'Making Toast': Simple Gestures for Moving On, National Public Radio story and review of Making Toast by Roger Rosenblatt, which E.L. Doctorow describes thus: "A painfully beautiful memoir telling how grandparents are made over into parents, how people die out of order, how time goes backwards. Written with such restraint as to be both heartbreaking and instructive."
The Mercy Papers: A Memoir of Three Weeks by Robin Romm (a young woman's raw unflinching account of losing her mother to cancer--with no sugar coating, as one reviewer puts it)
Months to Live, Palliative Care Doctor Fought for Life (Anemona Hartocollis, NYTimes, 4-3-10). Desiree Pardi the palliative care doctor who believed in a peaceful death, chose at the end of her own life to endure a lot, even though she knew deep inside "this was not fixable," because she wasn't ready to let go.
Moving Away From Death Panels: Health Reform for the Way We Die (Ira Byock, The Atlantic, 3-6-12). There is surprisingly little disagreement about what constitutes good care at the end of life, but we still can't seem to fix any of our problems. It's time for conservatives and progressives to declare a truce before we lose opportunities for health reform to improve the way Americans are cared for and die.
Murder-Suicide: A Review of the Recent Literature (Scott Eliason, Journal of the American Academy of Psychiatry and the Law Online Sept. 2009)
Music for Funerals and Memorial Services. This could be a healing part of the process of burying the dead. Here are links to samples of selections that may help you remember the good times, and mourn the end of the life.
National Violent Death Reporting System (NVDRS) (CDC) The National Violent Death Reporting System (NVDRS) links information about the “who, when, where, and how” from data on violent deaths and provides insights about “why” they occurred.
One Punch Homicide (Steve Kokette's video about how often one punch can kill a person and surprisingly often does. How much would it reduce domestic violence if people were taught in schools that it could be disastrous to hit other people?
Out of This World (Pulse: Voices from the heart of medicine). Fourth-year medical student Katelyn Mohrbacher on the family's and medical staff's experience with an eighty-year-old man in a persistent coma.
Sick and Tired (Paul Rousseau, in Pulse: Voices from the heart of medicine). A mother being kept alive by transfusions is sick of them and must decide whether to continue for the sake of her daughter.
The Still Point of the Turning World by Emily Rapp. This luminous memoir about mothering a dying child, Ronan, from his diagnosis with Tay-Sachs disease, a degenerative condition with no cure is also about "the loving process of letting go while holding on for dear life." Read Sarah Manguso's review, Requiem (NY Times, 3-15-13) and listen to Terry Gross's interview with the author (Fresh Air, NPR, 3-18-13).
Terminally Ill California Mom Speaks Out Against Assisted Suicide (Stephanie O'Neill, NPR: All Things Considered, 5-20-15)
Resources for when terminal or life-threatening illness requires decisions about what individuals, families, and professional caregivers should do
• Five Wishes lets your family and doctors know:
---Who you want to make health care decisions for you when you can't make them.
---The kind of medical treatment you want or don't want.
---How comfortable you want to be.
---How you want people to treat you.
---What you want your loved ones to know.
• What an End-of-Life Adviser Could Have Told Me (Jane Gross, The New Old Age, NY Times, 12-15-08). "If only I’d had the 800 number for Compassion & Choices in the last difficult months of my mother’s life."'
• Compassion and Choices (supports, educates and advocates for choice and care at the end of life -- improving pain and palliative care, enforcing living wills and advance directives, and legalizing aid in dying). See Answers to common end-of-life questions (Compassion & Choices, scroll down)
• Where You Live May Determine How You Die. Oregon Leads the Way. (JoNel Aleccia, KHN, 3-15-17) Americans who want to ensure they have a say in how they die should examine the lessons of Oregon, a new analysis suggests. Seriously ill people in that state are more likely to have their end-of-life wishes honored — including fewer intensive-care hospitalizations and more home hospice enrollments — than those living in neighboring Washington state or the rest of the country. Across the U.S., there’s been a push to promote ways to indicate end-of-life treatment preferences, including advance directives, which provide guidance for future care, and Physician Orders for Life-Sustaining Treatment, or POLST, portable medical orders authorizing current care. Twenty-two states now have POLST programs and others are working on or considering them...But the researchers warned that, while POLST efforts are important, simply filling out the forms is not enough. “We were highlighting that there’s no simple answer,” Tolle said. “You can’t just do one thing and think that you will change the culture of end-of-life care. It is a whole lot of work.” ...a focus on single interventions ignores the complexity of end-of-life decisions....“The level of care you receive near the end of life depends more on the state you live in and the systems they have in place than your actual wishes,”
• The enemy is not death. The enemy is needless suffering. (oncologist James C. Salwitz, Kevin MD, 5-24-16) The final part of life is about being alive, not about death. Only by seizing those precious moments, deciding our own fate, can we hope for quality, comfort, and dignity.
• At the End of Life, More Americans Are Dying at Home (Gina Kolata, NY Times, 12-11-19) In a historic reversal, fewer patients are dying in hospitals. But experts warn that many families are unprepared to care for seriously ill relatives at home. And hospice care, usually delivered at home, is more available than ever before. But many terminally ill patients wind up in the care of family members who may be wholly unprepared for the task.
• No easy end-of-life decisions, even for a family of doctors (Luanne Rife | The Roanoke Times, 9-11-17) "They recognize that they were blessed with a large, involved family that could balance the workload of caring for a terminally ill parent, the wealth to afford trained caregivers to ease the strain, and, for many of the siblings, the medical training that allowed them to understand and manage the disease process. Still, the shroud of exhaustion settled upon them, and the siblings differed on when to cease medical interventions with their father. Son Dr. Bob Keeley: “It’s like riding the crest of a wave. You either catch it or you don’t, and everything had to be perfect for him to get better.” The decision to turn to hospice was easier with their mother, but it didn’t ease the angst of turning off her pacemaker and withholding food, water and medication or of agreeing on what was needed to ease her pain."
• When Prolonging Death Seems Worse Than Death (Fresh Air from WHYY, 10-11-12). Terry Gross interview Judith Schwarz, who helps dying patients and their families decide whether and how to hasten the end. Compassion & Choices is an organization that helps terminally ill patients and their families make informed and thoughtful end-of-life decisions. Schwartz discusses the practicalities of various choices.
• Silver Anniversary. Amy Schapiro's moving account of the three things Millicent Fenwick wanted to do before she died and how she did them.
• Choosing Wisely, an initiative of the ABIM Foundation to help providers and patients engage in conversations to reduce overuse of tests and procedures, and support patients in their efforts to make smart and effective care choices. See Choosing Wisely lists (resources for consumers and providers to engage in conversations about the overuse of medical tests and procedures that provide little benefit and in some cases harm):
• In Plain Language: A Glossary Of Terms For End-Of-Life Planning (New Hampshire Public Radio, 8-28-13)
• Knocking on Heaven's Door: The Path to a Better Way of Death by Katy Butler. An expertly reported memoir and exposé of modern medicine that leads the way to more humane, less invasive end-of-life care—based on Butler’s acclaimed NY Times Magazine piece What Broke My Father’s Heart. Against a backdrop of familial love, wrenching moral choices, and redemption, Butler celebrates the inventors of the 1950s who cobbled together lifesaving machines like the pacemaker—and she exposes the tangled marriage of technology, medicine, and commerce that gave us a modern way of death: more painful, expensive, and prolonged than ever before.
• Oregon Emphasizes Choices at the End of Life (Kristian Foden-Vencil, Shots, NPR Health News, 3-8-12) It turns out Americans facing death want something they also want in life: choice. A two-page form created in Oregon is providing insight into how people want to be cared for at the end of their lives. And the so-called POLST form — short for Physician Orders for Life-Sustaining Treatment — offers far more detailed options than a simple "do not resuscitate" directive does.
• An Impossible Choice: Deciding When a Life Is No Longer Worth Living ( Joanne Faryon, inewsource, ) An award-winning article by an investigative reporter -- a rare look inside a subacute unit in Coronado, Calif., one of hundreds statewide that house more than 4000 life-support patients. Berger award description: Their groundbreaking story looks at “vent farms,” the 125 care facilities across the state of California housing 4,000 patients being kept alive by machine. This number has doubled in the past decade due to advances in medicine. Many of these people appear to have no cognitive ability. All would perish if the machines were turned off. The number of people kept alive by artificial means has nearly doubled in the past decade. The average age of people who live in subacute care is 56. Subacute made so much money it subsidized the hospital’s emergency room and surgical unit. One week on life support can cost more than an entire year of health care for the average person enrolled in Medi-Cal.
• PolitiFact's Lie of the Year: 'Death panels' (Angie Drobnic Holan, PolitiFact, 12-18-09) How two words generated intense heat in the national debate over health care.
• A Family Says 'Enough' (Paula Span, Health, NY Times, 9-12-13). Before you agree to that pacemaker, know how hard it might be to undo. Deactivating an implanted cardiac device is neither euthanasia nor assisted suicide, and a doctor who feels morally unable to do it should find a colleague willing to help. The end of Katy Butler's story.
• The Conversation Project (important discussions families need to have later in life)
• The Conversation: A Family's Private Decision (ABC News)
• The Best Possible Day (Atul Gawande, NY Times, 10-5-14) If you are dying, how do you want to spend your time? People who are seriously ill might have different needs and expectations than family members predict, "Hospice’s aim, at least in theory,... is to give people their best possible day, however they might define it under the circumstances." Asking the right questions might help us figure out how to make such the best possible day happen.
• Being Mortal: Medicine and What Matters in the End by Atul Gawande. “A deeply affecting, urgently important book—one not just about dying and the limits of medicine but about living to the last with autonomy, dignity, and joy.” —Katherine Boo
• Our unrealistic views of death through a doctor's eyes (Craig Bowron, Washington Post, 2-17-12) When 'we did all we could' is the worst kind of medicine." In elderly patients with a web of medical conditions, the potential complications of any therapy are often large and the benefits small....At a certain stage of life, aggressive medical treatment can become sanctioned torture.
• Too much intervention makes patients sicker (Aseem Malhotra, The Guardian, 7-19-14) A culture of over-investigation and over-treatment is now one of the greatest threats to western health...Even respected medical guideline panels appear to be influenced by corporate interests....a campaign known as Choosing Wisely is gaining momentum in the US. Part of the campaign involves communicating with patients that more expensive medicine doesn't necessarily mean better medicine. And this is reflected by the evidence that four fifths of new drugs are later found to be copies of old ones – not surprising perhaps when pharmaceutical companies spend twice as much on marketing new medications as on research.... Sometimes "doing nothing is the best approach. Questions such as: do I really need this test or procedure? What are the risks? Are there simpler safer options? What happens if I do nothing? And even how much does it cost?"
• Is Dying at Home Overrated? (Richard Leiter, M.D., NY Times, 9-3-19) A palliative care physician struggles with the complex realities of dying at home, and the unintended consequences of making it a societal priority. "Unless a family has the significant resources necessary to hire aides or nurses, informal caregivers become responsible for nearly everything — from feeding to bathing to toileting. These tasks often get harder as the dying person weakens....And the length of time a patient spends in hospice care is difficult to predict, sometimes requiring caregivers to take significant time away from work or other family members. Complicating matters, I frequently detect ambivalence in patients who tell me they want to die at home. "
• The case for slow medicine (Richard Smith, BMJ, 12-17-12) "The characteristics of health systems are complexity, uncertainty, opacity, poor measurement, variability in decision making, asymmetry of information, conflict of interest, and corruption....It is time, said Domenighetti, to open up the black box of healthcare."
• When Did We Get So Old? (Michele Willens, Sunday Review, NY Times, 8-30-14) For boomers, the “what, me, get old?” generation, denial of aging is an important and difficult issue to tackle. “I had almost always been the youngest through most of my career,” says the former media executive. “Now I was the oldest, and it caused great discomfort.”
• The Right to Know, Then to Say ‘No’ (Jane Gross, New Old Age, NY Times 10-21-08)
• Letting Go (Atul Gawande, New Yorker, 8-2-10). What should medicine do when it can't save your life? Modern medicine is good at staving off death with aggressive interventions—and bad at knowing when to focus, instead, on improving the days that terminal patients have left.
*** How to Talk End-of-Life Care with a Dying Patient (video, Atul Gawande speaking at New Yorker festival, 10-12-10) An expert tells him what to ask patients about. Do they know their prognosis? What are their fears of what is to come? What are their goals--what would they like to do as time runs short? What tradeoffs are they willing to make? How much suffering are they willing to go through for the sake of added time? There is no checklist to mark off--instead, you need a series of conversations.
• Finding Liberation in Two Deaths (Jamie Brickhouse, The End, Opinionator, NY Times, 4-25-15, from his memoir, Dangerous When Wet) The last time I wished my mother dead, I meant it.... she was in what I now know were the final stages of Lewy body dementia." As one reviewer calls it, "a dark journey studded with gems of hilarity."
• Re-Examining End-Of-Life Care (Laura Knoy with guestsPatrick Clary – doctor at the New Hampshire Palliative Care Service in Portsmouth; John Loughnane – medical director at Commonwealth Community Care in Boston, on New Hampshire Public Radio 8-28-13)
• Planning For The End: When Courts Have To Make Medical Decisions (Todd Bookman, New Hampshire Public Radio 8-28-13)
• Planning For The End: Miraculous Recovery, Little Regret (Todd Bookman, NHPR 8-28-13)
• A Graceful Exit: Taking Charge at the End of Life (Claudia Rowe, Yes! magazine, 9-19-12) How can we break the silence about what happens when we’re dying? The best thing to come out of Compassion & Choices’ campaign (informed choices about how we die) may be a peace of mind that allows us to soldier on, knowing we can control the manner of our death, even if we never choose to exercise that power.
• Let's talk about dying (Peter Saul's TED talk, Nov 2011) We can't control if we'll die, but we can “occupy death,” says Dr. Peter Saul, an Australian intensive care doctor (intensivist) who is passionate about improving the ways we die. He calls on us to make clear our preferences for end of life care -- and suggests two questions for starting the conversation.
• The Art of Dying: A Mind-Body Transformation by Danielle Schroeder (ADEC)
• When to Refer to Hospice by Lisa Wayman (ADEC)
• Compassion & Choices: Choice and Care at the End of Life, including the blog entry A dying patient is not a battlefield (by Theresa Brown)
• A dying patient is not a battlefield (Theresa Brown, CNN Opinion, 8-31-10) Brown is author of Critical Care: A New Nurse Faces Death, Life, and Everything in Between
• Quiet deaths don't come easy (Melissa Healy, Los Angeles Times, 2-5-12) A study finds that Medicare patients near death are increasingly choosing hospice or palliative care over heroic measures in their last days — but that many go through futile hospitalizations and treatments first. "Doctors often fail to be clear about a patient's poor prognosis and to plainly state the likely consequences of continuing painful, aggressive care." If a patient's wish to avoid aggressive treatment is clear, "you need to prevent him from getting into that cycle of acute care," gerontologist Julie Bynum said, "because once they get into the hospital, it's really hard to get them out."
• More on end-of-life care and decision-making.
End of life decision-making in the critical care unit. "For several months, Globe reporter Lisa Priest and photographer Moe Doiron documented the journeys of four patients, each hooked to a ventilator, each grappling with a debilitating illness or condition. Their stories, while deeply personal, underline the scope of the challenges facing our strained health-care system: challenges that are medical, ethical, and even economic. How much treatment is too much treatment? How and where do we draw the line? And how do we distinguish between what we can do, and what we should do?" Stories from, and related to, the Canadian series from the Globe & Mail:
• Critical care: Spending 10 weeks with patients facing death (Lisa Priest, Globe and Mail 11-26-11)
• Why are we afraid of talking about death? (Erin Anderssen 11-27-11)
• Navigating life and death in 21st-century critical care (Globe & Mail). Watch video of four patients.
• ‘Have you ever seen someone die?’ A doctor recounts her angst at shutting off life support for a dying patient. (Amy Cowan, Washington Post, 8-4-19)
• A B.C. family's secret: How they helped their parents die
• ‘Good death’ in Swiss clinic held up as model (Mark Hume, 12-7-11)
• Tale of death that took ‘painful eternity’ opens right-to-die case (11-14-11)
• Dying elderly forced into to hospital against their will, report into end of life care finds (Sarah Knapton, The Telegraph, UK,, 5-9-16) The national review of 40 clinical commissioning groups (CCGs) across England and Wales found that doctors are still refusing to accept that some elderly patients just want to die and are carrying on treatment regardless....many doctors and nurses were still uncomfortable talking about death and dying with patients, and were confused about when end of life care should begin. Charities warned that patients were being denied a ‘peaceful and dignified’ end to their life and said health providers must ‘up their game.’ Said one advocate: "This report lays bare some of the startling variation that is experienced in end of life care across the country."
• Court hears details of woman’s suffering with ALS in right-to-die case (Mark Hume 11-14-11)
• Right-to-die laws don’t lead to rise in assisted deaths, experts say (Mark Hume 12-5-11)
• The end of life: a just and reasonable accommodation (Gary Mason, 9-9-10)
• By the numbers: The costs and counts in critical care (11-25-11)
• When it’s time to die: Home is where the heart is
Terminology is a problem in discussing this subject. What supporters call "aid-in-dying" or "medical aid in dying" or "physician aid in dying" or "death with dignity," opponents call "assisted suicide" or "physician-assisted suicide," emotionally freighted phrases that cannot capture the choices individuals and families face in the presence of prolonged illness.
"Various forms of medical assisted dying have been approved in various states and nations. Each law has its own limits, rules and guidelines. All but Switzerland forbid foreigners this type of help to die. Only Canada, the Netherlands and Belgium permit chosen death via doctor lethal injection; all others are by doctor prescription which the patient drinks. A policy statement in England gives clear guidance when helping another to die would not be prosecuted, but there is no law." ~ Rosalind Kipping on assisted dying law reforms, Compassion and Choices, April 2019
• Don’t let polarizing politics derail how we talk about death (Ellen Goodman, WaPo editorial, 6-6-16) "...in Oregon, the first state to pass a “Death With Dignity Act,” only one out of every 500 deaths comes from doctor-ordered medication. So why are we spending so much political energy to help the one rather than the 499? ...Too many of us do not die in the way we would choose. Too many survivors are left guilty, depressed and bereft. Rather than just offering a few patients the 'comfort and dignity' of lethal medication, we need to assure everyone the comfort and dignity of a humane, caring ending."
• Clinical Criteria for Physician Aid in Dying. These clinical aid-in-dying guidelines were published in the Journal of Palliative Medicine in 2016. “The fear of being sued or prosecuted is still there.”
• Getting a Prescription to Die Remains Tricky Even as Aid-in-Dying Bills Gain Momentum (Katheryn Houghton, KHN, 3-30-21) in 2009, the Montana Supreme Court had, in theory, cracked open the door to sanctioned medically assisted death. The court ruled physicians could use a dying patient’s consent as a defense if charged with homicide for prescribing life-ending medication. But the ruling sidestepped whether terminally ill patients have a constitutional right to that aid. Whether that case made aid in dying legal in Montana has been debated ever since. “There is just no right to medical aid in dying in Montana, at least no right a patient can rely on, like in the other states,” said former state Supreme Court Justice Jim Nelson. “Every time a physician does it, the physician rolls the dice.”
• What is physician aid in dying Michael J. Strauss and Terri L Hill, Marylanders for End-of-Life Options, Maryland State Medical Society, Jan 2019) A clear explanation and defense.
• What is Medical Assistance in Dying? (MAiD) (FAQs, Ottawa Hospital, Canada) Medical Assistance in Dying (MAiD) is a procedure in which a patient is given medications to intentionally and safely end their life. Federal law Bill C-14 governs who is eligible for MAiD, and the processes under which a patient can receive it. Click on FAQs to get answers to frequent questions.
• In the face of death: How a Seattle man celebrated his life, then ended it (Gene Johnson, AP, in Seattle Times, 8-25-19) The day he picked to die, Robert Fuller had the party of a lifetime. He was one of about 1,200 people who have used Washington’s Death with Dignity Act to end their lives in the decade since it became law. A human yet balanced story.
• Despite Sweeping Aid-In-Dying Law, Few Will Have That Option (Robin Marantz Henig, Shots, NPR, 10-7-15)
• At 94, she was ready to die by fasting. Her daughter filmed it. (Tara Bahrampour, WaPo, 11-3-19) After Rosemary Bowen, 94, incurred a spine injury, she decided to terminate her life by fasting and asked her daughter, Mary Beth, to document her final days: 'Leaving life on my own terms.'
• Dying Is Now a Choice (Breena Kerr, Hawaii Business, 11-6-18) Hawaii’s Medical Aid in Dying law takes effect Jan. 1, but some doctors are among the local professionals who are not ready to deal with the law. A good discussion of the issues raised by legalizing physician-assisted death. See also Alyssa Thurston's Physician-Assisted Death: A Selected Annotated Bibliography.
• AMA contradicts itself by passing resolution saying medical aid in dying is unethical, but ethical doctors can practice it (News, Compassion and Choices, 6-10-19) Opposition to practice at odds with leading AMA member societies that provide care for dying patients. “Leading AMA member societies that provide care for dying patients have adopted value-neutral terminology to describe medical aid in dying,” said Dr. Grube. “Yet, sadly the AMA ignores this fact and clings to ‘physician-assisted suicide’ despite its Council on Ethical and Judicial Affairs’ admitting the term has ‘negative connotations.’”
• ‘No One Is Ever Really Ready’: Aid-In-Dying Patient Chooses His Last Day (JoNel Aleccia, KHN, 8-14-18) Last November, doctors told McQ he had six months or less to live. The choice, he said, became not death over a healthy life, but a “certain outcome” now over a prolonged, painful — and “unknowable” — end. “I’m not wanting to die,” he said. “I’m very much alive, yet I’m suffering. And I would rather have it not be a surprise.” More than 3,000 people in the U.S. have chosen such deaths since Oregon’s law was enacted in 1997, according to state reports. Even as similar statutes have expanded to more venues — including, this year, Hawaii — it has remained controversial. Data from Oregon show that the median time from first request to death is 48 days, or about seven weeks. But it has ranged from two weeks to more than 2.7 years, records show. Neurodegenerative diseases like ALS are particularly difficult, said Dr. Lonny Shavelson, a Berkeley, Calif., physician who has supervised nearly 90 aid-in-dying deaths in that state and advised more than 600 patients since 2016. “It’s really tough to be alive and then not be alive because of your choice,” she said. “If he had his wish, he would have died in his sleep.”
• It’s not pain but ‘existential distress’ that leads people to assisted suicide, study suggests (Ariana Eunjung Cha, Washington Post, 5-26-17) A study released "in the New England Journal of Medicine suggests the answers may be surprising: The reasons patients gave for wanting to end their lives had more to do with psychological suffering than physical suffering....“It's what I call existential distress,” explained researcher Madeline Li, an associate professor at University of Toronto. “Their quality of life is not what they want. They are mostly educated and affluent — people who are used to being successful and in control of their lives, and it’s how they want their death to be.” "One of the main things these patients bring up has to do with 'autonomy.' It's a broad philosophical concept that has to do with being able to make your own decisions, not being dependent on others, wanting to be able to enjoy the things you enjoy and wanting dignity." “'For the terminally ill like Brittany, it's not a choice between not living and dying. The fact that she would die is a given. It was about the manner in which a person will die. She was literally been tortured to death. What she wanted was having the option to pass away gently,' he said."
• Another Word for It (I highly recommend this essay by Alison Lester, about her father's death in 2010). Lester writes of this essay (in a comment about a RadioLab podcast, The Bitter End) "My father owned the way he wanted to die in a way that had us all in awe." Lester's essay "covers what it was about him that made it possible for him to decide how to end his life and see that decision through, and what it required from us as a family. It is my fervent hope that this account of his death can help people facing similar situations."
• Medical Assistance in Dying: Our Lessons Learned (Kieran L. Quinn and Allan S. Detsky, JAMA Internal Medicine, Sept. 2017. Abstract) 'On February 6, 2015, the Supreme Court of Canada struck down the prohibition of physician-assisted dying and ordered the federal parliament to enact legislation to allow it within 12 months.... This act made it legal for physicians to provide assistance in dying to individuals in an advanced state of irreversible decline whose natural death was “reasonably foreseeable.” Canada’s health care system rapidly developed protocols for Medical Assistance in Dying, which became known by its acronym, MAID.'
• She’s Accused of Texting Him to Suicide. Is That Enough to Convict? (Jess Bidgood, NY Times, 6-6-17) To what extent can one person be responsible — and criminally liable — for the suicide of another person?
• It’s Time to Reinvigorate the Constitutional Claim for Physician Assistance in Dying (Norman L. Cantor, Bill of Health, Harvard Law, 4-30-18) A rational approach to the subject.
• Online Talk, Suicides and a Thorny Court Case (Monica Davey, NY times, 5-13-10) 'Groups that work to prevent suicide compare suicide chat rooms to “pro-ana” sites, Internet sites that portray anorexia as a lifestyle as opposed to a disease. Anti-suicide advocates say that there has been more than one instance recently where a person killed himself on a Webcam as others watched. Papyrus, a charity in Britain that works to stop young people from killing themselves, says it has tracked 39 cases in that country alone where young people committed suicide after visits to “pro-suicide” chat rooms.'
• Bullying, Suicide, Punishment (John Schwartz, NY times, 10-2-10) What should the punishment be for acts like cyberbullying and online humiliation? “Those students who are face-to-face bullied, and/or cyberbullied, face increased risk for depression, PTSD, and suicidal attempts and ideation,” Professor Blumenfeld said. For all the talk of cyberbullying, the state statute regarding that particular crime seems ill suited to Tyler Clementi’s suicide.
• When my time comes, I want the option of an assisted death (Archbishop Desmond Tutu, WaPo editorial, 10-6-16) "I have been fortunate to have long spent my time working for dignity for the living. Now, with my life closer to its end than its beginning, I wish to help give people dignity in dying. Dying people should have the right to choose how and when they leave Mother Earth. I believe that, alongside the wonderful palliative care that exists, their choices should include a dignified assisted death."
• Freedom to kill, permission to die (Kathleen Parker, WaPo, 6-10-16) "I’d like to have the means to end my own life on my own terms when my body has clearly called it quits. I’m just not sure I like the idea of the state and doctors lending a hand."
• Lawsuit Seeks to Legalize Doctor-Assisted Suicide for Terminally Ill Patients in New York (Anemona Hartocollis, NY Times, 2-3-15) A group of doctors and terminally ill patients are asking New York courts to declare that doctor-assisted suicide is legal and not covered by the state’s prohibition on helping people take their own lives. Assisted suicide — advocates prefer the term “aid in dying” — is legal in only a few states, including Montana, Washington, New Mexico, Oregon and Vermont. The author lays out the arguments for and against.
• Cancer Patients and Doctors Struggle to Predict Survival (Amanda Aronczyk, Shots, NPR, 2-10-15) "...prognoses are almost never that clear-cut, despite the fact that patients need to make big decisions based on those numbers. Should she quit her job? Take that dream cruise? Write a living will? Physicians play a part in the confusion, too. Doctors consistently overestimate how long a patient has to live... And if patients think a doctor is doing a good job of communicating with them, they're more likely to be erroneously optimistic about a cure. That can keep patients from fulfilling key goals before they die."...Sometimes a family's desire to "think positive" can make people reluctant to bring up death or dying. "And the end result is that the patient is left alone with his fear of dying and he can't speak to anyone about it." Levin also wants the doctors to make it clear to their patients that they will not abandon them if the worst-case scenario comes to pass.
• Sharlotte Hydorn of GLADD exit bags dies at 94 (Faye Girsh, ERGO, Assisted Dying blog, 12-13-13) "...she did so much to give people around the world the comfort and reassurance of a peaceful death by making and distributing her GLADD exit bags. GLADD = Good Life and Dignified Death." A story in which it's not always clear who the good guys are.
• A Candid Conversation with Public Radio's Diane Rehm (Part 1). Public radio host Diane Rehm‘s new book “On My Own” details her husband’s battle with Parkinson’s Disease, and her decision to support “right to choose to die,” as she puts it, after John Rehm was denied assisted suicide and starved himself to death. In the first of a two-part interview, Here & Now’s Robin Young speaks with Rehm about her often fraught marriage and her husband’s illness. Part 2, an excerpt from Rehm's book On My OwnWhen John Rehm could not legally receive medically aid to die comfortably (his state didn't allow it), he followed his doctor’s suggestion and starved himself to death. The experience set Rehm on a path to better understanding medically assisted death, which is only legal in a handful of states.
• The terminal confusion of Dignity in Dying (Jenny McCartney, The Spectator, UK, 7-5-14) The closer you look at the campaign in the UK to legalize assisted dying, the less reassuring it all becomes. What is this clause of ‘six months or less’ to live? As most doctors know, such diagnoses can be deeply unreliable. And by what logic do we attach an ‘assisted death’ to a six-month prognosis but not, say, that of a year?... If you were around in the days when the US series M*A*S*H was a regular feature on British television, its sing-song theme is probably still lodged in your memory: ‘Suicide is painless/ It brings on many changes/ And I can take or leave it if I please’. However catchy, it is broadly untrue. The human life force is stubborn, and it takes a visceral struggle to extinguish it. Suicide, as commonly practised by amateurs, is not painless: it is frequently agonising, complicated, botched and has ample potential to leave one still alive but with a cruel legacy of permanently damaged health to add to one’s existing woes.
• The right to regret by Kathleen Parker. "Freedom to kill, permission to die." I’d like to have the means to end my own life on my own terms when my body has clearly called it quits. I’m just not sure I like the idea of the state and doctors lending a hand....Will the right to die ultimately be considered as just another facet of “health care,” as abortion is? And when do six months become a year? A novelist would propose that it’s just a matter of time before a glut of elderly people in poor health, who are by definition 'terminal,'; so overwhelm the health-care system that 'opting out' becomes an expectation rather than a choice."
• Assisted suicide compromise (Arthur Caplan and Wesley J. Smith, USA Today, 11-13-14). As matters stand, the law requires patients considering hospice to make an awful choice. In exchange for insurance paying for hospice care — which focuses on pain control, symptom management and social support — the patient must forgo all other forms of treatment. As Ira Byock says, "A third of all U.S. hospice patients die within a week of being admitted. Thus, because of the 'terrible choice' Medicare rules impose, hospice is not doing end-of-life care as much as brink-of-death care."
• My right to death with dignity at 29 (Brittany Maynard, CNN Opinion, 10-7-14). Note that what makes her feel better is knowing she has a choice.
• Physician-Assisted Dying: Compassion or a Slippery Slope? (Roxanne Nelson, Medscape, 8-13-15) This piece draws on two reports, one from the Netherlands and one from Belgium, the first countries to legalize these practices.
• The End Is Near: Lawrence Egbert has replaced Jack Kevorkian as the face of assisted suicide in America. (Manuel Roig-Franzia, Wash Post Magazine, 1-19-12) He has helped about 300 people die but, he says, "I never get used to it." A thoughtful piece, which explains death by helium, among other things.
• ‘Aid in Dying’ Movement Takes Hold in Some States Erik Eckholm, NY Times, 2-7-14) "Helping the terminally ill end their lives, condemned for decades as immoral, is gaining traction. Banned everywhere but Oregon until 2008, it is now legal in five states....About 3,000 patients a year, from every state, contact the advocacy group Compassion & Choices for advice on legal ways to reduce end-of-life suffering and perhaps hasten their deaths."
• Politics: Democrats Shouldn’t Endorse Suicide (Dr. Ira Byock, Politico, 6-7-15) "For years it seemed like we were on a path to a future in which every person could be assured of comfort and having their dignity honored through the very end of life. Unfortunately, countervailing forces, chief among them the profit motive, supervened. Instead of transforming mainstream health care to become genuinely person-centered, hospice, palliative medicine and geriatrics are largely being absorbed within corporatized medicine." "Despite having the resources and technical know-how to reliably care well for people through the end of life, a persistent public health crisis surrounds the way we die." "An authentic, socially sound solution to this crisis is readily achievable if we can muster the will to demand it. A tectonic shift in the way healthcare is paid for—from financially rewarding quantity of services to measured quality of care delivered—has the potential to improve care for seriously ill people in transformative ways."
• Hoping To Live, These Doctors Want A Choice In How They Die (Anna Gorman, Kaiser Health News, 3-30-15) The American Medical Association still says that “physician-assisted suicide is fundamentally incompatible with the physician’s role as healer.” ... But a recent survey of 21,000 doctors in the U.S. and Europe shows views may be shifting. According to Medscape, the organization that did the survey, 54 percent of American doctors support assisted suicide, up from 46 percent four years earlier." One doctor's story.
• Contemplating Brittany Maynard's Final Choice (Nancy Shute, Shots, NPR, 11-3-14) "...a study published last year in the New England Journal of Medicine found that just 16 percent of 114 terminal cancer patients who had asked about assisted suicide at the Seattle Cancer Care Alliance eventually decided to kill themselves....The most common reason people gave for considering assisted suicide was fear of a loss of autonomy."
• Quebec's 'dying with dignity' law would set new standards (Janet Davison, CBS News, 2-17-14) Quebec's proposed Bill 52 follows Europe's lead, legalizing both physician-assisted suicide and voluntary euthanasia for those experiencing "unbearable suffering," but who may not be within months of dying, which is the U.S. criterion. Related story: The fight for the right to die (CBS News, 6-15-12)
• A Life-or-Death Situation (Robin Marantz Henig, NY Times magazine, 7-17-13). Behind the Cover Story: Robin Marantz Henig on Making End-of-Life Decisions (and Changing Your Mind) (Rachel Nolan's interview appeared 7-22-13)
• Assisted Suicide (American Psychological Association). Arguments for and against and what experience in Oregon and Amsterdam teaches.
• In Alzheimer’s Cases, Financial Ruin and Abuse Are Always Lurking (Paul Sullivan, NY Times, 1-30-15) A woman in good health may express clear wishes about wanting to end a prolonged dying, but once Alzheimer's takes hold, she may not have the ability to end it herself. And children don't always honor their parents' wishes. Be sure to read this article.
• Happy Endings: In Real Life, Mystery Writer Promotes Assisted Death (Elihu Blotnick, Stanford Magazine, 11-8-12). At 82, Merla Zellerbach has been reborn as a mystery writer. Her culprits always get their just deserts, but her “main concern is with the needless suffering of those who don’t know they have choices, don’t want to know for religious or other reasons, or who don’t have access to aid in dying.” She explains: “I saw my beloved father die a terrible death from pancreatic cancer, and I also saw my late husband Fred die pain-free and peacefully, with physician help. After those two experiences, I began delving into the mysteries of life and death.”
• Assisted Suicide — Murder or Mercy? by Ellen Hawley Roddick (Open Salon, 2010). "Do I believe in assisted suicide? You bet I do. And here ... is why."
• Assisted-suicide laws advance, but issue still divides Americans (gperreault, ReligionLink, 7-7-13, with extensive links to other stories and sites)
• Who’ll be in charge when we die? (Ashton Applewhite's excellent essay on the need for an advocate who will know what we want and realize that we might change our minds, on the blog, Yo, Is This Ageist? on her website on ageism, This Chair Rocks)
• New Trial Ordered for Man Who Helped a Long Island Motivational Speaker Kill Himself (Russ Buettner, NY Times, 10-3-13). The state penal code allows an assisted suicide defense in a murder case if the defendant only caused or aided another person to commit suicide “without the use of duress or deception.” Things can go terribly wrong.
• Hemlock Society (now Compassion & Choices)providing information about options for dignified death and legalized physician aid in dying
• 'The Last Good Nights'. (John West tells Diane Rehm and radio listeners why and how he assisted his parents with their suicides. He offers a first-hand account of the decision no child wants to face and explains why he followed through on his parent's desire to choose death with dignity. He also tells the story in his book The Last Goodnights: Assisting My Parents with Their Suicides Here is an excerpt (Good Morning, America)
• Tread Carefully When You Help to Die: Assisted Suicide Laws Around the World (Derek Humphrey, author of Final Exit: The Practicalities of Self-Deliverance and Assisted Suicide for the Dying (Euthanasia Research and Guidance Organization, ERGO, which publishes other books on the subject)
• Hans Kueng Considering Assisted Suicide As Parkinson's Disease Suffering Continues (Tom Heneghan, Reuters, Huff Post 10-4-13) Roman Catholicism's best known rebel theologian is considering capping a life of challenges to the Vatican with a final act of dissent--assisted suicide.
• Doctor-Assisted Suicide Is Moral Issue Dividing Americans Most (Gallup poll, 5-31-11)
• Cancer center goes public with assisted-suicide protocol (Kevin O'Reilly, American Medical News, 4-22-13)
• Getting the Freedom to Die (Roy Speckhardt, director, American Humanist Association, on HuffPost, 04/16/2013, with stories about recent cases)
• In Montana, New Controversy Over Physician-Assisted Suicide (Paula Span, NY Times, New Old Age blog, 4-15-13)
• Assisted Suicide . Wikipedia's entry distinguishes between "assisted suicide" (where one person helps another end his life) and "euthanasia" or "mercy killing" (where another person ends the life). Indicates what the laws are in various countries and U.S. states.
• Why Do Americans Balk at Euthanasia Laws? (Room for Debate, NY Times, 4-10-12) What would need to change before the U.S. would legalize physician-assisted suicide?
---Comfort and Familiarity
---Too Many Flaws in the Law (Marilyn Golden, a senior policy analyst at the Disability Rights Education and Defense Fund)
---How the Dutch Are Different (Petra M. de Jong, a pulmonologist and head of Right to Die Netherlands)
---Address Inequalities First (Patricia King, the Carmack Waterhouse professor of law, medicine, ethics and public policy at Georgetown Law)
---Skeptical of the System (Rita L. Marker, a lawyer and executive director of the Patients Rights Council)
---The Role of Religion in the U.S. (Philip Nitschke, author of The Peaceful Pill Handbook)
---A Recipe for Elder Abuse (Margaret Dore, a lawyer in Washington State and president of Choice is an Illusion, a nonprofit organization opposed to assisted suicide)
---The Power of the the Culture War (Jacob Appel, a doctor and lawyer in New York City)
• ‘My death is not my own’: the limits of legal euthanasia (The Guardian, 8-10-18) Henk Blanken knows Parkinson’s disease might one day take him past the point at which he wants to carry on. Dutch law says it is legal for a doctor to help him die when the time comes – but there’s no guarantee that will happen, particularly for people with dementia. 'An advance directive is just one factor, among many, that a doctor will consider when deciding on a euthanasia case. And even though the law says it’s legal, almost no doctors are willing to perform euthanasia on patients with severe dementia, since such patients are no longer mentally capable of making a “well-considered request” to die.'
• Paralympic gold medalist Marieke Vervoort ends her life in Belgium (AP, The Guardian, 10-23-19) Vervoort was a strong advocate of the right to choose euthanasia. She suffered unbroken pain from an incurable, degenerative spinal disease and also from epileptic seizures. A loyal Labrador named Zenn sensed an hour beforehand when a seizure would occur and would warn her.
• The Champion Who Picked a Date to Die (Andrew Keh and Lynsey Addario, NY Times, 12-5-19) Knowing she had the legal right to die helped Marieke Vervoort live her life. It propelled her to medals at the Paralympics. But she could never get away from the pain. In Vervoort's telling, the euthanasia papers allowwed her to wrest back some control of her life. She no longer feared death because she could hold it in her hands at any time. Andrew Keh and Lynsey Addario spent almost three years reporting on Marieke Vervoort as she and her parents wrestled with her decision to die by euthanasia. Read also The Personal Toll of Photographing a Story About Euthanasia (Lynsey Addario, NY Times, 12-5-19) I spent nearly three years photographing the Paralympic athlete Marieke Vervoort as she prepared to die by choice. It became one of the most emotional assignments — and friendships — of my life. Belgium, where Marieke lived, was one of just a handful of countries where euthanasia was legal for non-terminally ill patients. Marieke’s degenerative muscular disease was not terminal, but as it worked its way up her body over two decades, it left behind a trail of paralysis.
• The Hemlock Society, a right-to-die organization founded in Santa Monica, California, by Derek Humphrey, merged with and changed its name to Compassion & Choices in 2003, helping with end-of-life consultation.
• Frequently asked questions, Death with Dignity National Center
• Physician-assisted death vs. euthanasia (explanation for journalists, Association of Health Care Journalists). See also AHCJ's explanation of physician-assisted suicide
• Euthanasia and physician-assisted suicide (BBC). Types of euthanasia, arguments for and against, good deaths and the practicalities of dying, legislation, religious views
• Sir Terry Pratchett - Shaking Hands with Death (YouTube video) Sir Terry Pratchett gives 34th Richard Dimbleby Lecture from the Royal College of Physicians in London. 2010. Sir Terry Pratchett announced in 2007 that he had been diagnosed with a rare form of early-onset Alzheimer's disease. In this keynote lecture, he explores how modern society, confronted with an increasingly older population, many of whom will suffer from incurable illnesses, needs to redefine how it deals with death.
• Euthanasia and physician-assisted suicide, all sides to the issue, ReligiousTolerance.org, Ontario consultants on religious tolerance)
• A method for dying with dignity (Marcia Angell, Boston Globe, 9-29-12) This is not a matter of life versus death, but about the timing and manner of an inevitable death. We respect people’s right to self-determination when they’re healthy. That shouldn’t be denied to them when they’re dying.
• Government lawyer draws line between euthanasia and war (Marc Hume, Vancouver, Globe and Mail, 12-8-11). Read the comments, too.
• Listen on Interfaith Radio to"Bioethics and the Legacy of 'Dr. Death,' which includes interesting segments on dying with dignity (individuals having some control over when they die, particularly if they're heading toward the painful end of a terminal condition: After a segment in which Michael Schermer tells how our brains are hard-wired for "beliefs," listen to Should Doctors Hasten Death? (starts at 21 min 36 seconds), in which bioethicist Art Caplan explains the pros and cons of one of the most controversial practices in both religion and medicine. (You can listen to full segment here . A third segment is Making the Choice: Merrily's Story (begins at 33 min. 46 sec.). One important point: Knowing that they have some choice allows patients who are terminally ill to relax and accept the natural course of death; only 10% of those who knew they had the option to end their life with medication did so.
• Where the prescription for autism can be death (Charles Lane, WaPo, 2-24-16) "...a man in his 30s whose only diagnosis was autism become one of 110 people to be euthanized for mental disorders in the Netherlands between 2011 and 2014. That’s the rough equivalent of 2,000 people in the United States....doctors from elsewhere are starting to apply independent scrutiny to the increasingly common euthanasia of Holland’s mentally ill, and their findings are not so reassuring. To the contrary."
• Hastening Death, information and arguments for and against physician-assisted suicide (from online edition of HANDBOOK FOR MORTALS by Joanne Lynn and Joan Harrold
• Should an incurably-ill patient be able to commit physician-assisted suicide? (BalancedPolitics.org)
• State-by-State Guide to Physician-Assisted Suicide (ProCon.org)
• U.S. Supreme Court rulings on physician-assisted suicide cases (University at Buffalo Center for Clinical Ethics and Humanities in Health Care)
• For Belgium's Tormented Souls, Euthanasia-Made-Easy Beckons (Naftali Bendavid, Wall Street Journal, 6-14-13).
• Tony Nicklinson Dead: U.K. Man With Locked-In Syndrome Who Failed To Overturn Euthanasia Law Dies (Maria Cheng, Huff Post 8-22-12)
• Unflinching End-of-Life Moments, review in NYTimes of HBO documentary about physician-assisted suicide (to air summer 2011), How to Die in Oregon, which was shown at the Sundance Festival.
• Gun Violence Archive
• Letters from an American: guns and their meaning in America 3-23-2021) Heather Cox Richardson's succinct and eye-opening timeline and history of the interpretation of guns and their meaning in America. "But in the mid-1970s, a faction in the NRA forced the organization away from sports and toward opposing “gun control.” It formed a political action committee (PAC) in 1975, and two years later elected an organization president who abandoned sporting culture and focused instead on “gun rights.” This was the second thing that led us to where we are today: leaders of the NRA embraced the politics of Movement Conservatism, the political movement that rose to combat the business regulations and social welfare programs that both Democrats and Republicans embraced after World War Two." Her pieces always link to other sources on the topic; I've included her links for this piece below and highly recommend subscribing to her column, to understand current issues. There's a free subscription and a paid subscription.
See also her column on the plague of gun violence (4-19-21, after a flurry of mass killings): "We are in a bizarre moment, as Republican lawmakers defend largely unlimited gun ownership even as recent polls show that 84% of voters, including 77% of Republicans, support background checks. The link between guns, cowboys, race, and government in America during Reconstruction, and again after the Brown v. Board decision, helps to explain why."
• Dying of Whiteness: How the Politics of Racial Resentment Is Killing America's Heartland by physician Jonathan M. Metzl. Interviewing a range of everyday Americans, Metzl examines how racial resentment has fueled progun laws in Missouri, resistance to the Affordable Care Act in Tennessee, and cuts to schools and social services in Kansas. He shows that the policies that result actually place white Americans at ever-greater risk of sickness and death, increasing deaths by gun suicide, falling life expectancies, and rising dropout rates. Gun culture is often associated with masculinity (being macho) and with rural culture ("Respect my rural identity").
• The NRA Placed Big Bets on the 2016 Election, and Won Almost All of Them (Mike Spies and Ashley Balcerzak, Open Secrets and The Trace, 11-9-16)
• “Coincidence Number 395”: The N.R.A. Spent $30 Million to Elect Trump. Was It Russian Money? (Chris Smith, Vanity Fair, 6-21-18) Congressional Democrats, the F.B.I., and Robert Mueller want to know why Putin-tied oligarchs took such an interest in American gun ownership.
• ‘What are we doing?’ Democrats in Congress demand action on gun control as Republicans push back. (Catie Edmondson, NY Times, 3-23-21)
• No, mass shootings are not ‘the price of freedom’ (Ronald A. Klain, Opinion, Washington Post, 10-5-17) 'Gun rights zealot Bill O'Reilly encapsulated this thinking when he said that the Las Vegas mass slaughter was "the price of freedom. . . . The Second Amendment is clear that Americans have a right to arm themselves for protection. Even the loons."'
• Do 90 percent of Americans "support universal background checks" for gun purchases? (Tom Kertscher, PolitiFact, 10-3-17) Yes, they do.
• Days after assault weapons ban was lifted in Boulder, a community grieves another mass shooting in America: ‘It hurts’ (Teo Armus, Timothy Bella and Alex Horton, Washington Post, 3-23-21) The suspect purchased an AR-556 pistol March 16, according to the arrest affidavit.
• ‘This is a wake-up call’: Georgia’s Asian communities turn tragedy into political power (Maya King, Politico, 3-23-21) The Atlanta shootings injected a new sense of urgency into Georgia's Asian American and Pacific Islander communities. Now they're using their political capital to make change — and to keep Georgia at the center of the political universe.
• How gun control advocates plan to make Texas a top political priority in 2020 (Patrick Svitek, Texas Tribune, 5-7-2020) One group, Everytown for Gun Safety, has already committed $8 million to the state this election cycle and is now naming three hires, including two seasoned Democratic operatives, to help see the plan through.
• 2019 Traveler's Guide to the Firearm Laws of the Fifty States by J. Scott Kappas. "Published by a Kentucky attorney and arms dealer for a gun-toting audience, the guide is frequently promoted by the National Rifle Association. States are scored zero (for completely restrictive) to 100 (for completely permissive) based on 13 factors, including the right to carry guns in the open, limitations on the types of guns state residents can own, and whether out-of-state gun permits are recognized....for every 10-point relaxation in a state’s gun laws, the rates of mass shootings in that state increased by 11.5 percent....Leading the pack in both permissive laws and mass shooting rate were Vermont, South Carolina, Louisiana, and Arizona. (Florida, where the Parkland shooting took place last year, was the only state not included in the analysis because it doesn’t participate in the FBI’s Uniform Crime Reporting program.)" The Looser a State's Gun Laws, the More Mass Shootings It Has ~ Megan Molteni, Wired, 8-6-19.
• How US gun culture compares with the world (Kara Fox, CNN, 8-6-19) Americans own nearly half (46%) of the estimate 857m civilian-owned guns worldwide. (India is second.) There are more public mass shootings in America than in any other country in the world. Gun homicide rates are 25.2 times higher in the US than in other high-income countries. They are lowest in Japan and South Korea. In February 2017, US President Donald Trump signed a measure that scrapped an Obama-era regulation aimed at keeping guns out of the hands of some severely mentally ill people.Gun lobbyist helped write ATF official's proposal to deregulate.
• Guns Are a Threat to the Body Politic (Joseph Blocher and Reva Siegel, The Atlantic, 3-8-21) America must regulate guns not only to protect life, but to protect its citizens’ equal freedoms to speak, assemble, worship, and vote without fear.
• Why America’s Great Crime Decline Is Over (Derek Thompson, The Atlantic, 3-25-21) Even before the recent mass shootings, violent crime was surging to its highest rate in 30 years. Patrick Sharkey illuminates what’s happening. An earlier drop in violence was "unsustainable because we were reliant on a model of responding to violence and urban inequality through brute force and punishment and dependence on prisons and the police to respond to every challenge that arises when poverty is concentrated."
• Best States for Gun Owners (Guns & Ammo) Listed in reverse are states with tightest gun control regulation, California and New York at top.
• How California got tough on guns (Ben Christopher, Cal Matters, 11-14-19) The Giffords Law Center To Prevent Gun Violence, a gun control advocacy group, awarded California its only “A” grade in its 2017 state gun law scorecard. A timeline of changes in California.
• Parkland Shooting Survivors Release Ambitious Gun Control Plan (Adeel Hassan, NY Times, 8-21-19) March for Our Lives, a group led by student survivors of last year’s mass shooting at a high school in Parkland, Fla., unveiled an ambitious gun control platform on Wednesday that would ban assault-style weapons, raise the minimum age for buying firearms, create a national gun registry and require gun owners to pay for new licenses each year. The plan would go well beyond gun control measures like “red flag” laws and expanded background checks, which have been openly discussed after 31 people were killed in recent mass shootings in Dayton, Ohio, and El Paso.
• The U.S. Once Had A Ban On Assault Weapons — Why Did It Expire? (Ron Elving, NPR, 8-13-19) Twenty five years ago, Congress passed the Public Safety and Recreational Firearms Use Protection Act — the "assault weapons ban" — as a subsection of the Violent Crime Control and Law Enforcement Act of 1994, an election-year package meant to show that Democrats were "tough on crime." It prohibited the manufacture or sale for civilian use of certain semi-automatic weapons. The act also banned magazines that could accommodate 10 rounds or more. Eagerness to tackle crime rates made at least some Democrats in 1994 also willing to address the role of guns, but the ban cost the Democrats control of Congress. In 2004 the Republican Congress refused to renew the ban. Critics of the ban have argued that it violated Second Amendment rights while accomplishing little, and evidence suggests it did not do much to reduce the incidence of gun violence overall. But it did reduce the number of people killed in mass shootings. A survey done this month by Morning Consult and Politico found 7 in 10 voters, including 54% of Republicans, supported "a ban on assault-style weapons."
• Supreme Court Allows Sandy Hook Relatives to Sue Gun Maker (Kristin Hussey and Elizabeth Williamson, NY Times, 11-12-19) Families of victims in the 2012 shooting at an elementary school are challenging a federal law protecting gun manufacturers from liability. The lawsuit says the Madison, North Carolina-based company should never have sold a weapon as dangerous as the Bushmaster AR-15-style rifle to the public. The Supreme Court cleared the way for relatives of Sandy Hook Elementary School shooting victims to sue the Remington Arms Company, the maker of the rifle used in the massacre. CNN: Lawyers for the victims sued Remington contending that the company marketed rifles by extolling the militaristic qualities of the rifle and reinforcing the image of a combat weapon -- in violation of a Connecticut law that prevents deceptive marketing practices
• On gun violence, Republicans are a profile in cowardice (Max Boot, Opinion, WaPo, 8-21-19) "Seventy percent of voters and 54 percent of Republicans surveyed by Morning Consult-Politico support banning these weapons of war. Yet President Trump claims there is no “political appetite” for such action, meaning there is no appetite in the Republican Party to challenge the National Rifle Association....Federal background checks already exist, but most mass shooters were able to acquire their weapons legally. Red-flag laws already exist in 17 states and the District of Columbia, but they have been primarily effective in reducing suicides rather than homicides. ...Much more ambitious gun controls are needed. We should treat guns the way we treat cars, requiring gun owners to pass gun safety courses, get a new license at regular intervals and carry liability insurance that would force insurance companies to investigate their background....Republicans claim to be tough on defense, but when it comes to what is, along with global warming, arguably our top national security threat (more Americans have died from gun violence in the past 50 years than in all of our wars combined), they are a profile in cowardice. In their dealings with the gun lobby, Republicans are Neville Chamberlain, not Winston Churchill."
"Louis Klarevas, a researcher at Columbia University, found that during the 10 years when the assault weapon ban was in effect, “the number of gun massacres … fell by 37 percent, and the number of people dying from mass shootings fell by 43 percent.” The effect would have been even greater if the 1994 law had fewer loopholes and if it had banned the possession, not merely the sale, of assault weapons and large-capacity magazines. That’s essentially what Australia did in 1996 after a gunman slaughtered 35 people. Australia has had only one shooting since then that killed more than four people — and that was the slaughter of a single family carried out by a relative."
• A Novel Gun Control Strategy: Pressure Banks and Retailers (Nick Corasaniti, NY Times, 9-10-19) Several major banks have taken matters into their own hands, cutting off banking and credit card services to gun retailers and stopping the lending of money to manufacturers who do not abide by age limits and background checks. Now New Jersey has essentially decided to make its own rules to restrict the flow of guns, and officials said they hoped it would encourage other liberal states to follow their lead. New Jersey intends to stop doing business with gun manufacturers and retailers that fail to adopt policies, like conducting background checks, to stop guns from falling into the wrong hands, becoming the first state to take such stringent action against the firearms industry. The state will also apply pressure on major financial institutions, seeking information from banks that do business with New Jersey about their relationships and policies involving gun makers and sellers.
• Most Americans Support These 4 Types Of Gun Legislation, Poll Says (PBS NewsHour, 9-10-19) After multiple mass shootings in recent weeks, a majority of Americans think it is more important to control gun violence than to protect gun rights, according to a new PBS NewsHour, NPR and Marist poll. Policies with the strongest support include more funding for mental health screening and treatment, mandatory background checks and licensing for gun purchases, and passage of a national “red-flag” law, which would give a judge authority to order the removal of guns from a person who poses a risk to themselves or others, the poll suggests. Sixty-one percent of out of 10 Americans said they want to ban high-capacity magazines, but 51 percent of Republicans rejected the idea.
• Even gun owners agree on measures that would reduce gun violence, survey shows (Melissa Healy, Los Angeles Times, 9-10-19) Substantial majorities of Americans — both those who own firearms and those who do not — support measures that would require first-time gun buyers and those wishing to carry a concealed weapon to demonstrate they can safely own and handle a gun, according to a new study. In a national survey conducted in January, researchers from Johns Hopkins University’s Center for Gun Policy and Research found that 84% of all respondents believe that first-time gun buyers should be required to pass a safety course on the safe handling and storage of a firearm. Close to three-quarters of gun owners surveyed shared this view.
• ‘Being silenced is not acceptable’: Doctors express outrage after NRA tells them ‘to stay in their lane’ (Frances Stead Sellers, WaPo, 11-11-18) 'At first, Judy Melinek didn’t know how to respond when she learned about a National Rifle Association tweet last week telling doctors who dared enter the gun debate “to stay in their lane.” But two days later, when the West Coast forensic pathologist was on her way to the morgue to examine the body of one of the country’s many forgotten gunshot victims, the words came to her. “Do you have any idea how many bullets I pull out of corpses weekly? This isn’t just my lane,” she tweeted Friday. “It’s my [expletive] highway.” ...Melinek and Sakran are among countless medical professionals who have taken to Twitter in the past few days to fire back at the NRA — creating a viral response that has ricocheted around the Internet under the hashtags #thisisourlane and #thisismylane....“I fix blood vessels for a living,” tweeted Westley Ohman, a vascular surgeon in St. Louis. “When you work at a major trauma center, that means fixing blood vessels shredded by bullets. My lane is paved by the broken bodies left behind by your products.” Responsible gun owners, he said, are tired of the carnage, too.'
• Mr. President, the hatred of the El Paso shooting didn't come from our city (Timothy Archuleta, El Paso Times, 8-7-19) 'Mr. President, in your February State of the Union address, you claimed that El Paso was “one of our nation’s most dangerous cities” before a border wall was built....In El Paso, we won’t ever look at someone who is different with prejudice in our hearts. The hatred that came to us came from an outsider. It did not come from El Paso."
• Taking guns away from people in crisis: Does it work? (Liz Szabo, Policy, KevinMD, 8-12-19) Protection orders are a “vital tool” that allows the people who are most likely to notice when a loved one or community member becomes a danger to take concrete steps to disarm them, according to the Giffords Law Center to Prevent Gun Violence, a San Francisco-based advocacy group named for Gabrielle Giffords, a former congresswoman who survived a mass shooting. Yet the evidence that protection orders reduce gun violence is more “suggestive” than definitive, Rosenberg said. No one has performed a large, long-term study of the state laws, mainly because of a congressional amendment from the 1990s that discouraged federal agencies from studying gun violence, he said....“Four percent of violence in this country is attributable to mental illness,” said Ronald Honberg, a senior policy adviser for the National Alliance on Mental Illness. “That means 96% of violence is not. So if somehow we were miraculously able to cure mental illness, which we’re far from being able to do at this point, we would not be appreciably reducing violence.”
• GOP-Led Senate Committee Holds Rare Hearing on Gun Control, Focusing on Taking Weapons from Dangerous People (KHN, 3-27-19). Links to articles in Wall Street Journal (3-26-19) Senate Panel Considers ‘Red Flag’ Gun Laws in Aftermath of Mass Shootings: "A GOP-led Senate committee held a rare gun-control hearing Tuesday on measures aimed at temporarily blocking dangerous people from accessing firearms, following a wave of states’ decisions to allow such curbs. The Senate Judiciary Committee focused Tuesday on extreme-risk protection orders, also known as red-flag laws, aimed at allowing courts to temporarily take guns from people deemed dangerous. Extreme-risk protection orders are designed to generally let family members or law-enforcement officials petition a court for an order that would temporarily block that person from being able to buy a firearm, or enable officials to remove his or her weapons."
• Americans Largely Support Gun Restrictions To 'Do Something' About Gun Violence (Domenico Montanaro, NPR, 8-10-19) We know from opinion polls that there is strong U.S. support for stricter gun laws-- "universal background checks for gun purchases, extreme risk protection orders (also called red flag laws), gun licensing, assault-weapons bans and bans on high-capacity magazines. But many of these issues are hotly polarizing. While they mostly enjoy support from Democrats and independents, Republicans are not always on board." A look at where things stand, measure by measure, based on the latest polling and on Capitol Hill. "When people were asked if they thought it was more important to control gun violence or protect gun rights, 58% said control gun violence, the highest in at least six years. Just 37% responded that it was more important to protect gun rights."
• Why New Zealand isn't a perfect model for US gun reform (Sam Bookman, CNN, 3-26-19) New Zealand PM bans assault rifles; why can't we? Bookman explains: "Part of the reason is the American political system is designed with checks and balances, creating plenty of veto points for entrenched opponents. To pass comprehensive federal gun control, lawmakers would need to build majorities in the House and the Senate. They would then need the support of the President, or else have enough support to overcome a presidential veto. That takes a lot of cooperation: something that is in short supply in gridlocked Washington today. The American system also gives disproportionate power in the Senate to rural minorities, where gun culture is strongest. High gun-owning states, such as Montana and Wyoming, send as many senators to Washington as more populous (but lower gun-owning) states such as Illinois and Massachusetts. Even if the legislative and executive branches could pass gun control, there is no guarantee that it would be constitutional....Although some limits on gun ownership are lawful, it is not clear whether these include a ban on semi-automatics. At the very least, a legislative ban would face lengthy court challenges. By contrast, New Zealand's constitutional system is designed to be representative and nimble. Parliament is proportional: seats are generally allocated on the basis of a nationwide vote. And under New Zealand's parliamentary system, majority parties in the legislature also lead the executive, reducing the chances of disagreement between the branches of government." (Interesting AND discouraging.)
• Secrecy, Self-Dealing, and Greed at the N.R.A. (Mike Spies, The New Yorker, 4-17-19) The organization’s leadership is focussed on external threats, but the real crisis may be internal. 'Even as the association has reduced spending on its avowed core mission—gun education, safety, and training—to less than ten per cent of its total budget, it has substantially increased its spending on messaging. The N.R.A. is now mainly a media company, promoting a life style built around loving guns and hating anyone who might take them away....After the mass shooting at Marjory Stoneman Douglas High School, in Parkland, Florida, Noir appeared in a video chiding “all the kids from Parkland getting ready to use your First Amendment to attack everyone else’s Second Amendment.”'
• The N.R.A.'s Financial Mess (Ave Carrillo and Steven Valentino, New Yorker Radio Hour, WNYC, 4-19-19) "Central to the story of the N.R.A’s financial problems is an Oklahoma-based media agency called Ackerman McQueen....In 2017, the N.R.A. paid Ackerman and affiliates forty million dollars, which totalled about twelve per cent of the N.R.A.’s total expenses that year. Ostensibly just a contractor, Ackerman influenced N.R.A. decision-making from inside, and the for-profit company seems to have used the nonprofit company as a vast source of funds to enrich itself."
• Doctors for Responsible Gun Ownership (DRGO) "Join DRGO and help bring honesty to the gun debate."
• Texas Disability Group Wants Victims' Voices Heard In Gun Debate (Side Effects, 4-23-18). See Side Effects
• Gun Control Is as Old as the Old West (Matt Jancer, Smithsonian, 2-5-18) Contrary to the popular imagination, bearing arms on the frontier was a heavily regulated business. “Having a firearm to protect yourself in the lawless wilderness from wild animals, hostile native tribes, and outlaws was a wise idea. But when you came into town, you had to either check your guns if you were a visitor or keep your guns at home if you were a resident,” says Adam Winkler, a professor and specialist in American constitutional law, and author of Gunfight: The Battle Over the Right to Bear Arms in America.
• Can you change how criminals think? Chicago hopes behavioral therapy can cut gun violence (Aamer Madhani, USA Today, 8-2-18) The day's group therapy session for the young detainees at the county jail started with their behavioral health specialist testing them with a hypothetical scenario: They’ve cheated on a girlfriend and the other woman is pregnant. The participants – all facing serious charges and picked for the jail's intensive therapy program because they're deemed a high risk of getting caught in Chicago’s intractable gun violence once they leave custody – bristled at a push for honest talk....Programs like S.A.V.E. (the Sheriff's Anti-Violence Effort) that use cognitive behavioral therapy (CBT), a psychological treatment that focuses on helping young men recognize their instinctual responses and slow down their thinking in high-stake situations, have gained popularity in several cities around the U.S. in recent years....In Boston and Baltimore, the anti-violence group ROCA Inc. has used CBT in its work with ex-offenders, a program that pushes the riskiest of at-risk to "think different to act different." In the group's work in the Boston area, 84 percent of its participants have no new arrests, and two out of three stay employed after finishing the program.
• Gun Violence by the Numbers (Everytown). On an average day, 98 Americans are killed with guns (on average, 7 children and teens). That's 12,000 gun deaths a year, average). For every person killed, two more are injured. 62% of firearm deaths are suicides. America's gun homicide rate is more than 25 times the average of other developed countries. In an average month 50 women are shot to death by intimate partners in the U.S. In a domestic violence situation, women are five times more likely to be killed if there is a gun in the house. Black men are 14 times more likely than white men to be shot and killed by guns.
• They Survived Mass Shootings. Years Later, The Bullets Are Still Trying to Kill Them (Melissa Chan, Time, 5-31-19) "Colin Goddard survived the April 16, 2007 massacre at Virginia Tech, which killed 32 people and was the worst school shooting in U.S. history. Twelve years later, he has dozens of constant reminders: bullet fragments lodged in his body, leaching toxins into his blood....Goddard, a 33-year-old father of two, is suffering a lesser-known and often unrecognized side effect of gun violence: lead poisoning....Now, with his blood lead levels seven times higher than what is considered safe, Goddard faces long-term health risks, including neurological problems, kidney dysfunction and reproductive issues."
• The True Cost of Gun Violence in America (Mark Follman, Julia Lurie, Jaeah Lee, and James West, Mother Jones, 4-15-15) The data the NRA doesn’t want you to see. Nobody, save perhaps for the hardcore gun lobby, doubts that gun violence is a serious problem. And solving a crisis, as any expert will tell you, begins with data. But the government has mostly been mute on the economic toll of gun violence. Why the lack of solid data? A prime reason is that the National Rifle Association and other influential gun rights advocates have long pressured political leaders to shut down research related to firearms. A top public health expert describes the chill this way: “Do you want to do gun research? Because you’re going to get attacked. No one is attacking us when we do heart disease.”
• A Rise in Murder? Let’s Talk About the Weather (Jeff Asher, The Upshot, NY Times, 9-21-18) The correlation between heat and crime suggests the need for more research on shootings in American cities.
• In some countries, the odds of getting shot are 1 in a million. In the U.S., it's 100 times higher (Melissa Healy, LA Times, 8-28-18) According to a first-ever study of Global Mortality From Firearms (1990-2016), guns kill people — men overwhelmingly — who are in the prime of life, between the ages of 15 and 40. In 2016, they killed 7,220 children before they reached their 14th birthday. Boys in this age group died at two-and-a-half times the rate of girls.... [A]lthough men are most often the targets of firearm violence, they are also the most likely perpetrators, often in the context of domestic and relationship violence.” The United States "has played a key role in setting the stage for gun-related deaths across the Americas, both by supplying the weapons and sustaining the drug trade that drives the mostly illegal use of guns in these countries. In many of these countries, few guns appear to be in the hands of legal owners."
• On Seniors Packing Heat And When They Should Pack It In (Harry Stark, PhD, Letter to the editor, KHN) An estimated 9 percent of Americans 65 and older are diagnosed with dementia, marked by mental decline and personality changes. And about 45 percent of folks 65 and older have guns at home.
• Unlocked and Loaded: Families Confront Dementia And Guns (JoNel Aleccia and Melissa Bailey, KHN, 6-25-18) As America copes with an epidemic of gun violence that kills 96 people each day, there has been vigorous debate about how to prevent people with mental illness from acquiring weapons. But a little-known problem is what to do about the vast cache of firearms in the homes of aging Americans with impaired or declining mental faculties. Look at the numbers in this piece.
• 3D-Printed Guns: Are They a Serious Threat to U.S. Communities? (Aamer Madhani and Andrew Wolfson, USA Today, 8-1-18) If gun rights activist Cody Wilson gets his way in his legal battle, soon anybody – including convicted felons and the mentally ill – with a few raw materials and access to an industrial 3D printer could build a plastic firearm, gun control advocates say. But will people, particularly a criminal or someone else intent on carrying out violence, bother to make the effort? Tech experts and stakeholders in the gun control debate are divided on whether the emergence of 3D-printed plastic guns presents an immediate safety threat to U.S communities.
• Why American Can't Effectively Control Guns (Gary Rodgers, DyingWords.net) Rodgers is a retired Royal Canadian Mounted Police homicide detective and forensic coroner, who also served as a sniper on British SAS-trained Emergency Response Teams. He provides a reasonable history and overview of the U.S. problem with its guns.
• Deep Roots (Thinking About “Koreans With Guns”) (Julija Šukys, Essay Daily, 12-8-18) The text for this essay about an essay ("Koreans with Guns") is only 619 words long, but the 61 footnotes total 2695 words. The real essay is in the footnotes. "Cha reminds us that the real story often lies buried, hidden from the surface. You have to excavate to find it. You have to dig for nuance." "In the end, what does an essay about a shopkeeper shooting a young girl in 1991 have to do with a mass college shooting in 2007? What connects these two events beyond the fact that both shooters were Korean?"
• Texas Governor Scraps Campaign Contest to Give Away Shotgun (Daniel Victor, NY Times, 5-21-18) Gov. Greg Abbott of Texas’ re-election campaign scrapped its plan to give away a shotgun in a contest after a high school student used a shotgun and a handgun to kill 10 people in the state on Friday. The campaign created its contest in early May, well before Santa Fe High School, about 35 miles southeast of Houston, became the nation’s latest scene of bloodshed inside a school. Dimitrios Pagourtzis, 17, has been charged with capital murder in the killing of 10 people
• National Hotlines and Helpful Links (National Center for Victims of Crime) Many helpful links and phone numbers.
• Expanding Civil Commitment Laws Is Bad Mental Health Policy (Morgan Shields, Ari Ne'eman, Health Affairs blog, 4-6-18) Expanding civil commitment and mental health institutionalization is a convenient tool for politicians seeking to deflect public pressure for gun control laws. But research has found that only 3 to 5.3 percent of violent crime is attributable to serious mental illness. And such measures would turn back the clock to a time when individuals could be hospitalized without their consent, even if they did not pose a danger to themselves or others.
• How to Report On Survivors of Gun Violence (Elizabeth Van Brocklin, The Trace, 8-2-18) Tips on how to interview and write about America’s growing population of gunshot victims with empathy and sensitivity.
• Why Are Shootings Deadlier In Some Cities Than Others? (Jeff Asher, FiveThirtyEight, 2-21-17) Chicago in 2016 had more shootings4 per capita than Baltimore. But a smaller share of Chicago’s shooting victims ended up dying. Why? Asher explores explanations.
• Gunshot Survivors May Be Eligible for Crime Victim Compensation. Here’s Everything You Need to Know to Apply. (Elizabeth Van Brocklin, The Trace, 4-11-18)
• States Set Aside Millions of Dollars for Crime Victims. But Some Gun Violence Survivors Don’t Get the Funds They Desperately Need. (Elizabeth Van Brocklin, The Trace, 2-12-18)
• Shot and Forgotten: 24 Stories (Elizabeth Van Brocklin, The Trace) Ever imagine what it's like to be shot? Reporters Amber Hunt of the Cincinnati Enquirer and Elizabeth Van Brocklin of The Trace traveled the country talking to people who know too well.
• Aftermath (8-podcast series, The Trace, 5-22-18 thru 7-3-18) Listen online. "Have you ever thought about what it’s like to get shot? For eight months, reporters Amber Hunt of the Cincinnati Enquirer and Elizabeth Van Brocklin of The Trace traveled the country talking to people who know the answer too well. Their backgrounds and circumstances stories all vary, but they share one defining truth: Each had their lives changed by the path of a bullet."
• Mayors want to pass gun safety laws, but the NRA and our state legislatures won't let us (Andrew Gillum, Bill Peduto and Ted Wheeler, USA Today, 3-23-18) "Forty-three states have some form of gun preemption, a tactic increasingly used by state legislators to prevent cities and counties from making local laws and decisions. States are interfering in local efforts to raise wages, pass paid sick time and non-discrimination ordinances, and adopt fracking and environmental regulations. Lawmakers are using preemption to overturn elections, perpetuate racial and economic inequality, and silence local voices....And it’s happening because lobbyists and special interests know it’s easier to influence a few state lawmakers in 50 state capitols than thousands of local mayors and city councils.
• Companies that support the National Rifle Association (Drain the NRA, links to companies that some are boycotting for their sale of military style weapons to the public)• Case Against Gun Control (James Fallows, First Drafts, Conversations, Stories in Progress, The Atlantic, Feb. 2018) Should the owner of a gun be subject to the same level of safety regulations as the owner/pilot of a plane? Both can do extensive damage.)
• What Bullets Do to Bodies (Jason Fagone, Highline, HuffPost, 4-26-17) The gun debate would change in an instant if Americans witnessed the horrors that trauma surgeons confront every day.
• Surgeon struggles to save boy's life in L.A.'s shooting season (Thomas Curwen, LA Times, 8-17-13) Why so many guns? It once was fistfights. It once was stabbings. Now it’s a whole new world."— Dr. Brant Putnam
• Precious Lives Project, in collaboration with the Milwaukee Journal Sentinel, WUWM, WNOV, and the Wisconsin Center for Investigative Journalism. A two-year, 100-part radio series about young people and gun violence in Milwaukee. The stories give voice to many people not represented in mainstream media.
• Urban–Rural Differences in Suicide in the State of Maryland: The Role of Firearms (American Public Health Association, 4-13-17) Conclusions from a retrospective analysis: Suicide rates are higher in rural Maryland than in urban areas, driven by heavier rates of firearm suicides in men. Urban homicide rates from guns are higher than rural rates. Maryland is suited for this study because it is one of the few states to use appointed medical examiners exclusively, rather than elected coroners, who may not be forensic pathologists.
• How to Stop Violence (Laura L. Hayes, Slate, 4-9-14) Anger management. Mentally ill people aren’t killers. Angry people are.
• Fighting for Gun Control 50 Years Ago (Mike Shatzkin, Medium, 2-21-18)
• Out Came the Girls: Adolescent Girlhood, the Occult, and the Slender Man Phenomenon (Alex Mar, Virginia Quarterly Review, October 2017). "Girls lured out into the dark woods—this is the stuff of folk tales from so many countries, a New World fear of the Puritans, an image at the heart of witchcraft and the occult, timeless. Some of our best-known folk tales were passed down by teenagers—specifically teenage girls....The common belief is that many of these tales, when told to children, serve as warnings for bad behavior, harsh lessons, morality plays. But on the flipside, they’re remarkable for their easy violence and malleable moral logic, like that of a child....Nearly a third of the original eighty-six tales of the Grimms’ collection feature young people, many of them girls, making their way into the woods—lured out by a trickster, or the need to pass a life-or-death test....To be an adolescent girl is, for many, to view yourself as desperately set apart, powerfully misunderstood. A special alien, terrible and extraordinary....Like a fairy-tale monster, Slender Man emerged through a series of obscure clues, never fully visible. He first appeared online, in the summer of 2009, in two vague images that were quickly passed around horror and fantasy fan forums." A true horror story.
• Gun Violence Archive. Valuable in providing accurate information about gun-related violence in the United States. See, for example, page on Mass shootings.
• My son was shot at a sleepover (Jeff Truesdell, People, 11-13-17) Ashley Melton's son Noah was killed by a teen with an unsecured gun. A gun owner herself, she's trying to help other parents avoid a similar tragedy by keeping guns in a cabinet or drawer locked from children.
• The True Cost of Gun Violence in America (Mark Follman, Julia Lurie, Jaeah Lee, and James West, Mother Jones, 4-15-15) The data the NRA doesn’t want you to see.
• Unlocked and Loaded: Families Confront Dementia and Guns (JoNel Aleccia and Melissa Bailey, KHN, 6-25-18) With a bullet in her gut, her voice choked with pain, Dee Hill pleaded with the 911 dispatcher for help. “My husband accidentally shot me,” Hill, 75, of The Dalles, Ore., groaned..." As more Americans are diagnosed with dementia, families who have firearms struggle with ways to stay safe. A KHN investigation uncovered dozens of cases of deaths and injuries. See also Worried About Grandpa’s Guns? Here’s What You Can Do. (JoNel Aleccia and Melissa Bailey, KHN, 6-25-18) When a loved one gets dementia, many families get no guidance on what to do about that person’s guns. Here are legal and practical steps to stay safe.
• If Newtown Wasn't Enough, Why Would Las Vegas Be Enough? (Charles P Pierce, Esquire, 10-2-17) Our leaders are afraid to tolerate limits on Second Amendment "freedoms."
• How to Prevent Gun Deaths? Where Experts and the Public Agree (Quoctrung Bui and Margot Sanger-Katz, The Upshot, NY Times, 1-10-17) Must-read on the subject.
• The NRA has blocked gun violence research for 20 years. Let's end its stranglehold on science. (Michael Hiltzik, Los Angeles Times, 6-14-16)
• Gun violence research: History of the federal funding freeze (Christine Jamieson, American Psychological Association, Feb. 2013) "In 1993, the New England Journal of Medicine (NEJM) published an article by Arthur Kellerman and colleagues, “Gun ownership as a risk factor for homicide in the home,” which presented the results of research funded by the Centers for Disease Control and Prevention (CDC). The study found that keeping a gun in the home was strongly and independently associated with an increased risk of homicide. The article concluded that rather than confer protection, guns kept in the home are associated with an increase in the risk of homicide by a family member or intimate acquaintance...the National Rifle Association (NRA) responded by campaigning for the elimination of the center that had funded the study, the CDC’s National Center for Injury Prevention. The center itself survived, but Congress included language in the 1996 Omnibus Consolidated Appropriations Bill (PDF, 2.4MB) for Fiscal Year 1997 that “none of the funds made available for injury prevention and control at the Centers for Disease Control and Prevention may be used to advocate or promote gun control.”
• The NIH Is Finding Ways to Tip-Toe Around Congress’s Restrictions on Gun Violence Research (Miles Kohrman and Kate Masters, The Trace, 4-7-16) The divergent paths followed by the Centers for Disease Control and Prevention and the National Institutes of Health — both subject to the same congressional directive seen as trying to prevent all gun research — is attracting new attention as health researchers and other critics have put new pressure on the CDC to change its practices....In 1997, Congress took $2.6 million from the CDC’s budget, the exact amount the agency had dedicated to studying gun violence in the previous year.
• 7 things journalists should know about guns (Denise-Marie Ordway, Journalist's Resource, 10-2-18)
• 1 in 4 handgun owners carry loaded weapons monthly (Denise-Marie Ordway, Journalist's Resource, 1-26-18) The researchers estimate that 9 million of the approximately 38 million adult handgun owners in the United States carry a loaded handgun with them monthly. Of those who carry loaded weapons, 3 million do it every day. Of those who carried loaded handguns, about two-thirds reported always carrying them concealed while 1 in 10 reported always carrying them openly.
• What journalists need to know about guns and gun control (Al Tompkins, Poynter, 7-21-12) What is a caliber/gauge and why does it matter? What is the difference between "clip" and "magazine"? How about pistols, shotguns, rifles and assault rifles--and automatic and semi-automatic? What's legal? And a quick history of gun control.
• FBI Chart of Murder by State, Types of Weapon, 2010
• CDC: Half Of All Female Homicide Victims Are Killed By Intimate Partners (Camila Domonoske, The Two-Way, WAMU, NPR, 7-21-17) This is a public health problem. "We found that approximately one in 10 victims of intimate-partner-violence-related homicide experienced some form of violence in the preceding month," Petrosky says. "...So this indicates that there could have been potentially an opportunity for intervention for those women." The report also analyzed the method of homicide — more than half involved firearms and 20 percent involved some sort of blade.
• US Mass Shootings, 1982-2017: Data From Mother Jones’ Investigation (Mark Follman, Gavin Aronsen and Deanna Pan, Mother Jones, updated 10-2-17) The full data set from our in-depth investigation into mass shootings.
• Restricting Research On Gun Violence (Michael Halpern on Kojo Nnandi show, 1-16-13) The headlines and debate will likely focus on the gun control measures including criminal background checks for all gun sales and reinstating an assault weapons ban but there's also call to lift restriction on federally funded research into gun violence. What restrictions you might ask? There is, for example, a law prohibiting the National Institutes of Health from spending to advocate or promote gun control. Congress, over the past two decades, has restricted federal funds from being used to “promote or advocate gun control,” which many researchers say has had a chilling effect on studies related to gun violence. Even the new health care law includes a provision preventing doctors from asking patients about guns in the home.
• Congress must act to make America safer from gun violence (Americans for Responsible Solutions). Stand with Gabby Giffords. Sign this petition to Congress to make our communities safer from gun violence by taking action to make it harder for criminals, terrorists, and the dangerously mentally ill to get their hands on guns.
• You Will Not Have My Hate by Antoine Leiris. "A year after his wife Hélene was killed in the Bataclan Theatre terrorist attacks in Paris, Antoine Leiris wrote this small, powerful book. She was the love of his life, the mother of their son, and their lives will never be the same. Leiris' decision not to hate those whose actions were ignited by hate, may appear to be saintly--it is not. This is a meditation on the consequences of hate, and how one man has chosen to deal with the aftermath on a daily, and probably eternal way."--Los Angeles Public Library
• Why Can’t We Talk About Guns? (1a radio,7-13-17) An NRA video making the rounds online has been called everything from an open call to violence to protect white supremacy to a condemnation of violence. The debate over guns in America has never been easy – but is it getting harder to keep it civil and useful?
• National Association of Crime Victim Compensation Boards (NACVCB) Crime victim compensation programs in states across the country help victims of violence every day, paying for the costs of medical care, mental health counseling, and lost time at work, as well as funerals and other expenses that families face in the aftermath of homicide.
• States with the most gun violence (Thomas C. Frohlich, USA Today, 6-15-15). Watch the video.
• From San Ysidro to Sandy Hook: Surviving, but never getting over it (Joe Mozingo and Thomas Curwen, LA Times, 6-19-16)
• Precious Lives , a two-year, 100-part radio series about young people and gun violence in Milwaukee. All episodes can be downloaded, and are intended to be used in outreach and engagement. “Because we were committed to revisiting it every week, we could revisit people,” Emily Forman, a former producer on Precious Lives, told Nieman Reports. “We could go from talking to a family to the beat cop to the faith leader. You could draw connections between people, even in completely different parts of the city, so you could see how people knew each other and that violence isn’t discrete. It radiates.”
• What Bullets Do to Bodies (Jason Fagone, Highline, HuffPost, 4-26-17) The gun debate would change in an instant if Americans witnessed the horrors that trauma surgeons confront every day.
• Two-thirds of Americans are OK with doctors talking with them about gun safety (Susan Perry, Minneapolis Post, 7-27-16)
• Mass Shootings Still Happen All The Time, So Why Does The Press Look Away? (Eric Boehlert, Media Matters for America, 3-31-17)
• After a mass shooting: A survivor’s life (Eli Saslow, Washington Post, 12-5-15) Another mass shooting was over. The country had moved on. But inside one house in Oregon, a family was discovering the unending extent of a wound. ““his auburn hair curling at the ears, his front teeth sacrificed to a soccer collision, his arms wrapped around Ninja Cat, the stuffed animal that had traveled with him everywhere, including into the hearse and underground....The fact was it felt good to be angry, to yell and curse, because if she wasn’t angry then she was mostly afraid: of nightmares, of being alone, of the shadows in the church parking lot across the street, of cars backfiring, of the sound of knocking coming now at the door.”
• A Flower for the Graves (Eugene Patterson, Atlanta Constitution and CBS News, now on Poynter, 9-16-63) Among survivors of the bombing at the Sixteenth Street Baptist Church in Birmingham, Ala., one person is holding a child's shoe found in the debris. "Let us not lay the blame on some brutal fool who didn’t know any better. We know better. We created the day. We bear the judgment. May God have mercy on the poor South that has so been led."
• What to Do With the Tributes After the Shooting Stops (Alan Blinder, NY Times, 7-7-17)
• An Experiment in Empathy (Lisa Miller, New York, 12-26-16) “We change the world when we walk in one another’s shoes: this idea of radical empathy,” said Colum McCann, president of Narrative 4. “We don’t do direct conflict resolution. People understand one another by walking inside the language and inside the story of somebody else’s experience.” In one such activity, covered in this New York magazine story, "He auctioned off the pistol that killed Trayvon Martin. She watched her child die in a mass shooting. Can they change each other’s minds about guns?"
• Five Dallas Officers Were Killed as Payback, Police Chief Says (Manny Fernandez, Richard Pérez-Peña, and Jonah Engel, NY Times, 7-9-17) See also How the Attack on the Dallas Police Unfolded
• Officer Down Memorial Page
• Everytown (fighting back against the NRA and their dangerous agenda)
• Americans for Responsible Solutions. Take Gabby's pledge: “I promise you that if we cannot make our communities safer from gun violence while protecting gun rights with the Congress we have now, I will use every means available to make sure we have a different Congress, one that puts communities’ interests ahead of the gun lobby’s.”
• Armed with Facts (mostly debunking John Lott, the NRA's "gun academic."
• GunPolicy.org Armed violence and gun laws, country by country-- intelligence from a broad range of official and academic sources. This university site is for researchers, officials, journalists and advocates who need accurate citations and rapid access to credible sources. (No longer updated, for lack of funding.)
"In 2013, there were 73,505 nonfatal firearm injuries (23.2 injuries per 100,000 U.S. citizens), and 33,636 deaths due to "injury by firearms" (10.6 deaths per 100,000 U.S. citizens). ... In 2012, 64% of all gun-related deaths in the U.S. were suicides." ~Gun violence in the United States (Wikipedia entry, with links to many more, relevant articles and sites)
• Homicide Outreach Project Empowering Survivors (HOPES program), William Wendt Center for Loss and Healing, Washington DC
• Mothers in Charge Stop the Violence! Prevention, Education, and Intervention
• Women Against Gun Violence
• Violent Death Bereavement Society
• Victim Support Services (VSS)
• National Center for Victims of Crime
• Violent Loss Resources (Survivors of Violent Loss Network)
• Center for Complicated Grief ("Grief is a form of love.")
• Key Gun Violence Statistics (Brady Campaign to Prevent Gun Violence)
• After a toddler accidentally shot and killed his older sister, a family’s wounds run deep (Terrence McCoy, Washington Post, 12-1-16) See also “A mass shooting, only in slow motion” (Glenn Jeffers, Nieman Reports, Newsrooms are moving away from a focus on mass shootings to tell more nuanced stories about the people and communities marred by gun violence. Kimi Reylander, 9, was shot and killed while visiting her great-grandfather’s home in Irondale, Alabama, a small town just east of Birmingham. The culprit? Her brother Jaxon, then 3, who found a loaded handgun in a nearby bedroom and fired it.
• Gun Violence in America: The 13 Key Questions (With 13 Concise Answers) Jonathan Stray, The Atlantic, 2-4-13)
• A Brief History of Guns in America: Guns and Public Health Part 1 (Aaron Carroll, Healthcare Triage, The Incidental Economist, 8-7-17) See also Homicide and Firearms – Guns and Public Health Part 2 (Healthcare Triage, The Incidental Economist, 8-14-17); Guns and Public Health, Part 3 (8-21-17). And What Kind of Gun Laws Work? Guns and Public Health Part 4
• The U.S. Tested 67 Nuclear Bombs in Their Country. Now They’re Dying in Oklahoma. (Zoë Carpenter and Sarah Craig, Narratively, 7-17-17) In 1954, the Congress of the Marshall Islands requested a halt to the testing, which the U.S. rejected on the grounds that the islanders “had no medical reason to expect any permanent after-effects on the general health of the inhabitants.” After a series of military experiments devastated their homeland, Marshall Islands residents were permitted to immigrate to the U.S. But they didn’t know their American dream came with a catch.
"It may well be that the magical formula for a balanced, conscious, and responsible society is gender equality in the arts of nurturing and governing." ~ Jane Evershed
• Mass Shooter Database (The Violence Project) its database of attacks in which at least four people were killed is funded by a National Institute of Justice grant. See news on mass shootings and methodology (Q&A). "variables include: the perpetrator’s employment status, known prejudices, and experience with mental illness; the victims’ relationship to the perpetrator and estimated years of life they lost; and the firearms’ make, model, and method of acquisition." ~ Data Is Plural (a weekly newsletter of curious/useful datasets).
• A Guide to Mass Shootings in America (Mark Follman, Gavin Aronsen, and Deanna Pan, Mother Jones, 3-22-21, regularly updated) There have been at least 121 mass shootings in the past four decades—and more than three quarters of the killers got their guns legally. In July 2012, in the aftermath of the movie theater massacre in Aurora, Colorado, Mother Jones created a first-of-its-kind open-source database documenting mass shootings in the United States. Its research focused on indiscriminate rampages in public places resulting in four or more victims killed by the attacker. It excludes shootings stemming from more conventionally motivated crimes such as armed robbery or gang violence. There have been many similar indiscriminate gun rampages in public places—but resulting in fewer fatalities—that would otherwise be included in MJ's dataset. More than half of the cases involved school or workplace shootings (12 and 20, respectively); the other 30 cases took place in locations including shopping malls, restaurants, and religious and government buildings. Forty-four of the killers were white males. Only one was a woman. The average age of the killers was 35, though the youngest among them was a mere 11 years old. See also US Mass Shootings, 1982-2019: Data From Mother Jones’ Investigation (the full data set from Mother Jones)
• Mass Shootings: Maybe What We Need Is a Better Mental-Health Policy (Mark Follman, Mother Jones, 11-9-2012) "Nearly 80 percent of the perpetrators in 62 cases obtained their weapons legally. Acute paranoia, delusions, and depression were rampant among them, with at least 36 of the killers committing suicide on or near the scene. Seven others died in police shootouts they had little hope of surviving (a.k.a. “suicide by cop”). And according to additional research we completed recently, at least 38 of them displayed signs of possible mental health problems prior to the killings." Listen to hour-long panel discussion in 2012 on "The Mind, Madness and Gun Violence" at the Commonwealth Club of California. Panelists: Dr. Renée Binder, a leading expert on psychiatry and the law from UCSF Medical School; board member Carol Kingsley of the Law Center to Prevent Gun Violence; and Robert J. McMenomy, assistant special agent in charge of the San Francisco division of the FBI.
• A Guide to Mass Shootings in America (Mark Follman, Gavin Aronsen, and Deanna Pan, Mother Jones, 3-22-21)
• US Mass Shootings, 1982-2021: Data From Mother Jones’ Investigation (Mark Follman, Gavin Aronsen, and Deanna Pan, Mother Jones, 3-22-21)
• Why Does the U.S. Have So Many Mass Shootings? Research Is Clear: Guns. (Max Fisher and Josh Keller, NY Times, 11-7-17) The only variable that can explain the high rate of mass shootings in America is its astronomical number of guns. The United States has 270 million guns and had 90 mass shooters from 1966 to 2012. Americans make up about 4.4 percent of the global population but own 42 percent of the world’s guns.
• Emma Gonzalez, a senior who survived a mass shooting at Marjory Stoneman Douglas High School in Parkland, Florida on Feb. 14, 2018, gave a blistering speech at an anti-gun rally on Saturday about the politicians complicit in the murder of her classmates.
"Companies trying to make caricatures of the teenagers nowadays, saying that all we are is self-involved and trend-obsessed, and hushing us into submission when our message doesn't reach the ears of the nation? We are prepared to call BS!
Politicians who sit in their gilded House and Senate seats funded by the NRA, telling us nothing could have ever been done to prevent this: We call BS!
They say that tougher gun laws do not decrease gun violence: We call BS!
They say a good guy with a gun stops a bad guy with a gun: We call BS!
They say guns are just tools like knives and are as dangerous as cars: We call BS!
They say that no laws could have been able to prevent the hundreds of senseless tragedies that have occurred: We call BS!
That us kids don't know what we're talking about, that we're too young to understand how the government works: We call BS!"
To which the crowd responded, Vote them out! Vote them out! Vote them out!
• What Explains U.S. Mass Shootings? International Comparisons Suggest an Answer (Max Fisher and Josh Keller, NY Times, 11-7-17) Graphic showing this: The United States has 270 million guns and had 90 mass shooters from 1966 to 2012. No other country has more than 46 million guns or 18 mass shooters. A thoughtful set of comparisons.
• More states approving 'red flag' laws to keep guns away from people perceived as threats (Michael Livingston, LA Times, 5-14-18) Since the fatal shooting of 17 people at a South Florida high school, five states — Delaware, Florida, Maryland, Rhode Island and Vermont — have passed laws that allow authorities to temporarily take away guns from a person who has shown a pattern of violence. While most legislative proposals to address gun violence stall, the "red flag" laws, as they are known, have passed with bipartisan support and the collaboration of activists on both sides of the gun control debate. The momentum for these laws comes after investigations revealed that the shooters often showed warning signs that they would commit violence. Nine states now have such laws on the books and dozens of others are considering such proposals.
• When Masculinity Turns ‘Toxic’: A Gender Profile of Mass Shootings (Phillip Reese, KHN, 10-3-19) Men are far more likely than women to commit deadly mass shootings and “I think that goes deep to the issue of how we raise our boys to be men, goes deeply into values that we tend to hold dear: power, dominance and aggression over empathy, care and collaboration,” says California Gov. Gavin Newsom. Some research shows that men who commit mass murder tend to feel their masculinity has been diminished in a fundamental way.... Another common trait among mass killers is that they tend to blame others for their problems....The correlation between masculinity and homicide goes beyond mass shootings. Almost 90% of suspects arrested for any form of homicide in California in 2018 were male, a disparity that has not changed much over the decades."
• There is no single profile of a mass shooter. Our data show there are five types (Jillian Peterson and James Densley, Opinion, LA Times, 11-14-19) The K-12 school shooter, college and university shooter, workplace shooter, house of worship shooter, and retail/restaurant shooter all have different profiles. "Attacks in churches are perpetrated by a different type of person than attacks in malls and restaurants. And attacks at schools are carried out by very different types depending on whether they are at colleges or high schools."
• A Reformed White Nationalist Says the Worst Is Yet to Come (Yara Bayoumy and Kathy Gilsinan, The Atlantic, 8-6-19) Christian Picciolini discusses the mainstreaming of white nationalism, what it takes to de-radicalize far-right extremists, and why the problem is metastasizing.
• Right-Wing Media Uses Parkland Shooting as Conspiracy Fodder (Michael M. Grynbaum, NY Times, 2-20-18) In certain right-wing corners of the web — and, increasingly, from more mainstream voices like Rush Limbaugh and a commentator on CNN — the students are being portrayed not as grief-ridden survivors but as pawns and conspiracists intent on exploiting a tragedy to undermine the nation’s laws.
• Mass Shootings in 2019 (Gun Violence Archive) with interactive map
• Scarred by school shootings (John Woodrow Cox and Steven Rich, Washington Post, 3-23-18) More than 187,000 students have been exposed to gun violence at school since Columbine, The Washington Post found. Many are never the same. 13 dead at Columbine (in 1999). 26 dead at Sandy Hook. 17 dead at Marjory Stoneman Douglas. "In total, The Post found an average of 10 school shootings per year since Columbine, with a low of five in 2002 and a high of 15 in 2014. Less than three months into 2018, there have been 11 shootings, already making this year among the worst on record."
• Are Mass Murderers Insane? Usually Not, Researchers Say (Benedict Carey, NY Times, 11-8-17) "It is true that severe mental illnesses are found more often among mass murderers. About one in five are likely psychotic or delusional, according to Dr. Michael Stone, a forensic psychiatrist at Columbia University who maintains a database of 350 mass killers going back more than a century. The figure for the general public is closer to 1 percent. But the rest of these murderers do not have any severe, diagnosable disorder....Most mass murderers instead belong to a rogue’s gallery of the disgruntled and aggrieved, whose anger and intentions wax and wane over time, eventually curdling into violence in the wake of some perceived humiliation....“The majority of the killers were disgruntled workers or jilted lovers who were acting on a deep sense of injustice,” and not mentally ill, Dr. Stone said of his research....About two-thirds of this group had faced “long-term stress,” like trouble at school or keeping a job, failure in business, or disabling physical injuries from, say, a car accident. Substance abuse was also common: More than 40 percent had problems with alcohol, marijuana or other drugs....But other factors must be weighed. “In my large file of mass murders, if you look decade by decade, the numbers of victims are fairly small up until the 1960s,” said Dr. Stone. “That’s when the deaths start going way up. When the AK-47s and the Kalashnikovs and the Uzis — all these semiautomatic weapons, when they became so easily accessible.”
• How White-Supremacist Violence Echoes Other Forms of Terrorism (Kathy Gilsinan, The Atlantic, 3-15-19) Their enemies are different, but their tactics are often the same.
• What mental health experts say to their kids about school shootings (Nicole Spector, Better, 3-23-18) How to help your kids feel safe when their world feels out of control.
• Before the Next One (Ira Glass and others, This American Life, 10-12-18) There’s no rulebook on how to handle a school shooting. And no real way to prepare for one. This week, people take what they’ve learned from these tragedies and try to use that knowledge to save others. Listen and/or read the transcript>.
• Share These Gun Violence Numbers with Anyone Who Will Listen (Jack Holmes, Esquire, 10-2-17) Las Vegas is a symptom of a much larger disease. "It will happen again, because it happens most days. We have reached the 275th day of 2017. The horror that rained down on the Las Vegas strip Sunday night was the 273rd mass shooting of the year. It was the second mass shooting of the day on October 1, and the third of the weekend. It was the 11th mass shooting that week, since the previous Sunday, when there were four. There were two more that Saturday. Since September 2, 2017, there have been 29 mass shootings in America."
• Parents and Students Plead With Trump: ‘How Many Children Have to Get Shot?’ (Julie Hirschfeld Davis, NY Times, 2-21-18) Along with moving videos showing the people who experienced the mass shooting in Florida there is one showing an NRA spokesman saying the Times and press are lying to you about the NRA. "Exposing mainstream media lies, etc." These are the messages gun control supporters must fight.) "We cannot protect our guns before we protect our children!" says one mother. "There is no better time than now to talk about gun control." Trump is shown arguing for "concealed carry" guns at schools--to scare off such shooters. He thinks more guns in the schools will make them safer, and wants some teachers armed with them. He found no support for that in Parkland.
• How Perpetrators of Mass Violence Learn From Each Other (David A. Graham, The Atlantic, 10-2-17) Attacks on concerts are the latest tactic to spread among those intent on taking lives.
• With AR-15s, Mass Shooters Attack With the Rifle Firepower Typically Used by Infantry Troops (C. J. Chivers, Larry Buchanan, Denise Lu, and Karen Yourish, NY Times, 2-28-18) Since 2007, at least 173 people have been killed in mass shootings in the United States involving AR-15s. The Parkland gunman, in practical terms, had the same rifle firepower as an American grunt using a standard infantry rifle in the standard way. Representative Brian Mast of Florida, a Republican and an Army combat veteran, has called for a ban on the sale of AR-15-style rifles. “The exact definition of assault weapon will need to be determined,” Mr. Mast said. “But we should all be able to agree that the civilian version of the very deadly weapon that the Army issued to me should certainly qualify.”
• One Teacher’s Brilliant Strategy to Stop Future School Shootings—And It’s Not About Guns (Glennon Doyle Melton, Reader's Digest, 2-16-18) "Chase’s teacher is looking for lonely children. She’s looking for children who are struggling to connect with other children. She’s identifying the little ones who are falling through the cracks of the class’s social life. She is discovering whose gifts are going unnoticed by their peers. And she’s pinning down—right away—who’s being bullied and who is doing the bullying."
• Wounds From Military-Style Rifles? ‘A Ghastly Thing to See’ (Gina Kolata and C.J. Chivers, NY Times, 3-4-18) Perhaps no one knows the devastating wounds inflicted by assault-style rifles better than the trauma surgeons who struggle to repair them. The doctors say they are haunted by their experiences confronting injuries so dire they struggle to find words to describe them. At a high school in Parkland, Fla., 17 people were recently killed with just such a weapon — a semiautomatic AR-15. It was legal there for Nikolas Cruz, 19, the suspect in the shooting, to buy a civilian version of the military’s standard rifle, while he would have had to be 21 to buy a less powerful and accurate handgun.
• What I Saw Treating the Victims From Parkland Should Change the Debate on Guns (Heather Sher, The Atlantic, 2-22-18) They weren’t the first victims of a mass shooting the Florida radiologist had seen—but their wounds were radically different. "One of the trauma surgeons opened a young victim in the operating room, and found only shreds of the organ that had been hit by a bullet from an AR-15, a semi-automatic rifle which delivers a devastatingly lethal, high-velocity bullet to the victim. There was nothing left to repair, and utterly, devastatingly, nothing that could be done to fix the problem. The injury was fatal....A typical AR-15 bullet leaves the barrel traveling almost three times faster than, and imparting more than three times the energy of, a typical 9mm bullet from a handgun....If a victim takes a direct hit to the liver from an AR-15, the damage is far graver than that of a simple handgun shot injury. " It’s clear to me that AR-15 or other high-velocity weapons, especially when outfitted with a high-capacity magazine, have no place in a civilian’s gun cabinet."
• Orlando Paramedics Didn’t Go In to Save Victims of the Pulse Shooting. Here’s Why. (Abe Aboraya, Trauma After Tragedy, ProPublica, 9-25-18, produced in partnership with WMFE, which is a member of the ProPublica Local Reporting Network) Emails and interviews show that the Orlando Fire Department had been working for three years on a plan to respond to a mass shooting. It had even purchased vests filled with tourniquets and special needles to relieve bleeding in the chest. But at the time of the Pulse nightclub shooting, the plan had already sputtered and the vests sat untouched. Ultimately 49 people died during the Pulse attack, one of the worst mass shootings in modern history. “My head’s still not right,” said one paramedic who responded to the Pulse nightclub shooting. He and some other responders say their departments haven’t given them the help they need. A study published this year in the journal Prehospital Emergency Care concluded that 16 of the victims might have lived if they had gotten basic EMS care within 10 minutes and made it to a trauma hospital within an hour, the national standard. That’s nearly one third of victims that died that night.
• In Parkland, journalism students take on role of reporter and survivor (Alexandria Neason and Meg Dalton, Columbia Journalism Review, 2-21-18) "In the aftermath of mass shootings and other disasters, journalists working on deadline are inevitably criticized for parachuting into communities they don’t know and pushing microphones and notebooks into the faces of the grieving. But Ma, Nookala, and their classmates—already known and trusted as press on campus—have a unique advantage. They don’t have to imagine the position their subjects are in, because they’re in it, too. They’re reporters and survivors." “We tried to have as many pictures as possible to display the raw emotion that was in the classroom,” Ma says. “We were working really hard so that we could show the world what was going on and why we need change.”
• US newspapers run more photos of school shooting suspects than victims (Denise-Marie Ordway reports on a recent study, Journalist's Resource, 8-28-18) When U.S. newspapers cover school shootings, they run more photos of the perpetrators than the victims....it’s important to look at how the news media reports on mass murder considering a growing body of research indicates news coverage contributes to copycat shootings. A 2016 study by criminologist Adam Lankford finds that fame-seeking as a motive for rampage shooting dates back decades. News organizations should consider whether the value of providing these images to the public outweighs the harm they may cause.
• Five First Responders to the Pulse Massacre. One Diagnosis: PTSD. (Abe Aboraya, WMFE and Pro Publica, 6-11-18) “My head’s still not right,” said one paramedic who responded to the Pulse nightclub shooting two years ago. He and some other responders say their departments haven’t given them the help they need. Men threw away their uniforms, they were covered in so much blood. And then the nightmares started.
• After Orlando Shooting, ‘False Flag’ and ‘Crisis Actor’ Conspiracy Theories Surface (Christopher Mele, NY Times, 6-28-16) After the mass shooting at a gay nightclub in Orlando, Fla., on June 12, Twitter brimmed with news reports of the carnage. But some posts on the massacre that claimed 49 lives also included a curious phrase: “false flag.” It was a code used by conspiracy theorists to signal their belief that the government had staged the massacre and the information the public was reading and hearing from the mainstream media was untrue.'
• More than 210,000 students have experienced gun violence at school since Columbine (John Woodrow Cox, Steven Rich, Allyson Chiu, John Muyskens and Monica Ulmanu, Wash Post, 4-23-18)
• The Uncounted (Azmat Khan and Anand Gopal, NY Times Magazine, 11-16-17) An on-the-ground and award-winning investigation reveals that the U.S.-led battle against ISIS — hailed as the most precise air campaign in history — is killing far more Iraqi civilians than the coalition has acknowledged.
• The Mental Health System Can’t Stop Mass Shooters (Amy Barnhorst, OpEd, NY Times, 2-20-18) "But there are no reliable cures for insecurity, resentment, entitlement and hatred. The one concrete benefit of officially committing him would be that he could be prohibited from buying a gun from any federally licensed retailer. Of course, this would do nothing about any guns and ammunition he may already have amassed. Nor would it deter him from getting guns from private-party sales, which are exempt from background checks in many states."
• A Drumbeat of Multiple Shootings, but America Isn’t Listening (Sharon LaFraniere, Daniela Porat, and Agustin Armendariz, NY Times, 5-22-16) Seven people were shot in a matter of minutes last August at an Elks Lodge in Cincinnati. Most shootings with four deaths or injuries are invisible outside their communities. And most of the lives they scar are black.
• March for Our Lives Highlights: Students Protesting Guns Say ‘Enough Is Enough’ (NY Times, 3-24-18)
• What Is Domestic Violence? (National Domestic Violence Hotline) Domestic violence (also called intimate partner violence (IPV), domestic abuse or relationship abuse) is a pattern of behaviors used by one partner to maintain power and control over another partner in an intimate relationship. Read about the warning signs.
• The National Domestic Violence Hotline Our advocates are available 24/7 at 1-800-799-SAFE (7233) in more than 200 languages. Safety Alert: Computer use can be monitored and is impossible to completely clear. If you are afraid your internet usage might be monitored, call the National Domestic Violence Hotline at 1−800−799−7233 or TTY 1−800−787−3224.
• International Domestic Violence Resource Guide: Coronavirus Update (Michelle Cardillo, Mystic Mag, 8-22-2020) With COVID-19 domestic violence has increased 30% in the U.S., and 25% in the U.K.This directory includes a broader range of international resources than most.
• Domestic Violence Counts (Annual Census)
• National Network to End Domestic Violence (NNEDV, a leading voice for survivors of domestic violence and their allies)
• Domestic Violence Forums And Chats (DomesticShelters.org)
• If you beat your wife, you lose your gun. That’s how it should be. (Editorial, WashPost, 2-27-18) In criminal violence cases in Montgomery County, Maryland, guns were virtually never discussed. "Convicted abusers were not told that they, by law, were disqualified from possessing or purchasing firearms. They weren’t asked if they had any weapons. And — most alarming, given that the chances of a domestic violence victim being killed rise fivefold when an abuser has access to a gun — they weren’t told to surrender any guns." Three years ago legislation was introduced in Maryland that would plug the gap in state law by setting up a mechanism to facilitate the surrender of firearms by convicted domestic abusers, but the bill died, two years running. It's back again. "Hopefully, the attention focused on gun control that resulted from the recent tragic events in Florida will help win passage of this needed fix."
"[T]hose who choose the lesser evil forget very quickly that they chose evil." -- Hannah Arendt
• Treating Domestic Violence as a Medical Problem (Anna Gorman, Kaiser Health News, 1-29-18) A growing number of health providers and anti-abuse agencies in California and around the country are collaborating to identify victims and get them help. More doctors now screen their patients for signs of abuse and more agencies place victims’ advocates inside health centers. Education and counseling for people experiencing violence is also more widely available in clinics and hospitals. The U.S. Preventive Services Task Force recommends doctors routinely question women about violence in the home and refer them to services if needed. The task force concluded in 2013 that intervention could reduce violence and abuse as well as mental and physical health problems.
• 5 resources for journalists covering domestic violence (Kristen Hare, Poynter, 9-8-14)
---Intimate Partner Violence (Resources for journalists reporting on victims and survivors of domestic crime, Dart Center for Journalism & Trauma)
----Violence Prevention, Intimate Partner Violence (Centers for Disease Control and Prevention, CDC)
---Telling the Full Story: An Online Guide for Journalists (Rhode Island Coalition Against Domestic Violence)
• The most dangerous time (Melissa Davey, A Guardian Australia special, Five women tell their stories of leaving an abusive relationship. "I hear people in the media say to 'just leave' and they cannot understand why you can't walk out that door. But what they don’t realise is that when you look outside of that front door, it is black. You can't see any light at the end of the tunnel, you don't know what's going to happen to you."~Gee Bailey
• No Visible Bruises: Domestic Violence and Traumatic Brain Injury (Rachel Louise Snyder, New Yorker, 12-30-15) The vast majority of domestic-violence victims who show signs of traumatic brain injury never receive a formal diagnosis. Fifty per cent of domestic-violence victims are strangled at some point in the course of their relationship—often repeatedly, over years.
• Domestic Violence's Overlooked Damage: Concussion And Brain Injury (Will Stone, Shots, All Things Considered, 5-30-18) "Domestic violence is estimated to affect 10 million people each year. Head and neck injuries are some of the most common issues, and Zieman is uncovering how frequently traumatic brain injury is a part of the picture....About 70 percent of people seen in the ER for such abuse are never actually identified as survivors of domestic violence. It's a health crisis cloaked in secrecy and shame, one that Zieman is uncovering through her work at the Barrow Concussion and Brain Injury Center."
• ‘Intimate terrorism’: how an abusive relationship led a young woman to kill her partner (Sophie Elmhirst, The Guardian, 10-31-19) Fri Martin’s whole life was controlled by her violent partner until she stabbed him to death. Now her lawyers are challenging her murder conviction.
• Addressing Domestic Violence Against Women: An Unfinished Agenda (Ravneet Kaur and Suneela Garg, Indian Journal of Community Medicine, April 2008) "Domestic violence is wide spread, deeply ingrained and has serious impacts on women's health and well-being. Its continued existence is morally indefensible. Its cost to individuals, to health systems and to society is enormous. Yet no other major problem of public health has been so widely ignored and so little understood."
• Violence Against Women Act (New York Times) News about Violence Against Women Act, including commentary and archival articles published in The New York Times.
• Thermostats, Locks and Lights: Digital Tools of Domestic Abuse (Nellie Bowles, NY Times, 6-23-18) "The people who called into the help hotlines and domestic violence shelters said they felt as if they were going crazy." There is "a new pattern of behavior in domestic abuse cases tied to the rise of smart home technology. Internet-connected locks, speakers, thermostats, lights and cameras that have been marketed as the newest conveniences are now also being used as a means for harassment, monitoring, revenge and control."
"Tell me what you cannot tell me so that tomorrow you might dream the dream you dared not dream."
~Milton Trachtenburg in Stop the Merry-Go-Round: Stories of Women Who Broke the Cycle of Abusive Relationships
“There is no suffering greater than that which drives people to suicide, suicide defines the moment in which mental pain exceeds the human capacity to bear it. It represents the abandonment of hope.” ~ John T. Maltsberger
“The voice of intelligence is drowned out by the roar of fear. It is ignored by the voice of desire. It is contradicted by the voice of shame. It is biased by hate and extinguished by anger. Most of all it is silenced by ignorance.” ~ psychiatrist Karl Menninger
• National Suicide Prevention Lifeline. If you or someone you know is thinking about suicide, seek help. Call 1-800-273-8255 (TALK) (en español: 1-888-628-9454; deaf and hard of hearing: 1-800-799-4889) or the Crisis Text Line by texting HOME to 741741.
• Suicide Prevention in College (Affordable Colleges Online) A resource guide on emergency assistance, warning signs & prevention of suicide in college students. If you believe you might need help now, you DO. If you are experiencing suicidal thoughts, don’t simply hope they will go away: Take action right now. Call 911 or the suicide hotline at 1-800-273-TALK (8255) ask for help.
• Artificial concern for people in pain won’t stop suicide. Radical empathy might. (Richard Morgan, Wash Post, 6-15-18) 'Suicide is a kind of fatal exhaustion. It knocks on your door not as a monster but as a healer making a house call....What we need to do is make that knock at the door less appealing. Give it less space to be heard. That’s the obvious takeaway from the Centers for Disease Control and Prevention report about an across-the-board surge in suicides from 1999 to 2016....It’s not about saying, “I’m always here if you need me.” There is no if. We need each other desperately all the time....What if we made “How are you?” real? That’s how you end the cliche.' Suicide is 250 percent more common than murder.
• Did Vincent Van Gogh Really Commit Suicide? (Garry Rodgers, Dying Words, 12-9-2020) "Conventional history records that Van Gogh died from a self-inflicted gunshot wound in 1890 at the age of 37. However, an independent and objective look at the case facts arrives at an entirely different conclusion—Vincent Van Gogh was actually shot by someone else, and it was deliberately covered up." Interesting argument.
• Suicide Prevention Resource Guide Healthline's extensive links to and numbers for crisis hotlines (phone, online, chat, text).
• First grader pushes school board to stamp out bullying (Caitlynn Peetz, Bethesda Magazine, 2-24-2020) First-grader Cavanaugh Bell is on a mission. Cavanaugh was bullied in preschool, which caused him to stop eating for several weeks. He has since channeled his experience to pressure classmates and adults to be kinder. “There is a silent epidemic that no one wants to address that kids like me are being bullied and kids like me are also turning to suicide as the answer."
• Among U.S. States, New York’s Suicide Rate Is The Lowest. How’s That? (Michelle Andrews, KHN, 12-11-19) New York has consistently reported suicide rates well below those of the U.S. overall. Compared with the national rate of 14 suicides per 100,000 people in 2017, New York’s was just 8.1, the lowest suicide rate in the nation. Why? Low rates of gun ownership are likely key. Because guns are so deadly, someone who attempts suicide with a gun will succeed about 85% of the time, compared with a 2% fatality rate if someone opts for pills....And New York has some of the strongest gun laws in the country. Also, suicide rates are typically lower in cities. In 2017, the suicide rate nationwide for the most rural counties — 20 per 100,000 people — was almost twice as high as the 11.1 rate for the most urban counties, according to the CDC. Loneliness, isolation and access to lethal weapons can be a potent combination that leads to suicide...
• Turning Suicidal Ideation into Hope (Katherine Ponte, NAMI, 9-11-19) Meaningful work (helping others) and strong relationships are important, but it is also important to understand your mental illness.
• What Neurobiology Can Tell Us About Suicide (Catherine Offord, The Scientist, 1-13-2020) The biochemical mechanisms in the brain underlying suicidal behavior are beginning to come to light, and researchers hope they could one day lead to better treatment and prevention strategies. Among areas being studied: Many studies have linked suicidal behaviors to dysregulation of the hypothalamic-pituitary-adrenal (HPA) axis and other mediators of the body’s responses to stress. Disruption of serotonin signaling has repeatedly been found in the brains of people who die by suicide. People who die by suicide show signs of increased inflammation in the brain while epidemiological data reveal that some inflammation-related health conditions are associated with higher suicide risk. Some of the most promising tools for assessing immediate risk might instead come from other areas of neuroscience that measure more-complex emotional signals in the brain as opposed to biochemical signatures. Patients are often surprised to hear that researchers are studying the biology underlying suicide “because they’ve been thinking that this is a behavioral flaw in their character, and they feel guilty about it. That’s part of the stigma that we want to break.”
• American Foundation for Suicide Prevention (AFSP). Walk to save lives: Out of the Darkness Walks
• Ketamine Could Be the Key to Reversing America’s Rising Suicide Rate (Cynthia Koons and Robert Langreth, Bloomberg News, 2-5-19) A version of the club drug is expected to be approved for depression in March. Researchers think it could help treat suicidal thinking. “If they had told me how much it would affect me, I wouldn’t have believed it,” Joe Wright says. “It is unconscionable that it is not already approved for suicidal patients.” "Over the past three decades, pharmaceutical companies have conducted hundreds of trials for at least 10 antidepressants to treat severe PMS, social anxiety disorder, and any number of conditions. What they’ve almost never done is test their drugs on the sickest people, those on the verge of suicide. There are ethical considerations: Doctors don’t want to give a placebo to a person who’s about to kill himself. And reputational concerns: A suicide in a drug trial could hurt a medication’s sales prospects. The risk-benefit calculation has changed amid the suicide epidemic in the U.S."
• Best practices for covering suicide responsibly (Kelly McBride, Poynter, 6-8-18) How can journalists, celebrities and anyone who might make a post on social media embrace some best practices that will minimize contagion? (Yes, contagion is real.) Some things journalists need to mention when writing about suicides.
• Resources to help a friend or family member in crisis (A Voice at the Table)
Suicide among children and teens
• When children say 'I want to kill myself': The alarming rise of youth suicides (Allison Ross, Louisville Courier Journal, 3-20-19) "If children were dying of the flu like this, it would be in the paper every day," said Sara Oliver of Louisville, who lost her 16-year-old daughter to suicide in 2017. "Doctors say youth and teens don't have enough access to behavioral health services. Advocates say there's not enough money going to intervention programs such as suicide hotlines, where desperate people must sometimes be put in a queue until they can talk to a counselor. And researchers say they need more grants to better research how influences such as social media and bullying play a role in why some children kill themselves and others do not."
• Suicide Rates Are Rising. Here’s What Parents Can Do. (Jennifer L. W. Fink, Your Teen). See also I Didn’t Want to Exist: Helping a Suicidal Teenager ( Dr. Stephen Sroka) and What Parents Need to Know About Preventing Teen Suicide (Mary Helen Berg, Your Teen)
• More children are dying by suicide. Researchers are asking why (Jayne O'Donnell, USA Today, 9-10-18) Samantha Kuberski hanged herself with a belt from a crib. She was 6. Razy Sellars was 11 when he took his life. Gabriel Taye was 8. Jamel Myles was 9. Suicide in elementary school-aged children remains rare: 53 children aged 11 and younger took their lives in 2016, the last year for which the Centers for Disease Control and Prevention has data. But medical professionals and researchers have noted alarming increases in the last decade – deaths more than doubled from 2008 to 2016 – and rising numbers of young children visiting emergency rooms for suicidal thoughts and attempts.
• It wasn’t depression that led this physician to suicidal ideation (Uchenna Umeh, KevinMD 11-24-19) If antidepressants work, as Big Pharma would like us to believe, why are suicide rates on the rise across all races, ages, and works of life? Until we begin to look at other myriad reasons for suicide as bonafide players in the game, suicide rates will not come down any time soon. When children and teens take their lives because of incessant bullying in schools or in classrooms, how many kinds of antidepressants would it take to change their reality? Some people are suicidal because of mental anguish, because of reactive depression, rather than mental illness, and no antidepressant will address that.
• Suicide of teen who made sex video shows dilemma for schools (Michael Tarm and Martha Irvine, Seattle Times, 9-12-17) "Staff at a suburban Chicago high school called 16-year-old Corey Walgren to the dean’s office to ask about a video he made of himself having sex with a classmate. A few hours later, the teen walked to the top of a five-story parking deck and jumped....The issue also raises a high-stakes legal question because many child porn laws predate the phenomena of teens sharing sexual images by cellphone. And neither they nor their parents usually have any idea that doing so can trigger serious penalties, including being labeled a sex offender for life....Critics say child pornography laws should not be invoked to prosecute kids who share sexual images with other kids. When those laws were passed, lawmakers could not have foreseen how teens, perhaps acting on impulse or under peer pressure, would be able to create or send explicit images at the push of a button. The laws were aimed at protecting children from adults. Critics say it’s a misapplication to use them to prosecute children."
• A Friends-and-Family Intervention for Preventing Teen Suicide (Jill U. Adams, Undark, 6-10-19) Researchers are focusing new attention on boosting social connectedness for teens following hospitalization for suicide attempts or ideations. Teens who have been hospitalized for a suicide attempt or suicidal ideation are at heightened risk of dying by suicide. "All of this suggests that where hospitalization provides effective crisis management in such situations, keeping young people safe back at home is a challenge that modern medicine has so far failed to solve. But a group of researchers at the University of Michigan has been working with a simple yet powerful tool that just might help: recruiting three or four familiar adults — not just the young person’s parents — who pledge ongoing support through recovery. The Michigan program trains both family and friends to become dedicated helpers and empathetic listeners — and to encourage their struggling charges to stick to the treatment plan." Adults learn what to do in case of emergency, and how to be a nonjudgmental shoulder for the teen to lean on. “If they’re screaming at you or if they have hurt themselves — we’re not going to judge that.”
• Teenagers, Medication and Suicide Richard A. Friedman, NY Times, 8-3-15). Parents should not be afraid of prescriptions for antidepressants for their teenagers. By preventing depression, they probably save, rather than risk, lives.
• A Parents’ Guide to Suicide Prevention (Kryss Shane, T-Kea Blackman, and Katy McWhirter, Community for Accredited Online Schools) Each day in America, nearly 3,500 high school students attempt suicide. Among college students, suicide is the second leading cause of death in the country. Supporting a student who struggles with mental health can be difficult for parents and they may not know where to start. This guide provides resources and expert advice to help parents compassionately care for high school and college students and make sure they get the professional services they need.
• The Trevor Project (1-866-488-7386) "The world's largest suicide prevention organization for LGBTQ youth."
• Preventing Teen Suicide: What the Evidence Shows (Aaron E. Carroll, New York Times, 8-17-17)
• Suicide and Depression Awareness for Students (LearnPsychology) People contemplating suicide or experiencing the depths of a severe depression need to know they are not alone. From teenagers to college students, LGBT to the elderly, people struggling with depression and suicidal thoughts need options, reassurance, hope and help.
• Suicide Is Preventable. Pain isn't always obvious. Know the signs.
• Among teens, transgender males are most likely to attempt suicide, study says (Susan Scutti, CNN, 9-11-18) Gender identity strongly influences the likelihood a teen will attempt suicide, a new study finds. Nearly 14% of teens who participated in a survey reported trying to kill themselves, with transgender teens reporting the highest rates of suicide attempts. Among female to male teens, the language the study uses for transgender male teens, more than half (50.8%) said they'd tried to take their lives, according to the study, published Tuesday in the journal Pediatrics.
• Suicide on Campus and the Pressure of Perfection (Julie Scelfo, NY Times, 7-27-15) See also Answers About Campus Depression and Suicide Risk Among College Students
• Most big public colleges don’t track suicides, AP finds (Collin Binkley, AP, 1-2-18) An AP investigation finds that the nation's largest universities don't track student suicides, despite evidence that rates of anxiety and depression may be rising among college students. Many schools "have increased spending on mental health services to counter what the American Psychological Association and other groups have called a mental health crisis on campuses." Mental health advocates in several states are pushing to require universities to collect suicide data. If the statistics become public, some schools fear it could damage their reputations. Schools that do track suicides, however, often use their data to refine prevention efforts.
• Semester-long waitlist for mental health help at college where student killed himself (Joe Brandt, NJ.com, 12-17-17) A student suicide on Rowan University's campus is leading to calls for improved mental health services at the institution, as the community mourns. The incident was enough to get students talking, especially on social media, about experiences where they felt scared, depressed, stressed -- and then the difficulties in getting counseling.
• Widening Rural-Urban Disparities in Youth Suicides, United States, 1996-2010 (Cynthia A. Fontanella et al., HHS Public Access, NCBI, NIH, from JAMA Pediatric) "Suicide rates for adolescents and young adults are higher in rural than in urban communities regardless of the method used, and rural-urban disparities appear to be increasing over time....For youths between the ages of 10 and 24 years, suicide was the third leading cause of death in 2010 behind only unintentional injuries and homicide. Males are at higher risk, accounting for 81% of suicide deaths in the 10- to 24-year age group. Suicide risk increases with age...Across the study period from 1996 to 2010, suicide rates for youths in rural areas of the United States were approximately double those in urban areas for both males and females. " Among possible explanations: the limited availability and accessibility of mental health services in rural areas--and rural primary care physicians often feel inadequate and unprepared to diagnosis or treat mental illness. Moreover, males are four times as likely as females to complete suicide (peaking in the 15-25 age group) and young men in that age group "may be reluctant to use services because of the stigma associated with mental illness and the lack of anonymity in a rural environment. Rural residents may tend to value self-reliance and individualism, distrust governmental authority, and view help-seeking more negatively than urban residents."
• Schools Turn To Software For Suicide Prevention — But Not Everyone's On Board (Anya Kamenetz, All Things Considered, 3-28-16) Many schools in the U.S. already use a software tool (GoGuardian) to block certain websites. Now, they're implementing that same tool to prevent suicide — the second leading cause of death among youth. Touted as a life saver for some students who displayed suicidal tendencies, it does raise concerns about privacy and such potential problems as the outing of (for example) gay students or students searching for information about sexually transmitted diseases.
• Suicide Awareness and Prevention (Wristband Resources)
• International Association for Suicide Prevention (IASP) Go here to find suicide crisis centers throughout the world.
• Suicide Awareness: Voices of Education (SAVE)
• Suicide Prevention (U.S. Dept. of Veterans Affairs). See Progress and Hope on Preventing Veteran Suicides (Kelly Posner Gerstenhaber, Letter to the Editor, NY Times, 2-17-15)
• Suicide Prevention Resource Center (SPRC)
• Suicide Prevention, as part of Violence Prevention (Centers for Disease Control and Prevention)
• What I’ve learned from 547 doctor suicides (Pamela Wible, KevinMD, 10-31-17)
• When doctors commit suicide, it’s often hushed up (Pamela Wible, Washington Post, 7-14-14) There are internal links to many other articles, and to Physician Suicide Letters Answered (her free audiobook). See also Physician Suicide.
• Aaron Hernandez’s Suicide Highlights a Huge Gap in Correctional Health (Jeremy Samuel Faust, Slate, 4-20-17) Death by suicide, like former NFL star and convicted murderer Aaron Hernandez’s, is common. In state and federal prisons, 5.5 percent of deaths result from suicide. This is far more than any other cause of violence carried out by other detainees or even correctional officers, and it’s far higher than the number of deaths that result from suicide in the general population (1.6 percent)... Researchers Fatos Kaba, Homer Venters, and their colleagues at the New York City Department of Health and Mental Hygiene discovered several features that were correlated with increased risk of self-harm by inmates. Among the strongest predictors of self-harm were solitary confinement, serious mental illness, youth (age 18 or younger), and being of Latino or Caucasian race.
• Freedom, Finally, After a Life in Prison (Amy Linn, NY Times Sunday Review, 8-21-15)
• Study finds staggering suicide rate for construction workers (Chris Flanagan, Boston25News, 4-8-19) A CDC report showed the 2015 suicide rate for men in construction was 53 per 100,000, 4 times the average rate. Contributing factors: a competitive, high-pressure environment; higher prevalence of alcohol and substance abuse; separation from family, and long stretches without work.
• New Research Shows Suicides Spiked Following Robin Williams’ Death (Jackie Flynn Mogensen, Mother Jones, 2-7-18) “You don’t know who out there is vulnerable. You don’t know how they’re going to read those headlines.”“Once they see somebody else that they relate to that is able to take that action, it becomes feasible in a way…That’s why it’s a similar age group, a similar sex, a similar method.” See World Health Organization do-and-don't guidelines on reporting on suicide: What not to write and what to write instead.
• Suicide – A Preventable Tragedy (SAMHSA)
• It’s not pain but ‘existential distress’ that leads people to assisted suicide, study suggests (Ariana Eunjung Cha, WaPo, 5-26-17)
• Chris Cornell: When Suicide Doesn’t Make Sense (Julie A. Fast, HuffPost, ) "You may read about Chris Cornell and ask yourself, 'How could someone who is married with three beautiful children, in one of the biggest bands in the world, who had literally just finished an incredibly successful live show go to his room and kill himself?' If he has a brain like mine, he has an illness and his brain was triggered by something that resulted in a suicidal episode. It may have had nothing to do with his amazing life. Sometimes an illness is simply stronger than the person. Sometimes medications mess with our sensitive brain chemicals. ...My mood disorder comes with suicidal depression. It gets triggered. I don’t have to be down or upset. It just happens when it gets triggered....Not everyone has a plan to counteract chemical suicidal thoughts, but I do."
• The Suicide Paradox (Stephen J. Dubner, Freakonomics radio, 6-29-16, listen online free). There are more than twice as many suicides as murders in the U.S., but suicide attracts far less scrutiny. Freakonomics Radio digs through the numbers and finds all kinds of surprises.
• U.S. Suicide Rate Surges to a 30-Year High (SabrinaTarvernise, NY Times, 4-22-17)
• Doctor revived after suicide tells all (posted by Pamela Wible, Kevin MD, 2-18-17) ER doctor 'Michael' who barely survived his suicide attempt shares insights into why he tried and recommends common steps to prevent more suicides: "I was as happy as I had ever been in my personal life. My decision to end it all was 100 percent work related....There’s a saying we have in the emergency room when we witness trauma and death among the innocent: 'A little piece of my soul died.; We’re never offered counseling, and in the end, you get the jaded emergency doctor who struggles to care. My psychologist says it wasn’t just the last girl. It was trauma after trauma after trauma."
• A Suicide Therapist’s Secret Past (Stacy Freedenthal, NY Times, 5-11-17). She created the website Speaking of Suicide.
• Patient Suicide Brings Therapists Lasting Pain (Erica Goode, NY Times, 1-16-01). Related to that: Essential Papers on Suicide, ed. by John T. Maltsberger and Mark Goldblatt. Why do people take their own lives? How can clinicians best plan and carry out intelligent treatment of desperate patients who are giving up on themselves?
• Speaking of Suicide: Steve Stephens and Responsible Reporting (Pauline Campos, The Fix, 4-25-17) "The Foundation for Suicide Prevention recommends responsible reporting of suicide to prevent "suicide contagion” - copycat suicides or suicide clusters - a proven phenomenon in which at risk individuals can be triggered to act by reading or watching a news story in which certain factors -- such as mention of method and glamorizing or sensationalizing death -- are present in the coverage. News stories with dramatic/graphic headlines, or images, also can lead to contagion suicide."
• Think about the words you use when covering suicide (Andrew Lowndes, AHCJ, Covering Health, 4-25-14). Journalists: Say died by suicide, or death by suicide because ‘committed suicide' stigmatizes families where suicide has occurred. You don’t say ‘committed’ cancer.
• Suicidal Impulses Don’t Have to Be Deadly (Maia Szalavitz Time, 3-28-14) "Although nearly 40,000 Americans die from suicide every year—a death toll similar to that from unintentional overdose and car accidents—most suicide attempts that are foiled are not repeated. The majority of suicides are committed on impulse....This is why guns are strongly linked to suicide: they make the odds that a passing impulse will be deadly much higher, and account for nearly half of all suicide deaths....The link to impulsivity may be one reason that suicidal thinking is relatively common but suicide itself is far more rare, and predicting who is at highest risk is difficult." Safety nets, which will go up around San Francisco's Golden Gate Bridge, are a proven lifesaver
• Suicide Prevention (SAMHSA) A list of organizations, links, articles, and other resources for suicide prevention (somewhat Native American oriented)
• Primo Levi’s Unlikely Suicide Haunts His Lasting Work (Adam Kirsch, Tablet, 9-21-15) A monumental new edition of the Auschwitz survivor’s complete writings shows a humanist laboring in the dark.
• Suicidal Thoughts: The Creative Lives and Tragic Deaths of a Prince and a Pauper (Nancy Spiller, Los Angeles Review of Books, 12-30-14) A must-read article.
• Doctors Reckon With High Rate Of Suicide In Their Ranks (Blake Farmer, Nashville Public Radio and KHN, 8-3-18) An estimated 300 to 400 doctors kill themselves each year, and the suicide rate is more than double that of the general population. The stress of long hours, fatigue, and the emotional toll of their work can lead to crippling depression. A particular danger for doctors trying to fend off suicidal urges is that they know exactly how to end their own lives and they often have easy access to the means.
• Why doctors kill themselves (Pamela Wible, Kevin MD, 3-23-16) Snippets: "Across the country, our doctors are jumping from hospital rooftops, overdosing in call rooms, found hanging in hospital chapels. It’s medicine’s dirty secret. And it’s covered up by our hospitals, clinics, and medical schools....doctors describe med school as “a soul-crushing boot camp, a dehumanizing nightmare, my own personal Vietnam.” Medical training is neither motherly nor kind....Sleep deprivation is a torture technique. Fear as a teaching tool... It’s not costly or complicated to stop bullying, hazing, and abuse. It’s been outlawed from elementary schools to fraternities. Why not health care? ...Medical culture and education must change."
• Stay: A History of Suicide and the Arguments Against It by Jennifer Michael Hecht. Read this interesting review of and story about the book by Temma Ehrenfeld (The Humanist, 4-22-14).
• miTowns Face Rising Suicide Rates (Laura Beil, NY Times, 11-3-15) "Rural adolescents commit suicide at roughly twice the rate of their urban peers.... the realities of small-town life can take an outsize toll on the vulnerable. A combination of lower incomes, greater isolation, family issues and health problems can lead people to be consumed by day-to-day struggles..." A spouse's "sense of self-sufficiency combined with a fear of stigma" can keep him from treatment. So can a lack of privacy.
• The Interpersonal Theory of Suicide (Kimberly A. Van Orden, et al., Psychol Rev. 2010 Apr; 117(2): 575–600. doi: 10.1037/a0018697). The authors propose that the most dangerous form of suicidal desire is caused by the simultaneous presence of two interpersonal constructs—thwarted belongingness and perceived burdensomeness (and hopelessness about these states)—and further, that the capability to engage in suicidal behavior is separate from the desire to engage in suicidal behavior.
• The dangerously contagious effect of assisted-suicide laws (Aaron Kheriaty, WaPo, 11-20-15) "...British scholars David Jones and David Paton demonstrating that legalizing assisted suicide in other states has led to a rise in overall suicide rates — assisted and unassisted — in those states....after controlling for demographic and socioeconomic factors and other state-specific issues, physician-assisted suicide is associated with a 6.3 percent increase in total suicide rates. These effects are greater for individuals older than 65 (for whom the associated increase was 14.5 percent)." Helping people who are suicidal "find strategies that help them to cope with adversity is associated with decreased suicide rates."
• Why we choose suicide (Mark Henick, TEDxToronto, 10-1-13) Video of a 15-minute talk.
• Notes From My Suicide (Kenneth R. Rosen, The Big Roundtable, 3-10-16)
• David Sedaris Talks About Surviving the Suicide of a Sibling (Blake Bailey, Vice, 6-1-15)
• Biology of Suicide (NPR, audio and transcript, part of its End of Life series: Exploring Death in America)
• By My Own Hand by Anita Darcel Taylor (Bellevue Literary Review). Taylor writes that for those who go through the hell of manic depression, suicide is simply a tool to end great pain -- an "earned choice."
• How old-fashioned, pen-to-paper letters could help pull people back from the brink of suicide (Jenny Chen, WaPo. 4-7-16)
• Finding a Bed in Bedlam (Jo Marie Reilley, Pulse: Voices from the Heart of Medicine, 5-8-15)
• When someone is thinking of suicide, these are the people who talk them out of it (Doug Criss, CNN, 9-10-18) The Atlanta call center gets an average 800 to 1,000 calls a day on their suicide hotline. Half of Behavioral Health Link's 200 employees work the phones. The other half does what's called mobile crisis work -- go to someone's city or town and counsel them face to face.
• The Dying of the Whites (Ross Douthat, OpEd, NY Times, 11-7-15) "[T}he mortality rate for minorities in the U.S. continued to fall between 1999 and 2013, mirroring the trend in Europe, and the African-American death rate in particular fell hugely. [Though it was still high.] Amid the stresses of the dot-com bust and the Great Recession, it was only white Americans who turned increasingly to drugs, liquor and quietus....Noting that religious practice has fallen faster recently among less-educated whites than among less-educated blacks and Hispanics, their paper argues that white social institutions, blue-collar as well as white-collar, have long reflected a “bourgeois moral logic” that binds employment, churchgoing, the nuclear family and upward mobility. But in an era of stagnating wages, family breakdown, and social dislocation, this logic no longer seems to make as much sense....Maybe sustained growth, full employment and a welfare state that’s friendlier to work and family can help revive that nexus. Or maybe working-class white America needs to adapt culturally, in various ways, to this era of relative stagnation, and learn from the resilience of communities that are used to struggling in the shadow of elite neglect."
• The missing context behind the widely cited statistic that there are 22 veteran suicides a day (Michelle Ye Hee Lee, Washington Post, 2-4-16) "The actual number of veteran suicides a day might be higher than 22 for a given population of veterans facing certain risk factors, and lower for another group. The repeated use of this number has been magnified by the lack of comprehensive research, but that does not make it acceptable to repeat an alarming figure with no context or caveats — especially one that researchers cautioned against repeatedly in the study. The more important issue is whether the rate of suicides among veterans is higher than among the general population–and if so, by how much. That would be a better statistic to use than a raw number with little context or meaning."
• Suicide rates for black children twice that of white children, new data show (Amy Ellis Nutt, WashPost, 5-21-18) "African American children are taking their lives at roughly twice the rate of their white counterparts, according to a new study that shows a widening gap between the two groups. The 2001-2015 data, published Monday in the journal JAMA Pediatrics, confirm a pattern first identified several years ago when researchers at Nationwide Children's Hospital in Ohio found that the rate of suicides for black children ages 5 to 12 exceeded that of young whites. The results were seen in both boys and girls."
• Robin Williams and Why Funny People Kill Themselves (David Wong, Cracked, 8-11-14) but see also:
• 'It Was Not Depression That Killed Robin' (Kara Warner, People, 11-4-15) "It was not depression that killed Robin," Susan says, speaking to the public perception of what drove Williams to commit suicide. "Depression was one of let's call it 50 symptoms and it was a small one." "Frequently misdiagnosed, DLB is the second most common neurodegenerative dementia after Alzheimer's and causes fluctuations in mental status, hallucinations and impairment of motor function. The disease started taking its toll on Williams in the last year before his death, by way of its "whack-a-mole"-like symptoms which included heightened levels of anxiety, delusions and impaired movement." It took more than a year to arrive at a diagnosis of diffuse Lewy body dementia or dementia with Lewy bodies (DLB). See also Robin Williams’s Widow Points to Dementia as a Suicide Cause (Dave Itzkoff and Benedict Carey, NY Times, 11-3-15) and The Death of Robin Williams, And What Suicide Isn't (Elizabeth.Hawksworth, BlogHer, 8-14-14)
• How a Marine Unit’s High Suicide Rate Got That Way (Dave Phillips, NY Times, 10-29-15)
• In Unit Stalked by Suicide, Veterans Try to Save One Another (Dave Phillips, NY Times, 9-19-15)Members of a Marine battalion that served in a restive region in Afghanistan have been devastated by the deaths of comrades and frustrated by the V.A.
• More White People Die From Suicide and Substance Abuse: Why? (Gina Kolata, NY Times, 11-3-15) What’s interesting, Dr. Case said, is that the people who report pain in middle age are the people who report difficulty in socializing, shopping, sitting for three hours, walking for two blocks....“We don’t know which came first, were the drugs pushed so much that people are hypersensitive to pain or does overprescription of the drugs make pain worse?” Dr. Case said. See also Death Rates Rising for Middle-Aged White Americans, Study Finds (Gina Kolata, NY Times, 11-2-15)
• Daniel, 1988-2000: A child's suicide, unending grief and lessons learned (Sara Fritz, St. Petersburg Times, 11-16-03)
• The Two Suicides that Changed My Life (Beth Duckles, Narratively) A moving personal story that may help you see others' suicide in a new light.
How witnessing a shocking suicide on the San Francisco-Oakland Bay Bridge—and talking the dead man’s father through his grief—helped me understand my mother and the lifelong pain she has lived with.
• The View from Vista Bridge (Christen McCurdy, Narratively). Portland is known as the city of bridges—but it’s also a capital of suicides. After losing a close friend who jumped, I needed to find out why.
• Oregon Father’s Memorial Trek Across Country Ends in a Family’s Second Tragedy (Jack Healy, NY Times, 10-15-13) Joe Bell was walking across the country to tell the story of his gay son, Jadin, 15, who killed himself after being bullied.
• Prayers for Bobby: A Mother's Coming to Terms with the Suicide of Her Gay Son by Leroy Aarons. Mary Griffith persuaded her son Bobby to pray that God would cure him, but the church's hatred of homosexuality and the obvious pain his gayness was causing his family led him increasingly to loathe himself. After his suicide, her anguish led her on a journey from faithful churchgoer to national crusader for gay and lesbian youth. Read this story about her and Stephanie Reed, for a few of how parents feel after such a suicide, and what they often do about it.
• How I Love Her: On Depression and Suicidal Ideation (Jaehee Seo, The Rumpus, 5-20-19) " I thought I’d die in 2016, when I came the closest to dying by suicide as I ever have, but I made it through that summer and the following autumn on the kindness and generosity of friends, on the support of family, on books and meals and long walks in the stifling Brooklyn humidity. And I made it through because of her."
• Decades after 2 suicide attempts, I'm thankful to have the life I nearly cut short (Jacquielynn Floyd Dallas News.com, 2-2-13). "For me, depression took on a camouflaged veneer of normal that made it difficult to “read the signals.” "What I suffered from was real. It was also temporary and entirely treatable."
• Murder-suicide disturbing trend among the elderly (Diana Reese, Washington Post, 1-26-13). "The typical case? A depressed, controlling husband who shoots his ailing wife — without her permission, according to Cohen. . . . Experts say depression, exhaustion and isolation all play a role; often, it’s men who are thrust into the unfamiliar role of caregiver. They may suffer from undiagnosed clinical depression. And if they learn their own health problems put them at risk of dying before their spouses, they may believe that no one else can take care of their wives as well as they can."
• Complicated Grief in Survivors of Suicide Loss (American Foundation for Suicide Prevention). Watch free video of webinar on subject.
• Copycat suicide (Wikipedia entry)
• Bible passages dealing with suicide (Religious.tolerance.org)
• Families of Military Suicides Seek White House Condolences (James DAO, NYTimes, 11-25-09, on pressure to change a hurtful policy)
• Preventing Suicide: A Resource for Media Professionals (PDF, World Health Organization)
• Reporting on Suicide website. Download PDF of Recommendations for Reporting on Suicide (PDF, American Foundation for Suicide Prevention)
• Many soldiers who attempt suicide have no prior mental health diagnosis (Chloe Reichel, Journalist's Resource, 8-31-18) Over one-third of a sample of American soldiers who attempted suicide did not have a prior mental health diagnosis, a new study published in JAMA Psychiatry finds. But the risk factors that predict suicide attempts in these soldiers are largely the same as those for soldiers who previously have been diagnosed with a mental health issue.
• My big sister took her own life (Ali Grant, Globe & Mail, 4-8-10). "Suicide. My beautiful big sister, Isobel. Dead by her own hands at 62. Literally the unthinkable happening. My mind was unable to allow for the possibility that she would kill herself, in spite of the daily conversations we had, in spite of my knowing that she was struggling with pain, both physical and psychological. "
• On Suicide And why we should talk more about it (Clancy Martin, Ars Philosopha, Harpers Magazine, 6-25-13).
• Religion and Suicide (Betty Rollin hosts discussion for Religion & Ethics Weekly--listen or read transcript)
• Remembering Denny (Calvin Trillin writes about the life and unfulfilled potential of his Yale classmate and former close friend Roger "Denny" Hansen, a Rhodes scholar, academic, and State Department employee whose great promise ended in middle age with his suicide)
• Sad End to a Long, Slow Slide (Corey Kilgannon, New York Times Regional edition 8-12-07), a loving couple dies together
• SAVE (Suicide Awareness, Voices of Education), suicide prevention
• Suicide Contagion and the Reporting of Suicide: Recommendations from a National Workshop (CDC)
• The Suicide Index: Putting My Father's Death in Order by Joan Wickersham. "Sixteen years ago, Joan Wickersham’s father shot himself in the head. The father she loved would never have killed himself, and yet he had. His death made a mystery of his entire life. Using an index—that most formal and orderly of structures—Wickersham explores this chaotic and incomprehensible reality. Every bit of family history—marriage, parents, business failures—and every encounter with friends, doctors, and other survivors exposes another facet of elusive truth. Dark, funny, sad, and gripping, at once a philosophical and deeply personal exploration, The Suicide Index is, finally, a daughter’s anguished, loving elegy to her father."
• The search for sensitive coverage of the tragedy of suicide: An Australian story (Leo Bowman, Center for Journalism Ethics, 4-17-13)
• Media and the hard truth about suicides (Stephen J.A. Ward, Center for Journalism Ethics, 9-24-11) "The guiding principle should be: publish uncomfortable facts where such information is necessary for a clear public understanding of the event and to indicate what social responses might be necessary."
• Suicide and the Media (New Zealand Ministry of Health, tips on media coverage to reduce risk of encouraging suicide in at-risk individuals)
• Suicide Notes (Liam Casey, Ryerson Review of Journalism 12-22-10). "I contemplated killing myself five years ago. Now, to help others, I call on all journalists to break the silence on our final taboo."
• Public Death, Private Grief (Dart Center video, Professor Ari Goldman uses the Bruce Ivins case to examine how far a journalist can and should go when reporting on a suicide)
• 40 celebrities who committed suicide (The Daily Heel). This slide show is a vehicle for drawing you to ads, but as you click through, the brief copy for many suggests how much work we have to do in suicide prevention. Here is copy for #7, for example: "Jovan Belcher- age 25. In December 2012, Kansas City Chiefs linebacker Jovan Belcher shot his longtime girlfriend Kassandra Perkins nine times in front of his mother before driving to the Chief’s practice facility where he shot and killed himself in front of his coach and general manager. Right before Belcher shot himself, he said, “I wasn’t able to get enough help.” An autopsy found that he was suffering from CTE (chronic traumatic encephalopathy), caused by repeated head traumas playing American football which causes memory loss, aggression, confusion and depression. The killings also orphaned Belcher’s three-month old baby daughter, Zoey.
• Suicide Prevention (many useful resources from Centers for Disease Control and Prevention, CDC)
• Primary prevention of suicide and suicidal behaviour for adolescents in school settings (Cochrane review)
• Suicide Prevention (National Institute of Mental Health)
• Brain scans could help personalize treatment for people who are depressed or suicidal (Emily Underwood, Science, 8-20-19)
• Mice and Mothers by Nathalia Holt (partly about her mother's suicide). Too many deaths have no meaning. I needed these animals' lives to be part of the fight against H.I.V.
“Pain is a more terrible lord of mankind than even death itself.” ~ Albert Schweitzer
• Teen Suicide Prevention Campaign (American Foundation for Suicide Prevention). Watch these brief public service announcements (PSAs)
• Why Michael Grosvenor Myer left his wife to die alone (Andrew Alderson, New York Times, 11-29-08), the story of a novelist whose final gift to her husband was to die alone, sparing him a jail sentence for assisting in her suicide.
“The quickness and flexibility of a well mind, a belief or hope that things will eventually sort themselves out-these are the resources lost to a person when the brain is ill.” ~ Kay Redfield Jamison
"When speaking of those who take their own lives, it is always most dignified to use silence or at least restrained language, for the ones left most vulnerable and most deeply hurt by such an occurrence can feel oppressed by the louder assertions of understanding, wisdom, and depth of remorse foisted on them by others. One must ask: Who is best served by speculation? Who is really able to comprehend? Perhaps we must, as human beings, continue to try and comprehend, but we will fall short. And the falling short will deepen our sense of emptiness." ~attributed to Yasunari Kawabata by Howard Norman, in the fifth section of his excellent memoir I Hate to Leave This Beautiful Place
• Surviving Suicide in Wyoming (Anna Maria Barry-Jester, FiveThirtyEight, 7-13-16) Self-reliance helps people thrive in a landscape that's big and tough, but it can also put them at risk if they get into a personal crisis. And the story about the story: How Anna Maria Barry-Jester turned a story about Wyoming suicides into a sensitive narrative (David Wollman, Storygram, The Open Notebook, 6-12-18) Wollman, in a Storygram, annotates an award-winning story to shed light on what makes some of the best science writing so outstanding.
• Poet Diana Khoi Nguyen on Family and Writing a Radical Eulogy for Her Brother (Peter Mishler, Lit Hub,10-23-19) By the author of Ghost Of. “Ghost Of is nothing short of an extraordinary debut. These poems are uncanny renderings of an invisibility made visible by the sheer will of candor, bemused forms, agility of lexicon, and a voice, almost noiselessly extravagant. What she gives us, she takes away; nearly impossible transformations transform. “Something keeps not happening” she writes. And then she causes it to happen in a language of grief—bold and often colder than most daring, exquisite acts.” (Terrance Hayes, judge of the Omnidawn Open, a poetry book contest)
• Adorján, Joanna. An Exclusive Love: A Memoir (translated by Anthea Bell). Adorján tries to make sense of the dual suicide of her fascinating grandparents, who survived the Holocaust and the Hungarian uprising of 1956 and died in a suicide pact in Denmark in 1991.
• Bialosky, Jill. History of a Suicide: My Sister's Unfinished Life (about both her sister, Kim's, life and death and about sibling loss and survival guilt)
• Bolton, Iris. My Son...My Son: A Guide to Healing After Death, Loss, or Suicide
• Farr, Moira. After Daniel: A suicide survivor's tale. Here is an excellent review of the book (PDF), in which the reviewer, Paul S. Links, writes: "This chilling account will remind physicians that the suicide survivor’s response is often a complex combination of posttraumatic features and guilt-laden grief. Both aspects must be worked through during the process of recovery....this book is not a tell-all story of the Toronto artistic scene. It is not an academic recounting of current scientific formulations of suicide. It is not a prescription for the self-directed recovery from grief. Rather, it is an offer of hope, a beautifully written journey of reclamation, and simply a very personal account of the author’s own grief."
• Fine, Carla. No Time to Say Goodbye: Surviving the Suicide of a Loved One
• Hammer, Signe. By Her Own Hand: Memoirs of a Suicide's Daughter
• Handke, Peter. A Sorrow Beyond Dreams (transl. Ralph Manheim, intro. Jeffrey Eugenides). A slim and sorrowful memoir of the author's depressed mother's life and suicide at 51.
• Lourey, Jessica. My Fiction Therapy (The Truth in Fiction). This moving story is the opening for a memoir in progress, tentatively titled Better than Gin: Transform Your Facts into Fiction that Sells (The One Year, One Book Challenge.
• Page, Patricia. Shadows on a Nameless Beach. A brief and beautifully crafted collection of essays, a memoir of the year after her son's death by suicide, her feelings of parental guilt, finding solace in walks through California's coastal landscape.
• Rappaport, Nancy. In Her Wake: A Child Psychiatrist Explores the Mystery of Her Mother's Suicide. Haunted by the 1963 death of her mother, a Boston socialite, from an overdose when Rappaport was only four (the youngest of six children), the author tries to reconstruct what happened. As her brother asked: Didn't their mother know that she would leave all these shattered children wondering if it was their fault?
• Sharples, Madeline. Leaving the Hall Light On. A mother's memoir of living with her son's bipolar disorder and surviving his suicide. Read review by Dr. Jason M. Dew and interview with the author (on Women's Memoirs).
• Stone, Geo. Suicide and Attempted Suicide: Methods and Consequences
• Styron, William. Darkness Visible. Also available free online (Internet Archive).
• West, John. The Last Goodnights: Assisting My Parents With Their Suicides
• Wickersham, Joan. The Suicide Index: Putting My Father's Death in Order "Sixteen years ago, Joan Wickersham’s father shot himself in the head. The father she loved would never have killed himself, and yet he had. His death made a mystery of his entire life. Using an index—that most formal and orderly of structures—Wickersham explores this chaotic and incomprehensible reality. Every bit of family history—marriage, parents, business failures—and every encounter with friends, doctors, and other survivors exposes another facet of elusive truth. Dark, funny, sad, and gripping, at once a philosophical and deeply personal exploration, The Suicide Index is, finally, a daughter’s anguished, loving elegy to her father."
“Few understand that the death [suicide] is seldom self-determined, but rather driven by a distortion of perception by a biochemical effect…People who die by suicide do not want to die; they simply want to end the pain…” ~ Andrew Slaby
• Taking Chance Home (Marine Lieutenant Colonel Strobl's simple and moving account of escorting the remains of Lance Corporal Chance Phelps home from Dover Air Force Base). You can watch HBO's film based on the story, Taking Chance, starring Kevin Bacon.
• TAPS (Tragedy Assistance Program for Survivors)
• Three Little Words . Roy Peter Clark's memorable series in the St. Petersburg Times, "a tale of trust, betrayal and redemption," and AIDS, which "challenges us to reconsider our thoughts about marriage, privacy, public health and sexual identity"
• UNITE (grief support after miscarriage, stillbirth, and infant death)
• What Broke My Father's Heart by Katy Butler (NY Times Magazine, 6-18-10). How putting in a pacemaker wrecked a family's life. Katy Butler's father drifted into what nurses call “the dwindles”: not sick enough to qualify for hospice care, but sick enough to never get better. She writes, of her parents: "I watched them lose control of their lives to a set of perverse financial incentives — for cardiologists, hospitals and especially the manufacturers of advanced medical devices — skewed to promote maximum treatment. At a point hard to precisely define, they stopped being beneficiaries of the war on sudden death and became its victims." You may also want to read Knocking on Heaven's Door: The Path to a Better Way of Death
• What Comes After by Lisa Mundy (Washington Post Magazine). They lost their daughter in the deadliest campus massacre in U.S. history. One parent wants to file a lawsuit. The other doesn't.
• What It Feels Like To Be Photographed In A Moment Of Grief (Coburn Dukehart, NPR, The Picture Show, 1-28-13)
• When Treating Cancer Is Not an Option (Jane E. Brody, Well, NY Times, 11-12-12). An excellent discussion of how doctors need to communicate with patients who are terminally ill (and check to see if their communications got through). Telling patients to plan for the worst but hope for the best gives them "better outcomes — less depression and less distress, and they’re more likely to die comfortably at home.”
• Why Didn't They Stop Him? (When Domestic Violence Laws Don't Work, by Phoebe Zerwick, O, the Oprah Magazine, August 2009)
• Recommended reading
Complex and Difficult Endings: A Reading List
• Ascher, Barbara Lazear. Landscape Without Gravity (about her brother's death from AIDS).
• Boss, Pauline. Ambiguous Loss: Learning to Live with Unresolved Grief (about the sense of "frozen grief" that can occur when a loved one is perceived as physically absent but mentally present (because of desertion, divorce, or abduction, or because missing in actions) or physically present but mentally or psychologically absent (because of dementia, mental illness, or other forms of mental or emotional loss or injury).
• Brodkey, Harold. This Wild Darkness: The Story of My Death (the story of his confrontation with AIDS)
• Butler, Katy. Knocking on Heaven's Door: The Path to a Better Way of Death. Against this backdrop of familial love, wrenching moral choices, and redemption, Knocking on Heaven’s Door celebrates the inventors of the 1950s who cobbled together lifesaving machines like the pacemaker—and it exposes the tangled marriage of technology, medicine, and commerce that gave us a modern way of death: more painful, expensive, and prolonged than ever before. A riveting exploration of the forgotten art of dying, Knocking on Heaven’s Door empowers readers to create new rites of passage to the “Good Deaths” our ancestors so prized. Like Jessica Mitford’s The American Way of Death and How We Die by Sherwin Nuland, it is sure to cause controversy and open minds.
• Caplan, Arthur L., James McCartney, and Dominic Sisti, eds. The Case of Terri Schiavo: Ethics at the End of Life
(many contributors discuss the ethical issues associated with this controversial case and others like it)
• Clift, ElinorTwo Weeks of Life: A Memoir of Love, Death, and Politics. A well-known journalist combines an account of the circus surrounding Terri Schiavo's death with the personal story of the death of her husband, journalist Tom Brazaitis
• Davis, Deborah L. Empty Cradle, Broken Heart: Surviving the Death of Your Baby<
• DeVita, Elizabeth. The Empty Room: Surviving the loss of a brother or sister at any age (partly a memoir of surviving the loss of her brother Teddy to aplastic anemia)
• Didion, Joan. The Year of Magical Thinking
• Dworkin, Ronald. Life's Dominion: An Argument About Abortion, Euthanasia, and Individual Freedom
• Edelman, Hope. Motherless Daughters: The Legacy of Loss
• Freedman, Samuel G., and Kerry Donahue Dying Words: The AIDS Reporting of Jeff Schmalz and How It Transformed The New York Times . You can also download or listen online, free, to the audio documentary, Dying Words: The AIDS Reporting of Jeffrey Schmalz with host Rachel Maddow, hosted by MSNBC’s Rachel Maddow
• Gilbert, Sandra. Wrongful Death: A Medical Tragedy (about the death of her husband after entering the hospital for routine prostate surgery)
• Gunther, John J. Death Be Not Proud (a young son's death from brain cancer)
• Harrison, Lindsay. Missing. During her sophomore year at Brown University, Lindsay's brother called to say her mother was missing. Forty days later they discovered the unthinkable: Their mother’s body had been found in the ocean. A page-turning account of those first forty days (dealings with detectives, false sightings, wild hope, and deep despair), then her search for solace as she tries to understand who her mother truly was, makes peace with her grief, and becomes closer to her father and brothers as her mother’s death forces her to learn more about her mother than she ever knew before.
• Hill, Susan. Family (about the death of a premature child)
• Kamenentz, Rodger. Terra Infirma (a searing recollection of his mother's life and her death from cancer, his mother "yo-yoing between smothering affection and a fierce anger")
• Karaban, Roslyn A. Complicated Losses, Difficult Deaths: A Practical Guide for Working Through Grief
• Kincaid, Jamaica. My Brother (Kincaid's account of her younger brother's death from AIDS)
• Kushner, Harold S. When Bad Things Happen to Good People
• Latus, Janine. If I Am Missing or Dead: A Sister's Story of Love, Murder, and Liberation
• Elizabeth McCracken. An Exact Replica Of A Figment Of My Imagination -- expect both smiles and tears in this story of the loss of McCracken's stillborn baby
• Morrison, Blake. When Did You Last See Your Father?: A Son's Memoir of Love and Loss
• Nitschke, Philip and Fiona Stewart.The Peaceful Pill Handbook
• Nuland, Sherwin B. How We Die: Reflections on Life's Final Chapter (superb explanations of the actual physical processes of dying and good on why and when to stop trying to rescue the terminally ill and to let them die peacefully and in less pain and discomfort, written after Nuland realized that his physician's impulse to "rescue" prolonged the suffering of his older brother and other patients)
• Sittser, Jerry L. A Grace Disguised: How the Soul Grows through Loss (about the transformative grace that can come even in the face of catastrophic loss)
• Vincent, Eleanor. Swimming with Maya: A Mother's Story (how the daughter's fall from a horse ended in organ donations--transforming a mother's grief)
• Want, Barbara. Why Not Me?: A Story of Love and Loss
• Waxman, Robert and Linda. Losing Jonathan (losing a beloved child to drugs)
• West, John. The Last Goodnights: Assisting My Parents with Their Suicides
• Wiesel, Elie. Night (powerful account of surviving the nightmare world of the Nazi death camps)
• Williams, Marjorie. The Woman at the Washington Zoo: Writings on Politics, Family, and Fate (the last third is about her losing battle with cancer, saying goodbye to her husband and young children)
"The arc of the moral universe is long, but it bends toward justice." ~ Theodore Parker and M. L. King
[Back to Top]
• How do you tell children their father is dead? (Barbara Want, The Guardian, 4-29-11) And what happens next? Barbara Want (author of Why Not Me?: A Story of Love and Loss , explains how she and her twins adjusted to being 'just the three of us' after her husband died four years ago.
• Troubled Ears And Tender Hearts: Breaking The News Of A Parent's Death (Carole Fleet, Huff Post, 5-20-13)
• Helping Children When a Family Member Has Cancer: Dealing With a Parent`s Terminal Illness (American Cencer Society), including Why should I tell my children I’m dying?
• When a parent is dying (Don Seccareccia, palliative care physician, and Andrea Warnick, RN, Palliative Care Files in Canadian Family Physician)
• How to tell your child you might be dying (Elizabeth Cohen, CNN Health, 7-1-10)
• Children's grief (links to other resources)
• Children's picture books about death and loss (a shopping and library booklist)
• When a Parent Dies (Hospice.net) A guide for patients and their families
(discounts for counselors, hospices, medical staff, and hospitals)
"Although I’m not ready to admit it, my father is dying. As cancer takes over his body, we sit together – talking, enjoying the garden, and watching old movies. I’m trying to get a handle on the situation and how I feel about it, but my emotions are a tangled, jumbled mess. All at once I feel isolation, profound sadness, panic, anxiety, anger, frustration, helplessness, fatigue, and, ironically, occasional joy and humor.
When I set out to review Dying: A Book of Comfort, I worried that I might be too close to the topic. But as I read passages in this anthology, my mixed feelings began to come into focus. I realized that perhaps I’m just the kind of person who should be reviewing a book like this. Read straight through, Dying: A Book of Comfort was a spiritual exercise for me. Some chapters let me look at dying from my father’s perspective. Other chapters simply gave me the perspective of people who have been through this before me and my family.
“Pat McNees’s collection contains carefully selected and ordered pieces – poems, prayers, prose, and fiction. The anthology explores a range of experiences: living when you know you are dying; caring for and about someone who is dying; saying goodbye; and dealing with how it feels to be left behind. When Pat was talking with publishers about printing a bookstore version, some told her it should be a book either about dying or about grieving, but Pat saw them as part of a continuum.
“If read straight through, the book’s structure allows the reader to move through the process of dying and grieving in an arc, starting with ‘Illness as Awakening.’ Following chapters examine how people who are dying, as well as their loved ones, experience the process of dying and saying goodbye. The apex of the arc is death itself, with chapters including views on immortality and prayer. The book then moves into the ‘Journey Through Grief.’ What follows are chapters devoted to mourning the loss of a child, parent, or spouse, and to grieving a sudden death or suicide. The closing chapters have their focus on death’s aftermath – the remembering, for example, or the other ways we deal with the ongoingness of this greatest of all losses.
“McNees has kept her selections fairly short. The brevity of the passages, and their concrete relevance to the topic at hand, make the book very reader-friendly. These characteristics reflect the advice of grief counselor, Kathleen Braza, who has found that people who are grieving generally can’t read long passages or process symbolism.
“The first time I read this book, I jumped around, the way I usually read a book of poetry. I’d read a passage here and there, periodically finding one that rang very true for me. Beyond being a personal comfort to me, I found the book to be an excellent resource. I’m often at a loss for words when talking with or writing to someone who is grieving. In its pages I have found just the right passage to share with friends of mine who have lost a mother, a husband, a son.
“While McNees didn’t set out to write a spiritual book, she has created a volume that speaks to the heart. Written after her father’s death, her goal in working on this project was to create a book that would help people through the process of death and grieving. Dame Cicely Saunders, founder of Hospice, says of Pat’s book, ‘This remarkable collection, coming from personal experience and wide reading, will help many find the potential of growth through loss.’
“ Dying: A Book of Comfort would make a thoughtful gift for a family or individual coping with terminal illness, someone who is grieving, or people who work with dying or bereaved. It is available in trade paperback at bookstores or in hardcover from the Literary Guild. My copy has already become dog-eared and annotated, as it travels with me to visit my father. Thanks, Pat, for the words of comfort."
~ Eileen Hanning’s review, years ago, for Signature, the newsletter of the Women’s National Book Association, DC chapter