Coping with cancer
• Personal stories about cancer
• Facts about cancer
• A Reading List
• Tools for coping with chronic illness
• Checking out clinical trials
Cancer once meant a death sentence. Increasingly, as medical scientists find new ways to combat it, it is becoming a chronic disease. Prevention is the best approach to fighting cancer, but when it strikes it helps to find knowledgeable support and to know the facts about how to fight and cope with it. Let me know of links to useful resources that are not yet listed here.
The Assertive Cancer Patient (living with cancer--and attitude)
As the Tumor Turns (lymphoma blog, not for the faint of heart)
Breastcancer.org (info about breast cancer)
Chemo Chicks (empowering women with cancer, with humor)
Click here to give free mammogramsOvarian cancer survivor shares lessons learned from cancer (the Cancer Blog)
Cowgirl Attitude (blog by woman with colon cancer)
Get real about breast cancer (blog, with photo of Breast Cancer Barbie)
Leaving a Record of Lessons Learned (Leroy Sievers, NPR cancer blog)
Lessons on dealing with critical illness (Linda Knapp, Seattle Times, on surviving a severe bacterial meningitis infection)
Living Strong, dialogue with Lance Armstrong (Newsweek, April 2007)
My Life with Cancer (mantle cell lymphoma), by Jonathan Alter (Newsweek)
Margarita Hernandez's experience with an NIH clinical trial for B-cell lymphoma
Sam Breidenbach's experience with a Cancer Institute melanoma trial
National Cancer Institute (start here!)
Brain tumors (a primer, American Brain Tumor Association)
Cancer facts and figures (American Cancer Society)
Comparative effectiveness of therapies for clinically localized prostate cancer (AHRQ report)
Dictionary of cancer terms (NCI)
Drug information (Medline Plus)
Learn about specific cancers (American Cancer Society)
Medical gross anatomy (University of Michigan)
Oncolink (University of Pennsylvania)
OncologySTAT (access to current articles in cancer-related journals)
Quitting smoking (an ACS guide)
Tips for living and coping (American Brain Tumor Association)
Types of cancer (National Cancer Institute)
Understanding Cancer (National Cancer Institute)
Useful medical linksBooks on cancer (ACS)
A Reading List
A Cancer Survivor's Almanac, by Barbara Hoffman
Everyone's Guide to Cancer Therapy, by Malin Dollinger
Living with a Brain Tumor: Dr. Peter Black's Guide to Taking Control of Your Treatment, by Peter Black with Sharon Cloud Hogan
Lung Cancer: Myths, Facts, Choices -- and Hope, by Claudia I. Henschke, Peggy McCarthy, and Sarah Wernick
Share the Care, by Cappy Capossela and Sheila Warnock
Tools for coping with chronic illnesses
Association for Cancer Online Resources (ACOR), with links to excellent patient discussion groups
Joel Siegel's advice for cancer patients
Cancerbackup (a leading UK cancer information charity)
Cancer support groups (National Cancer Institute guide, for specific types of cancer)
CaringBridge (free, easy-to-create web sites help patients post updates and send e-mails to family and friends who request e-mail updates)
Coping with grief and terminal illness (BBC site)
Chronicbabe.com (a site by and about women with all kinds of chronic illnesses)
Diabetes Wise (a blog about how to live happily with
diabetes)
Foods that fight cancer (AICR, Recipe corner, with really tasty recipes)
Gilda's Club (cancer support, for the whole family)
KINfolk (helps chronically ill children connect online with others)
Online support groups for various types of brain tumors
Planet Cancer (young adults with cancer)
Ways to connect with others, when you have a brain tumor:
Steve Dunn's Cancer Guide (excellent advice about online cancer research and suggestions for those interested in trying clinical trials)
Milt's Muse (his blog on incurable cancer, his resulting depression, and his feeble attempts at self help)
What now? (a UK-based community support group, for sharing feelings about cancer experience)
Clinical trials, Patient Recruitment at NIH Clinical Center --or call them (1-800-411-1222) to ask if you qualify for a research protocol
