|
Illness (resources for specific diseases, conditions, syndromes)• Useful links A READING LIST OF BOOKS ON MEDICINE, HEALTH CARE, AND CAREGIVING -- FOR PATIENTS AND CAREGIVERS An Uncertain Inheritance: Writers on Caring for Family edited by Nell Casey. Wonderful writing, excellent insights into the complexities both of caring and of being cared for, during an illness. An Unquiet Mind by Kay Redfield Jamison (about manic depression). Better: A Surgeon's Notes on Performance by Atul Gawande Complications: A Surgeon’s Notes on an Imperfect Science by Atul Gawande How Doctors Think by Jerome Groopman How We Die by Sherwin Nuland (excellent descriptions of exactly how the various body systems fail, when they fail -- a primer even for healthy readers) Illness as Metaphor: AIDS and Its Metaphors by Susan Sontag In the Country of Hearts: Journeys in the Art of Medicine by John Stone Just Here Trying to Save a Few Lives: Tales of Life and Death in the ER by Pamela Grim Life Disrupted: Getting Real About Chronic Illness in Your Twenties and Thirties, by Laurie Edwards The Man Who Mistook His Wife for a Hat and Other Clinical Tales, by Oliver Sachs The Measure of Our Days: New Beginnings at Life's End by Jerome Groopman Medical Detectives, by Berton Roueche Second Opinions: Stories of Intuition and Choice in the Changing World of Medicine by Jerome Groopman Unholy Ghost: Writers on Depression, ed. Nell Casey You: The Smart Patient, An Insider's Handbook for Getting the Best Treatment, by Drs. Michael F. Roizen and Mehmet C. Oz, with the Joint Commission (one of a series by the charismatic Oprah favorite, Dr. Oz, and the knowledgeable Dr. Roizen) FOR YOUR MEDICAL REFERENCE SHELF Although you can learn a lot online through Medline Plus and WebHealth.com (links above), you may want to have a good general reference book at home, too. Here are a few possibilities: The Body Clock Guide to Better Health by Michael Smolensky and Lynne Lamberg The Cornell Illustrated Medical Encyclopedia: The Definitive Medical Home Reference Guide (Weill Cornell Health Series) by Antonio Gotto The Johns Hopkins Complete Home Guide to Symptoms & Remedies by Editors of The Johns Hopkins Medical Letter Health After 50 The Johns Hopkins Consumer Guide to Medical Tests: What You Can Expect, How You Should Prepare, What Your Results Mean by Simeon Margolis Know Your Body: The Atlas of Anatomy by Emmet B. Keefe Mayo Clinic Family Health Book, 3rd edition, by the Mayo Clinic Mosby's Manual of Diagnostic and Laboratory Tests by Kathleen Pagana and Timothy Pagana (helpful in interpreting lab test results) |
"I know why Tony Snow, George W's press secretary, called his bout with colon cancer, 'the best thing that ever happened to me.' And why my friend, Gilda Radner said about cancer, 'If it wasn't for the downside, everyone would want it.' "The best side-effect of fighting a life-threatening disease is learning how to live. "When you're made frighteningly aware of how little time you may have left, learn what is important: family, friends and helping others." --Joel Siegel, after ten years of fighting colon cancer "Happiness is someone to love, something to do, and something to hope for." -Chinese Proverb |