instagram pinterest linkedin facebook twitter goodreads facebook circle twitter circle linkedin circle instagram circle goodreads circle pinterest circle

Fading Out: Aging and Beyond RSS feed

Conversations About Dying

(assembled by Pat McNees to facilitate conversations about death, dying, and final wishes)


We should all have the end-of-life conversation (Ellen Goodman on The Conversation Project). "Too many people are dying in the way they would not choose. Surveys tell us that 70 percent of Americans, for example, want to die at home but 70 percent end up dying in hospitals and institutions....Too many survivors, for that matter, are left not just mourning but feeling guilty, depressed, uncertain of whether they have done the right thing.... And we cannot wait for "the right time"  Read More 

Be the first to comment

What's wrong with the 21st Century Cures Act

Norman Bauman provided helpful links and comments about the 21st Century Cures Act in the Association of Health Care Journalists' discussion group. I share them here:
With media watchdogs on the sidelines, pharma-funded advocacy groups pushed Cures Act to the finish line (Trudy Lieberman, Health News Reviews, 12-6-16) ‘Progress’ touted by pharma is a huge step backward for patients. "If the committee’s masterful sales job for the Cures Act is a textbook example of what constitutes effective PR and advocacy in Washington these days for legislation that may not be in the best interests of the public, press coverage offers a textbook example of media abdication of their watchdog role. As HealthNewsReview.org pointed out repeatedly over the past year and half, mainstream journalists, with some exceptions (including Carolyn Johnson at the Post and Sheila Kaplan at STAT) did not look closely, ask hard questions, or explore the downsides until the last few weeks when the Cures Act was a done deal headed for victory."
• The 21st Century Cures Act is a deal that will give a lot of money to the NIH, FDA, Cancer Moonshot,etc., but will also weaken the FDA's standards of evidence used to approve drugs, particularly randomized, controlled trials (RCTs). It's a handout to the pharmaceutical industry.  Read More 

Be the first to comment

How storytelling can help dementia patients

Updated 8-24-17. This former journalist helps caregivers get to know who their patients once were, before dementia took hold (Tara Bahrampour, The Age, 12-16-16) Jay Newton-Small, a District resident, started a business writing anecdote-filled profiles of dementia patients after her father got Alzheimer’s. 'Until seeing her profile, caregivers for  Read More 
1 Comments
Post a comment

Lessons from "Obit," the documentary

Vanessa Gould’s fascinating documentary Obit, shown at the summer Docs festival in Silver Spring, is a fascinating overview of how The New York Times obituary section is run. We learn how they decide which people to honor with an obit, at what length, with how many photos. The obit writers “document the lives  Read More 
1 Comments
Post a comment

Doctors rebel against a re-certification test that costs $23,600 per doctor

by Pat McNees

Doctors complain the tests are unreasonably costly and time-consuming, do not improve the practice of medicine, and are merely enriching the pockets of the certification boards' pockets.
"Over the last few months, we have seen a great increase in the number of doctors ... speaking up against the current MOC (maintenance of certification) that is now in place," wrote Dr. Linda Girgis  in Are Medical Specialty Boards Extorting Physicians? Dr. Girgis explained why doctors do not want to comply with current MOC requirements:
1. The majority of doctors  Read More 

Be the first to comment

Resources for finding service dogs, therapy dogs, and other types of assistance dogs

by Pat McNees, updated 12-11-18)
See also FAQs, stories, and articles about assistance dogs and Books about assistance dogs
Find the bomb! Good boy! Man’s best friend may be our best bet for staying safe. (Andrea Sachs, Washington Post Magazine, 8-4-16) Dogs are being trained and employed in such fields as search and rescue; narcotics, explosives and bedbug detection; and diabetes alert. Some are providing therapy support and detecting ovarian cancer. Nearly 1,000 six-legged teams safeguard more than 100 airports, mass transit stations and cargo-hold sites. In these anxious times, dogs could have a twofold impact on potential terrorist attacks: deterrence and detection. Sachs writes about where some of man's best friends are being trained, and how, to make the country safe.
A Complete Guide to Service, Therapy and Emotional Support Dogs (Karen Wang, Friendship Circle, 5-23-13) Suggests resources for finding mobility assistance dogs, medical response dogs (for humans with seizures, diabetes, severe allergies), signal dogs for the hearing impaired, guide dogs for the visually impaired, autism service dogs, psychiatric assistance dogs, therapy dogs, emotional support/companion animals.
Assistance Dogs International (a coalition of not for profit organizations that train and place assistance dogs Read More 
4 Comments
Post a comment

At least 100 tips on how to improve your life, home, bottom line, and credit cards

by Pat McNees (Updated 6-11-18)
Preferring books to housecleaning, I live in a messy apartment. But now I'm ready to act on tips I've been gathering (posted below) on how to upgrade my home, make my clothes last longer, detox my life, find a better credit card, tidy up the spaces guests are most likely to judge me on, handle a tax audit, clean the bottom of my iron, sanitize a sponge in the microwave, and so on. For example, thanks to Buzzfeed, I've discovered how to
3. Hide my television wires in a shower curtain rod.
6. Add cheap framed mirrors to closet doors, painted to match.
19. Get the right-size rugs and learn how to place them. Here are dozens of practical tips:  Read More 

4 Comments
Post a comment

Estate planning and estate and inheritance taxes: What you need to know

The Wills Party (Shmuly Yanklowitz, Modern Loss, 2-17-16) My wife and I thought finalizing our wills was a good reason to have a party. Here’s why. This excellent articles provides links to solid information about estate taxes (made more explicit here). Tell readers what you've learned that you wish you'd known earlier (in comments below)!
Americans' Ostrich Approach To Estate Planning (Richard Eisenberg, Next Avenue, 4-9-14) "...whether you’re married or single, a parent or childless, a millionaire or middle-income, you need a will. If you have assets in the six figures or higher, you probably ought to have a trust as well, to help minimize estate taxes and avoid probate. A trust also offers you greater control over when and how your assets will be distributed — such as letting your young child receive only a certain amount of money at a certain time."
How to Avoid Fights Over Inheritance(David Francis, U.S. News, 7-17-12) Experts say a will alone is insufficient to prevent family squabbles.
The Misguided Crusade to Kill the Estate Tax (Chad Stone, U.S. News, 3-27-15) Proponents of doing away with the so-called 'death tax' don't have their facts straight. To those who want to repeal it, the federal estate tax is an unfair and unnecessary “death tax” that hurts small businesses and family farms. The facts tell a different story. Estates with more than $5 million for an individual and effectively twice that for a married couple are exempt. This isn’t about struggling small businesses and family farms. It’s about another huge tax cut for those who need it the least.
Best Ways to Give Your Heirs Money While You’re Alive (Lynn Ballou, Next Avenue, 6-4-13) Instead of leaving your adult kids money when you die, create a meaningful gifting plan so you can watch them benefit from your generosity
How to Talk With Your Adult Kids About Their Inheritance (Lori R. Sackler, Next Avenue, 3-22-13) Avoid family strife down the road by holding key conversations about your estate plans — now.
8 Smart Estate Planning Steps to Die the Right Way (Jane Bennett Clark, Pat Mertz Esswein, and Lisa Gerstner, Kiplinger, January 2012)
Keep Control of Assets After Death (Federal Trade Commission, Next Avenue, 3-25-11) A how-to guide for estate planning. Know the terms, for example: Probate. Trust. Living Trust. Will.
Put Some Trust in Your Estate Planning (Federal Trade Commission, 11-2-11) You want your assets to go to the right place with the minimum effort. Here are some of the basics for estate planning.

State Inheritance Tax Chart (About Money) A State Death Tax on Who Inherits Your Property
Which States Collect a State Inheritance Tax? (About Money)
State Estate Tax and Exemption Chart (About Money)

Good News for Beneficiaries and Bad News for Fiduciaries in Regard to Transferee Liability for Estate Tax (Rubin on Tax, 6-2-12)
American Charitable Bequest Demographics: 1992-2012 (PDF, Russell James) "Only about 10 percent of Americans with a will or trust included a charity as a beneficiary in 2010."

 

Top 10 Ways to Transfer Wealth (Elizabeth Harris, Worth, 8-21-15) When President Obama signed the Tax Relief Act into law last December, the new legislation paved the way for individuals and families to give away an unprecedented amount of money without triggering any IRS penalty. Through 2012, the lifetime gift exclusion rises from $1 million to $5 million, with a 35 percent tax rate on anything over that amount. The change means individuals can give up to $5 million tax-free; couples, twice that. For the same period, the estate tax allows a $5 million exemption. Estate attorneys and financial planners advise their clients to act now—before the generous new limits disappear. Here are 10 strategies for doing just that.
Should You Transfer Wealth To Your Grandkids Now? (Ashlea Ebeling, Forbes, 8-2-12) January 2013 update: The fiscal cliff tax deal made permanent the $5 million per person exemption from gift, estate and generation-skipping tax, without curbing any of the wealth transfer techniques available in 2012 described in this article. The annual gift exclusion was $14,000 in 2013.
How to Avoid Gift Taxes Transferring Wealth Parent to Child (John A. Grey, Trusts and Estates blog, 11-20-15)

EXAMPLES OF FIGHTS OVER INHERITANCE
Inside the Family Battle for the Newman’s Own Brand Name (Mark Seal, Vanity Fair, August 2015) Paul Newman's will was changed a dozen times; each daughter was told they would inherit a million dollars and would have a foundation set up for them.

 Read More 
Be the first to comment

My Mother, The Lion

by Ruth Little
When my partners Holly Hanson, Judie Suit, and I started Elders’ Eden, our dream was to create for our mothers (and Judie’s aunt) a real home — a place where they were loved and valued as the remarkable people they are, each with special skills, achievements, and quirks. We wanted them to have close and continuing relationships with caregivers, children, and pets. And we wanted them to be able, if at all possible, to die at home. Read More 
Be the first to comment

The anatomy of medical error

Pat McNees. Updating our story below about the anatomy of medical error:
Medical Errors Are No. 3 Cause Of U.S Deaths, Researchers Say Medical errors rank behind heart disease and cancer as the third leading cause of death in the U.S., Johns Hopkins researchers say. "Medical mistakes that can lead to death range from surgical complications that go unrecognized to mix-ups with  Read More 
Be the first to comment