Understanding the issues health care reform should address
Who benefits from health savings accounts
Health care reform and the Affordable Care Act (ACA)
Organizations serious about improving U.S. health care
Doctors' incentives to prescribe expensive drugs
Does competition lead to better health care? Can consumers choose?
Improving health care practices
The costs of neglecting the mentally ill
The politics and policy issues of
health care (insurance) reform and the ACA
Health insurance, ACA, and the marriage glitch
Relevant blog posts:
Taking the mystery out of health care prices
Why U.S. medical costs are so high and
where the system needs fixing
Drugs, Big Pharma, conflicts of interest, and
why U.S. patients pay too much for medication
"If you think you're too small to have an impact,
try going to bed with a mosquito."
• In Clash Over Health Bill, a Growing Fear of ‘Junk Insurance’ (Reed Abelson, NY Times, 7-15-17) "Plans with much lower premiums are certain to be attractive to many people. But Elizabeth Imholz, a health policy expert for Consumers Union, warned, “The reality for consumers is that they can be stuck with huge, unexpected out-of-pocket costs.”...“These plans lacked the necessary transparency that would give consumers an idea of what they were actually purchasing,” said Ashley Blackburn, a senior policy analyst with Community Catalyst, a consumer advocacy group.
• GOP Failure to Replace the Health Law Was Years in the Making (Julie Rovner, NY Times, 7-18-17) " Republicans’ inability to overhaul the health law should not come as much of a surprise. Here are some of the reasons: 1. It’s hard to take things away from people. 2. Republicans have long been divided on health care. 3. Presidential leadership on hard issues is important. 4. Health care is complicated. Really. 5. Some parts of the ACA really are popular, even among Republicans. "In fact, in recent months, the Affordable Care Act has been growing in popularity. Most polls show it more than twice as popular as GOP efforts to overhaul it."
• How the Senate Health Care Bill Failed: G.O.P. Divisions and a Fed-Up President (Jennifer Steinhauer, Glenn Thrush, andRobert Pear, NY Times, 7-18-17) "The Senate bill, which faced a near-impossible path forward after the House passed its version of the legislation in May, was ultimately defeated by deep divisions within the party, a lack of a viable health care alternative and a president who, one staff member said, was growing bored in selling the bill and often undermined the best-laid plans of his aides with a quip or a tweet."
• Follow The Money: Drugmakers Deploy Political Cash As Prices And Anger Mount (Jay Hancock, Elizabeth Lucas, and Sydney Lupkin, Kaiser Health News, 7-24-17) Two federal investigations — one examining opioid sales, another about a multiple sclerosis drug whose price had soared to $34,000 a vial — were only part of the troubles Mallinckrodt faced as the year began. Wall Street worried that Medicare might reduce the half-billion dollars it was spending yearly on a Mallinckrodt drug with limited evidence of effectiveness. This year, a critical and risky one for drug companies, the industry as a whole is ratcheting up campaign donations and its presence on Capitol Hill. Chart shows Rep. Paul Ryan collecting $82,750 in such donations in first quarter.
• How do drug firms respond? Martin Shkreli declines to answer house panels questions. As the New York Times reports, "The hearing, about drug prices, focused on the actions of Turing and another company, Valeant Pharmaceuticals International, which acquired the rights to decades-old drugs and increased their prices by huge amounts overnight."...'Little of substance was discussed on what to do about the increases. Instead, lawmakers from both parties took turns berating Mr. Shkreli, Turing and Valeant with words like “scandal,” “disgusting” and “disgraceful.”
• A Simple Guide to the GOP Health Care Bills (Alissa Scheller , Jeffrey Young, NY Times, 6-22-17. Here's a simple guide to how they would change Obamacare.
• My Life With a Pre-Existing Condition (Nomi Kane, The Nib, 7-9-17) In the high-risk health insurance pool that Republicans say will be available to Americans with pre-existing conditions, the cost of coverage is way higher than coverage for others. Under that system, states can opt-out of Community Rating rules, allowing insurance companies to inflate premiums for patients with pre-existing conditions. While they can't technically deny coverage to such patients, they can price coverage so high people can't afford it. The Kaiser Family Foundation estimates that 23% of Americans under the age of 65 live with a declinable pre-existing condition.
• “There will be deaths”: Atul Gawande on the GOP plan to replace Obamacare (Julia Belluz, Vox, 6-23-17) Gawande and experts Benjamin Sommers and Katherine Baicker reviewed the research on what taking health insurance away means for Americans. “The bottom line,” Gawande told Vox, “is that if you’re passing a bill that cuts $1.2 trillion in taxes that have paid for health care coverage, there’s almost no way that does not end up terminating insurance for large numbers of people....If you are doing that, then there’s clear evidence that you will be harming people. You will be hurting their access to care. You will be harming their health — their physical health and mental health. There will be deaths."
• Susan Collins won’t back down on health care (Victoria McGrane, Boston Globe, 6-19-17) Senator Susan Collins and several other key moderates are exerting outsized influence on the debate — and they show little sign of backing down. They worry that the House Republican plan would strip insurance from millions of Americans with preexisting conditions and inflict unacceptably deep cuts on Medicaid. On the opposite end of the spectrum, Paul and other Senate conservatives want to eradicate all vestiges of Obama’s Affordable Care Act, including its insurance market interventions and costly Medicaid expansion. They’ve spent seven years promising voters this opportunity would come.Another key disagreement is how generous the tax credits for low-income people should be, with another stark moderate-conservative divide.
• Senate Unveils Bill to Repeal and Replace ACA (Robert Lowes, Medscape, 6-22-17) "A Senate Republican bill to repeal and replace the Affordable Care Act (ACA) that debuted today is a gentler version of what the House passed last month in many respects and a harsher version in others. Both bills would end funding for Medicaid expansion in 31 states and Washington, DC, but while the House bill cuts it off entirely in 2020, the Senate bill would phase it out over 3 years, beginning in 2021. That's meant to ease the financial pain for states and beneficiaries. When it comes to premium subsidies for individual and family health plans sold on the ACA marketplaces, or exchanges, the Senate bill would base them on income and age, as the ACA does. The House bill, which links the subsidies solely to age, translates into far less assistance for older, low-income Americans than what they now receive under the ACA." And more. "Republicans designed the bill under Senate rules to be filibuster-proof, meaning that it requires only a simple majority to pass (60 votes are needed to overcome a filibuster). Republicans control 52 seats in the Senate, but they need only 50 of them to pass the ACA repeal-and-replace legislation because Vice President Mike Pence would break the tie in their favor."
• “Our lives and liberty shouldn’t be stolen to give a tax break to the wealthy. That’s truly un-American,” said one disability advocate demonstrating outside Senate Majority Leader Mitch McConnell's office (Disability advocates arrested during health care protest at McConnell’s office by Perry Stein, WaPo, 6-22-17)
• The Republicans’ Jekyll-and-Hyde Health Care Plan (Drew Altman, NY Times, 6-22-17) "The Senate Republicans’ health bill that was made public today is a Jekyll-and-Hyde plan: in some ways kinder than the House Republican plan, and in some ways meaner, to use President Donald Trump’s yardstick. Overall the plan will benefit the wealthy and young adults, but hurt larger numbers of people who are old or poor....And both plans will cause more Americans to go without coverage and struggle with health care bills. Both bills are likely to increase the number of Americans having problems paying medical bills — about a quarter of the public today. For voters, that is the single most important barometer of the performance of the health care system."
• Deciphering CBO’s Estimates On The GOP Health Bill (Julie Rovner, Kaiser Health News, 3-13-17) The federal government’s budget experts estimate that the Republican plan would reduce the deficit but dramatically drive up the number of uninsured. To keep up with this excellent coverage, go to Repeal and Replace Watch (Kaiser Health News)
• How ACA Repeal and Replace Proposals Could Affect Coverage and Premiums for Older Adults and Have Spillover Effects for Medicare (Tricia Neuman, Karen Pollitz, and Larry Levitt, Kaiser Health News, 6-5-17) The House-passed American Health Care Act (AHCA) would make a number of changes to current law that would result in a 5.1 million increase in the number of uninsured 50-64-year-olds in 2026, according to CBO’s updated analysis.
• The most devastating paragraph in the CBO report (Sarah Kliff, Vox, 5-24-17). This is it: "People who are less healthy (including those with preexisting or newly acquired medical conditions) would ultimately be unable to purchase comprehensive nongroup health insurance at premiums comparable to those under current law, if they could purchase it at all — despite the additional funding that would be available under H.R. 1628 to help reduce premiums. As a result, the nongroup markets in those states would become unstable for people with higher-than-average expected health care costs."
And let's be clear: "The Republican plan achieves lower premiums by breaking the promise to protect preexisting conditions. Premiums drop because sick people who need coverage more would drop out of the marketplace. This plan does not deliver on that promise in any way, shape, or form."
• Affordable Care Act Gains Majority Approval for First Time (Jim Norman, Gallup, 4-4-17) A majority of Americans approve of the Affordable Care Act for the first time since it was enacted in 2010. Still, 40% want significant changes.
• G.O.P. Bill Would Make Medical Malpractice Suits Harder to Win (Robert Pear, NY Times, 4-15-17) Low-income people and older Americans would find it more difficult to win lawsuits for injuries caused by medical malpractice or defective drugs or medical devices under a bill drafted by House Republicans. The bill would impose new limits on lawsuits involving care covered by Medicare, Medicaid, or private health insurance subsidized by the ACA. The limits would apply to some product liability claims, as well as to medical malpractice lawsuits involving doctors, hospitals and nursing homes. It would limit frivolous lawsuits, but it would also take rights away from people served by federal health programs, including patients harmed by horrific medical mistakes. It would apply even in cases of “egregious medical error,” such as when a foreign object is left inside a patient’s body or surgery is performed on the wrong body part.
• This is what dying without health insurance looks like (Pamela Rafalow Grossman, Garnet News, 5-5-17) GOP wants to take us back to the days when the law favored industry profits over patients
• Why deductibles would rise under the GOP health care plan (Drew Altman, Kaiser Family Foundation, Axios, 3-22-17)
• Republican Health Proposal Would Undermine Coverage for Pre-existing Conditions (Margot Sanger-Katz, NY Times, 4-4-17) Proposed changes from conservative lawmakers known as the Freedom Caucus, after failure to pass of first Republican alternative to ACA, would effectively cast aside the Affordable Care Act’s pre-existing conditions provision. States could also opt out of required minimum coverage and "do away with a rule that requires insurance companies to charge the same price to everyone who is the same age, a provision called community rating." "The result could be a world where people with pre-existing conditions would struggle to buy comprehensive health insurance — just like before Obamacare."
• Don't expect Medicaid work requirements to make a big difference (Drew Altman, KFF, Axios, 3-3-17) Liberals and conservatives have irreconcilable differences of policy and principle over the issue of Medicaid "work requirements." But their impact depends on how they are implemented and is likely to be very small — because most people on Medicaid who can work already are working.
• Latest repeal bid may gut one of Obamacare’s most popular provisions (Jennifer Habercorn, Politico, 4-4-17) Conservative Republicans make sneak attack on safeguards for people with pre-existing conditions. They "argue they are protecting people with pre-existing conditions while creating a framework that enables state officials to gut those very protections. White House officials and members of the House Freedom Caucus are discussing giving states the option of a waiver from a key Obamacare protection — called community rating — as part of their last-ditch effort to revive the repeal effort. Community rating is a wonky term for barring insurers from charging sick people more than healthy individuals for the same insurance policy. Without community rating, for instance, insurers could theoretically charge a healthy person $100 per month for a health plan and a sick person $10,000 per month for the same coverage."
• US Public Opinion on Health Care Reform, 2017 (Visualizing Health Policy infographic, 3-29-17) As of March 2017:
---"The largest percentage of Democrats and Republicans give top priority to lowering out-of-pocket costs for health care."
---63% of Republicans vs 21% of Democrats view Affordable Care Act (ACA) repeal as a top priority
---67% of Democrats vs 55% of Republicans view lowering the cost of prescription drugs as a top priority
---49% of the public view the ACA favorably and 44% view it unfavorably
---The majority of individuals in both political parties feel positively about many ACA provisions, including allowing states to expand Medicaid and prohibiting denial of insurance coverage due to preexisting conditions.
---Only 21% of Republicans and 30% of independents favor the individual mandate that requires paying a fine in the absence of health insurance.
---The public is divided on what should happen to the ACA: just more than half say they don’t want lawmakers to repeal the law, about a quarter want a repeal only after replacement plan details are announced, and only 19% favor an immediate repeal in advance of a replacement plan
---64 percent of the public supports guaranteeing a certain level of health coverage for seniors and low-income people, even if the federal government’s spending and role in health care increases.
• Inside the GOP’s Health Care Debacle (Tim Alberta, Politico, 3-24-17) Eighteen days that shook the Republican Party—and humbled a president. By and large, Trump’s first attempt to corral the GOP Congress failed miserably and threatens to paralyze his first-year policy agenda. All this obscures an uncomfortable question for Republicans as they ponder how it is that they control both houses of Congress and the presidency, and yet were unable to get rid of a hated law they spent seven years attempting to destroy. Obamacare, that great white whale Republicans had long hunted—and hoped to harpoon on its seven-year anniversary Thursday—would remain “the law of the land” due to the GOP's inability to function as a “governing body,” the speaker of the House announced.
• Trump’s colossal failure (Jennifer Rubin, WaPo, 3-24-17) "While Ryan loses stature, Trump does not necessarily gain any. Previously he claimed victory merely by decimating the opposition (GOP challengers, Hillary Clinton, a reporter, etc.). Now Ryan’s loss is not Trump’s gain. (It might be Stephen K. Bannon’s gain, but not Trump, who needs to show results.)"
• In Trump country, voters know who’s to blame for the health bill debacle. And it’s not their president (Max Siegelbaum and David Steen Martin, STAT, 3-24-17) Yet a day of talking to Trump voters across the country underscored just how tough it will be to ever work out details that appeal to all the fractious elements of his coalition.
• We Fact-Checked Lawmakers' Letters to Constituents on Health Care (co-published by ProPublica, Kaiser Health News, Stat, and Vox, 3-22-17) An important clarification of which praise and criticism is factually wrong or misleading, and which true. Letters citizens are getting from their legislators from both parties often don't stand up to fact-checking. Similar points made here: 9 health reform lies Congress members are telling their constituents (Charles Ornstein and Julia Belluz, Vox, 3-22-17)
• Fewer Americans Would Be Insured With G.O.P. Plan Than With Simple Repeal (Margot Sanger-Katz, NY Times, 3-21-17) "Getting rid of the major coverage provisions and regulations of Obamacare would cost 23 million Americans their health insurance, according to another recent C.B.O. report. In other words, one million more Americans would have health insurance with a clean repeal than with the Republican replacement plan, according to C.B.O. estimates....The people who would end up without health insurance are slightly different in the two cases. The current bill would cause more people to lose employer insurance, while a straight repeal bill would most likely cause more people who buy their own coverage to become uninsured. A simple repeal would be worse for Americans with pre-existing conditions, but the current bill would be worse for older Americans who are relatively healthy. Both approaches would lead to major reductions in the number of Americans covered by Medicaid."
• The fundamental problem with the American Health Care Act (Marshal Chin, MD, MPH, Kevin MD, 3-15-17) The AHCA tolerates significant health disparities and would make them worse. "The most vulnerable Americans are at highest risk for not being able to afford health insurance and losing access to care. Older persons not yet eligible for Medicare, the poor, and people with multiple chronic medical conditions are at highest risk of losing insurance. The proposed tax credits are insufficient to make health insurance affordable for many of the poor, premiums for the chronically ill on the health exchanges would likely rise significantly, and per capita Medicaid block grants to states would probably result in major cuts to health care funding for the underserved and cannibalization of funds for non-health purposes such as closing state budgetary deficits. Many people would be harmed and would suffer. The Congressional Budget Office estimates that 24 million more Americans would be uninsured by 2026."
• The Parts of Obamacare House Republicans Will Keep, Change or Discard (Haeyoun Park and Margot Sanger-Katz, NY Times, 3-6-17) Excellent chart showing which parts of the Affordable Care Act House Republicans would keep, repeal, or change (compared with how things are at end of Obama's term of office). It fundamentally changes how health care is financed for people who do not have insurance through work, and it eliminates the mandate requiring most Americans to have health insurance, a centerpiece of the Affordable Care Act (considered essential to spread out risk for most unhealthy citizens).
• Ryan Clings to Core of GOP Health Bill as Opposition Mounts (Billy House, Anna Edgerton, and Sahil Kapur, Bloomberg, 3-16-17) With a steady trickle of Republicans coming out against the bill, Ryan is sending the message he won’t drop any of its four main elements -- refundable tax credits, health savings accounts, the phaseout of Medicaid expansion and the ban on insurers denying coverage over pre-existing conditions -- according to a senior Republican aide.
• How Republicans and Democrats can both keep their promises on health care (Darius Lakdawalla and Anup Malani, The Conversation, 3-2-17) Republicans who want to repeal the Affordable Care Act (ACA) emphasize the importance of patient choice and market efficiency. Democrats opposing repeal focus on the need to protect the most vulnerable. President Trump asked for a plan that would “expand choice, increase access, lower costs, and at the same time, provide better health care.” Here's a four-step market-based proposal consistent with those aims: (1) Clear the deck. (2) Stop insurance price regulation. (3) 3. Subsidize insurance premiums for the poor and especially poor households burdened by illness. (4) 4. Switch to long-term insurance contracts. Needless to say, best to read the whole piece.
• No Magic in How G.O.P. Plan Lowers Premiums: It Pushes Out Older People (Margot Sanger-Katz, NY Times, 3-14-17) On premiums alone, prices would rise by more than 20 percent for the oldest group of customers. By 2026, the budget office projected, “premiums in the nongroup market would be 20 percent to 25 percent lower for a 21-year-old and 8 percent to 10 percent lower for a 40-year-old — but 20 percent to 25 percent higher for a 64-year-old.”
"But the change in tax credits matters more. The combined difference in how much extra the older customer would have to pay for health insurance is enormous. The C.B.O. estimates that the price an average 64-year-old earning $26,500 would need to pay after using a subsidy would increase from $1,700 under Obamacare to $14,600 under the Republican plan.""By 2026, the uninsured rate for those 50 to 64 earning less than about $30,000 would more than double, from around 12 percent to around 30 percent. Those older customers who would lose out on insurance coverage are more likely than the young customers who would buy it to need help paying big medical bills."
• Say What? Fact-Checking The Chatter Around The GOP Health Bill (Julie Rovner, Kaiser Health News, 3-13-17) Five items commonly confused (and DO go to the article for a full explanation):
1) The GOP bill would replace the health law’s subsidies with tax credits. (Not really. It would replace the Affordable Care Act’s tax credits with different tax credits.)
2) 2. Republicans have left popular provisions of the ACA in their bill because they are popular. (Not necessarily. They're keeping the parts that allow adult children to stay on their parents’ health plans until they turn 26 and that prohibit insurers from rejecting or charging more to people with preexisting health conditions because the budget rules Congress is using to avert a filibuster in the Senate forbid them from repealing much of the ACA that does not affect government spending.
3) 3. This bill is one part of a three-part effort to remake the health law. (True, and the second and third parts will be more difficult to get passed, requiring considerable time and many legal proceedings.
4) The bill’s Medicaid provisions just scale back the program’s expansion. ("In truth, the Medicaid portions of the GOP bill would fundamentally restructure the Medicaid program. The Republican bill would, for the first time ever, limit the amount the federal government provides to states for Medicaid spending. The left-leaning Center on Budget and Policy Priorities estimates that states could be on the hook for an additional $370 billion over 10 years if the bill becomes law.
5) 5. The GOP bill is a huge tax break for the wealthy. (Technically true, because they are repealing nearly all the taxes that helped pay for the health law’s benefits, and the Democrats had targeted many of those to higher-income people.)
• How the Republican Health Plan Could Affect You (Haeyoun Park, Margot Sanger-Katz, and Sergio Pecanha, NY Times, 3-12-17) Excellent scenarios, showing when you might benefit (and how) and when not (and how not).
• Rep. Joe Kennedy III forces Paul Ryan to admit that the Republican House plan excludes coverage for mental illness (Daily Kos, 3-9-17)
• Congressional Budget Office: 24 million more uninsured under GOP bill over a decade (Peter Sullivan and Jessie Hellmann, The Hill, 3-13-17) The CBO report finds that the 24 million people would become uninsured by 2026, largely due to the proposed changes in Medicaid. The bill both ends the extra federal funds for the expansion of Medicaid and caps overall federal spending for the program, both of which CBO says would lead to people losing coverage. The report finds 7 million fewer people would be insured through their employers by 2026, both because some people would choose not to get coverage and some employers would decline to offer it. CBO finds that people's out-of-pocket costs, including deductibles, "would tend to be higher" because of a loosening of requirements on insurers. Deductibles would be higher and financial assistance for low-income people available under ObamaCare to help them pay their deductibles would be repealed. "n positive news for Republicans, the CBO finds the legislation would decrease the federal deficit by $337 billion over the 2017-2026 period, mostly through the elimination of ObamaCare’s Medicaid expansion and the law’s subsidies to help people buy insurance."
• The American Health Care Act: the Republicans’ bill to replace Obamacare, explained (Sarah Kliff, Vox, 3-6-17) Under legislation proposed by the House, the GOP health care plan takes from poor Americans, to give to richer ones. Some of Obamacare’s signature features are gone immediately, such as the tax on people who don’t purchase health care. The replacement plan benefits people who are healthy and high-income, and disadvantages those who are sicker and lower-income. The bill looks a lot more like Obamacare than previous drafts. AHCA would end Medicaid expansion in 2020. The AHCA bans discrimination against those with preexisting conditions — but charges more to people who have a break in coverage. (Buy insurance later and you pay a surcharge. This might end up having unintended consequences, because only the people who really need insurance — and who have high medical costs — may want to pay the surcharge. That could drive up premiums for everybody. The AHCA would let insurers charge older enrollees up to five times more than young enrollees.
• Examining The House Republican ACA Repeal And Replace Legislation (Timothy Jost, Health Affairs blog, 3-7-17)
• No Wonder the Republicans Hid the Health Bill (NY Times Editorial, 3-7-17) The bill they released on Monday would kick millions of people off the coverage they currently have. So much for President Trump’s big campaign promise: “We’re going to have insurance for everybody” Read the details!
• Who benefits from Health Savings Accounts (HSAs)?
• G.O.P. Health Bill Faces Revolt From Conservative Forces (Jennifer Steinhauer, NY Times, 3-7-17) "...many of the factions that provided financial and political support to back Republicans who vowed to wipe out the Affordable Care Act are nowhere near satisfied with the option rolled out on Monday....Some conservatives have labeled the House plan “Obamacare lite,” saying it is nearly as intrusive in the insurance market as the law it would replace.In particular, they dislike the delay in getting rid of the law’s Medicaid expansion. They also dislike the tax credits in the Republican plan, which can exceed the amount a consumer actually owes in federal income taxes, meaning that the Internal Revenue Service would be issuing checks to cover insurance premiums. The House plan also maintains many of the demands on insurers that the Affordable Care Act has, including a defined suite of “essential benefits” that all insurers must offer."
• Repeal of Health Law Faces a New Hurdle: Older Americans (Robert Pear, NY Times, 3-5-17) Under current rules, insurers cannot charge older adults more than three times what they charge young adults for the same coverage. House Republican leaders would allow a ratio of five to one — or more, if states choose. Before the Affordable Care Act took effect, about 40 states allowed insurers to charge older adults five times as much as young adults. This appears to be consistent with patterns of medical spending. At the same time, the Republican proposal could reduce the financial assistance available to help people pay insurance premiums. The Government Accountability Office, an investigative arm of Congress, has found the marketplaces “vulnerable to fraud” because they do not adequately check the identity of people applying for financial assistance.
• How Affordable Care Act Repeal and Replace Plans Might Shift Health Insurance Tax Credits (Cynthia Cox, Gary Claxton, and Larry Levitt, Kaiser Health News, 3-1-17) What is a Tax Credit, and how is it different from a Deduction? Also explained: the difference between a refundable tax credit, an advanceable tax credit, etc. The underlying details of health reform proposals, such as the size and structure of health insurance tax credits, matter crucially in determining who benefits and who is disadvantaged.
• Points to consider from the Kaiser Family Foundation. A roundup of key points to consider, and documents to study.
• Major Considerations for Repealing and Replacing the Affordable Care Act (Kaiser Family Foundation, or KFF.org, and the Committee for a Responsible Federal Budget). Video of a public forum to discuss the process and implications of repealing and replacing the Affordable Care Act. The discussion covered the implications of using the budget reconciliation process to repeal the ACA, and what an ACA replacement could mean for health insurance coverage and costs.
• Nate Beeler's cartoon ‘Past Prologue?’ captures the heart of the Republic dilemma. Looking at a tome called Obamacare in 2010, the Democrat says, "We need to pass it to find out what's in it." Looking at the same tome in 2017, the Republicans say, "We need to repeal it to find out what to replace it with." Having promised to repeal the Affordable Care Act, the Republicans had better come up with something that, if not better, at least won't be worse.
• Patience Gone, Koch-Backed Groups Will Pressure G.O.P. on Health Repeal (Jeremy W. Peters, NY Times, 3-5-17) "Saying their patience is at an end, conservative activist groups backed by the billionaire Koch brothers and other powerful interests on the right are mobilizing to pressure Republicans to fulfill their promise to swiftly repeal the Affordable Care Act. Their message is blunt and unforgiving, with the goal of reawakening some of the most extensive conservative grass-roots networks in the country. It is a reminder that even as Republicans control both the White House and Congress for the first time in a decade, the party’s activist wing remains restless and will not go along passively for the sake of party unity. With angry constituents storming town hall-style meetings across the country and demanding that Congress not repeal the law, these new campaigns are a sign of a growing concern on the right that lawmakers might buckle to the pressure." Tim Phillips, the president of Americans for Prosperity, which is coordinating the push with other groups across the Kochs’ political network, says “Our network has spent more money, more time and more years fighting Obamacare than anything else. And now with the finish line in sight, we cannot allow some folks to pull up and give up.”
• Six Quick Observations On The Leaked Draft Republican Repeal And Replace Plan (Seth Chandler, Forbes, 2-25-17)
• The Health Care Plan Trump Voters Really Want (Drew Altman, NY Times, 1-5-17) "Those voters have been disappointed by Obamacare, but they could be even more disappointed by Republican alternatives to replace it. They have no strong ideological views about repealing and replacing the Affordable Care Act, or future directions for health policy. What they want are pragmatic solutions to their insurance problems. The very last thing they want is higher out-of-pocket costs."
• In Red-State Utah, a Surge Toward Obamacare (Abby Goodnough, NY Times, 3-3-17) "From the moment the Affordable Care Act passed in 2010, most elected officials in this sturdily Republican state have been eager to squash it. But something surprising is happening here. Despite deep uncertainty about the law’s future, Utah recorded one of the biggest increases of any state in residents who signed up for coverage under the act this year. Now, the state is seeing a surprising burst of activism against repealing the law — including from Republicans."
• The Health Care Plan Trump Voters Really Want (Drew Altman, New York Times, 1-5-17) Altman draws on observations from focus groups in rust belt states of people in the Affordable Care Act (ACA) marketplaces who voted for President-elect Trump and say they may not like their coverage under the ACA but could like Republican replacement plans even less. “The Washington debate is disconnected from the concerns of working people,” he says.
• What reporters need to keep in mind as they cover the Obamacare repeal story (Kellie Schmitt, Remaking Health Care, 1-26-17) In a Center for Health Journalism webinar this , leading health policy experts discussed possible replacement proposals and their flaws, and offered suggestions on how journalists can best navigate this huge, fast-moving story. Speakers included MIT’s Jonathan Gruber, an architect of the ACA; American Enterprise Institute's Joseph Antos; and Jennifer Haberkorn, senior health care reporter for Politico. Schmitt reports what panelists said.
• Piling on the Affordable Care Act while giving private insurers a free pass (Gary Schwitzer, Center for Health Journalism, 11-3-16) The ACA has become a scapegoat in the media for all kinds of health care woes. "Somebody needs to be the referee on some of the cheap shots flying around on an uneven playing field," says Health News Review's Gary Schwitzer.
• With Obamacare in limbo, the transition toward value-based care faces big challenges (David Lansky, Remaking Health Care, 1-24-17) Amid talk of ACA repeal, the signs suggest that the new Congress and president will diminish the emphasis on value-based health care. Here's what reporters should keep in mind.
• Remaking Health Care (?Center for Health Journalism) This thoughtful blog explores how health reform is changing the ways in which we pay for and deliver health care in the U.S. On any given week, that could mean a look at how Republican plans to repeal Obamacare could reshape the individual insurance market, how the safety net system is adapting to new financial pressures, or whether Trumpcare will affect the trend of doctors and hospitals merging into ever-larger entities. It also explores health care costs and whether Obamacare or its successor plans can live up the promise to rein them in.
• In growing fight over Medicare, honest language takes a beating (Trudy Lieberman, Remaking Health Care, Center for Health Journalism, 2-9-17) "We are now in another war of words over health care," writes Trudy Lieberman, "and the first casualty, as in any war, is always truth." Look no further than Medicare. Republicans, in a drive to privatize Medicare, are coached to talk about "saving Medicare." GOP spinmeister Frank Luntz warns Republicans "not to talk about 'improving' Medicare because seniors immediately think of new benefits like eyeglasses, hearing aids, lower deductibles, and free prescription drugs, which the GOP had no intention of providing. (In 2003 Congress did pass legislation authorizing a prescription drug benefit, but as part of the deal the law also took a big step toward privatizing the program.)...their real intent to transform Medicare from a social insurance program to a privatized system using commercial insurers to provide all the coverage, much like Obamacare does. The underlying goal: shift more of the responsibility for paying seniors’ health care bills from the federal government to seniors themselves."
• Why Obamacare’s promise of an affordable health system is dead (Trudy Lieberman, Center for Health Journalism, 11-21-16 ) Republicans, with their relentless insistence on repealing and replacing the ACA, have reframed the discussion of what’s politically possible to achieve in America at the moment.
• How to Repeal Obamacare: A road map for the GOP (Paul Winfree and Brian Blasé, Politico, 11-11-16)
• Introduction to Budget “Reconciliation” (David Reich and Richard Kogan, Center on Budget and Policy Priorities, or CBPP, 11-9-16)
• Compare Proposals to Replace The Affordable Care Act (Kaiser Health News) President Donald Trump and Republicans in Congress have committed to repealing and replacing the Affordable Care Act (ACA). How do their replacement proposals compare to the ACA? How do they compare to each other?
• A Bipartisan Reason to Save Obamacare (Tina Rosenberg, Opinion, NY Times, 1-4-17) "The A.C.A. is more than insurance. As the Times reported Monday, the law is leading a transformation of America’s health care system. It’s a change that nearly everyone, Republicans and Democrats, agrees is desperately needed — and for it to happen, the relevant parts of the A.C.A. must be preserved. The transformation moves health care away from a fee-for-service model, which pays doctors and hospitals according to the number of procedures they do, toward value-based care, which pays based on what helps patients get better." The author then explores various experiments in this new approach that have paid off and should continue to be encouraged.
• Interactive Maps: Estimates of Enrollment in ACA Marketplaces and Medicaid Expansion (Kaiser Health News, 1-10-17)
• GOP Rebrands Obamacare Strategy From ‘Repeal’ to ‘Repair (Anna Edney, , Billy House, , and Zachary Tracer, Bloomberg.com, 2-1-17) Lawmakers advised to shift to friendlier Obamacare messaging. Some try out ‘repair’ as others stick with stronger words. Republicans are grappling with their party’s desire -- and President Donald Trump’s promise -- to dismantle Obamacare, as well as the political disaster that could ensue if millions of Americans lose coverage as a result of legislation. A Jan. 6 Kaiser Family Foundation poll found that 75 percent of Americans either are opposed to Congress repealing Obamacare or want lawmakers to wait until they have a replacement ready before repealing it. Lately, Trump has pivoted to pledging insurance for everyone. Conservatives have voiced frustrations about the slow pace of repeal, aiming to get rid of the law as soon as possible and figure out a replacement later, if at all.
• Employers Fret Job-Based Coverage Vulnerable To Fallout From GOP Health Overhaul (Jay Hancock, KHN, 2-3-17) Through years of acrimony over Obamacare coverage for the poor and other individuals lacking health policies, one kind of insurance has remained steady, widespread and relatively affordable. Employer-sponsored medical plans still cover more Americans than any other type, typically with greater benefits and lower out-of-pocket expense. Now, as President Donald Trump promises a replacement for the Affordable Care Act that will provide “insurance for everybody,” employers worry Republican attempts to redo other parts of the insurance market could harm their much larger one. Business dislikes many parts of the ACA, including its substantial paperwork, the mandate to offer coverage and the “Cadillac tax” on high-benefit plans that takes effect in 2020. But large companies in particular — those that have always offered job-based insurance — say a poorly thought-out replacement might turn out to be worse for them and their workers.
• About That Cadillac Tax (Jeff Lemieux and Chad Moutray, Health Affairs blog, 4-25-16). In December 2015 Congress passed and the President signed a two-year delay of a 40 percent excise tax on high-cost employer-sponsored health plans, also known as the “Cadillac Tax.” This delay, part of a year-end government funding package, changed the effective date from 2018 to 2020. Economists are generally keen to reduce or cap “tax expenditures,” like the current tax exclusion, to help prevent overuse of tax-favored items. They also tend to worry about the relative inefficiency of the health sector in particular, and the adverse impact of ever-higher health costs on federal and state budgets. Political leaders oppose it. The indexing problem and the adaptation question are issues that warrant caution before implementing the Cadillac tax. Although health plans administering employer benefits would pay the tax, the cost would be passed through to the health plan enrollees. Read fuller explanation in this article.
• Ryan plans to steamroll Democrats with budget tool (Ben Weyl, Politico, 10-06-16) While GOP leaders have made threats in the past to use reconciliation to repeal Obamacare, Ryan is making it clear he plans to use it when it counts.
• GOP eyes new ObamaCare strategy: Repeal and delay (Peter Sullivan, The Hill, 11-17-16) A Republican plan to quickly repeal most of ObamaCare but delay the effects for up to two years is gaining steam on Capitol Hill.
• Marketplace Enrollment Still Important Despite Plans For Health Law Repeal (Michelle Andrews, Kaiser Health News, 12-13-16) Since Republicans have plans to repeal the federal health law, should consumers still sign up for next year’s coverage? And if the health law marketplaces disappear, might Medicare eligibility be expanded? Andrews answers recent questions from readers. "Republicans have pledged that if they repeal the law they’ll provide a transition period so that people won’t be stuck without coverage. But if you miss the enrollment period that ends on Jan. 31, you will be cutting yourself off from coverage for the year."
• What Are the Implications of Repealing the Affordable Care Act for Medicare Spending and Beneficiaries? (Juliette Cubanski, Tricia Neuman, Gretchen Jacobson, and Cristina Boccuti, Kaiser Family Foundation, 12-13-16)
• Preexisting Conditions and Republican Plans to Replace Obamacare (Drew Altman, Think Tank column, Wall Street Journal, via KHN, 12-9-16) "A Kaiser Family Foundation analysis to be released next week found that almost 30% of U.S. adults younger than 65 have health conditions that would have left them uninsurable in a pre-ACA world. Many more people have conditions with which they could still qualify for coverage before ACA protections took effect–but only at premiums they could not afford. Many people with conditions over which coverage could be declined before the ACA live in big red states (there are more than 4 million in Texas, for example) and in blue states (nearly 6 million in California)."
• An Estimated 52 Million Adults Have Pre-Existing Conditions That Would Make Them Uninsurable Pre-Obamacare (Kaiser Health News, 12-12-16) In Eleven States, 3 in 10 Non-Elderly Adults Would Likely Be Denied Individual Insurance Under Medical Underwriting Practices
• Repeal of Obamacare could cause the ‘death spiral’ critics warned about (Larry Levitt, OpEd, Los Angeles Times, 12-12-16) According to recent news reports, [Republicans] will seek to repeal the law before they figure out how to replace it.
• FACT CHECK: Once Again, Lawmakers Are Stretching The Facts On Obamacare (Scott Horsley, Politics, National Public Radio, 1-4-17). Fact checking the following claims: Obamacare suffers from "massive premium increases." "You're stuck with one option" under Obamacare. "The health care system has been ruined, dismantled under Obamacare." ACA repeal would "rip health care away from millions." Rural hospitals are going to suffer.
• New push to replace Obamacare reignites old GOP tensions (Mike DeBonis and Kelsey Snell, WaPo, 12-11-16) “I’d like to do it [repeal Obamacare] tomorrow, but reality is another matter sometimes,” said Sen. Orrin G. Hatch (R-Utah).
• After Health-Care Repeal Vote, Some In GOP Fear A Cliff (Alan Fram, AP, PBS Newshour, 12-12-16) "Republicans are eagerly planning initial votes next month on dismantling President Barack Obama's health care law, a cherished GOP goal. But many worry that while Congress tries to replace it, the party will face ever-angrier voters, spooked health insurers and the possibility of tumbling off a political cliff. Republicans have said they first want to vote to unwind as much of the health care law as they can, though it wouldn't take effect for perhaps three years. That's to give them and new President Donald Trump time to write legislation constructing a new health care system — a technically and politically daunting task that has frustrated GOP attempts for unity for years."
• Trump and the GOP are charging forward with Obamacare repeal, but few are eager to follow (Noam N. Levey, Los Angeles Times, 12-12-16) "Not a single major organization representing patients, physicians, hospitals or others who work in the nation’s healthcare system backs the GOP’s Obamacare strategy. New polls also show far more Americans would like to expand or keep the healthcare law, rather than repeal it. Even many conservative health policy experts caution that the emerging Republican plan, which calls for a vote in January to roll back insurance coverage followed by a lengthy period to develop a replacement, could be disastrous."
• GOP Will Kill Obamacare … And Then Fund It (Paul Demko, Politico, 12-9-16) Republicans are going to kill Obamacare — but first they might have to save it. The already fragile Obamacare markets — beset by soaring premiums and fleeing insurers — are likely to collapse unless Republicans take deliberate steps to stabilize them while they build consensus on a replacement plan, say health care experts. That could lead to a mess for the roughly 10 million Americans currently getting coverage through the government-run marketplaces — and backlash against the GOP.
• Republicans Face Dilemma on Timing of Health-Law Replacement (Stephanie Armour and Kristina Peterson, WSJ, 12-9-16) Do they act before or after the 2018 midterm elections? Either choice carries political risks. Waiting until after the midterms could pose a political risk to the most conservative Republicans who campaigned on the repeal and whose constituents want the law to be gone as quickly as possible.
• Health care industry is worried by GOP's 'Obamacare' repeal path (AP, CNBC, 12-10-16) "One by one, key health care industry groups are telling the incoming Republican administration and Congress that it's not a good idea to repeal the 2010 health care law without clear plans to address the consequences. Hospitals, insurers and actuaries — bean-counters who make long-range economic estimates — have weighed in, and more interest groups are expected to make their views known soon. Representing patients, the American Cancer Society Cancer Action Network reminded lawmakers that lives are at stake."
• Trump Voters Stand to Suffer Most From Obamacare Repeal and a Trade War (Martha C. White, NBC, 2-6-17) “An analysis by the Kaiser Family Foundation found that 6.3 million of the 11.5 million Americans who used the A.C.A. marketplace to buy their insurance last year live in Republican congressional districts. Policy analysts say that a rollback of the A.C.A. would hurt older and rural Americans — two populations that favored Donald Trump over Hillary Clinton in the presidential election.”
• When Health Law Isn’t Enough, the Desperate Line Up at Tents (Trip Gabriel, NY Times, 7-23-17) The Remote Area Medical Expedition, held at a county fairground in Appalachia over three days, draws patients from states like Virginia that did not expand Medicaid to childless adults among the working poor, as the law allowed--drawing especially from the 29 million Americans who still lack health insurance. The group, staffed by medical volunteers, has treated more than 700,000 people at free clinics around the country and overseas since 1985. One man gets disability benefits for mental health issues, but the plan does not cover a dentist. "Only 16 percent of the patients who visited the clinic were employed full time, according to data collected by Remote Area Medical, known as RAM. Twenty-five percent were disabled. Ninety-two percent were white." “We’re sicker here than in Central America,” said Dr. Smiddy, who has volunteered on charity health trips there. “In Central America, they’re eating beans and rice and walking everywhere. They’re not drinking Mountain Dew and eating candy. They’re not having an epidemic of obesity and diabetes and lung cancer.” "... if the Republican-controlled General Assembly in Richmond would expand Medicaid, 400,000 low-income Virginians would be helped. Republicans, who hold all seats in southwest Virginia, say the Affordable Care Act is a failure."
• Health Insurance: How Does It Work? (Yonatan Zunger, Health Care in America, Medium, 2-15-17) Four Questions to Ask About Health Care Reform. Three different things get bundled under the misleading name “health insurance:” (1) Ordinary health insurance , which splits up the cost of your expected lifetime medical bills over time; (2) Catastrophic health insurance , which splits up the cost of rare expenses so big that people couldn’t pay them across everyone; and (3) Access to the health care system itself . How does a proposal handle those three? And any health care proposal that involves any spreading out of costs faces the same question as a tax proposal: how do we spread out that cost? "What mechanism do we use to collect that — insurance premiums and fines, an overall tax payment, something else? If not, what do we do with people at risk for cancer?"
• Scripps CEO Chris Van Gorder: 'Good' healthcare law 'will not come out of back room deals' (Tamara Rosin, Becker's Hospital Review, 3-24-17) "If we hope to get this legislation right for the country, we should be working together across party lines and truly involving the experts — healthcare providers. At some point for all of us, healthcare will become the most important thing in our life. That's why good legislation will not come out of back room deals and forcing a vote in a short period of time. Let's develop something sustainable that's good for Americans and not just special interests."
• Pharmaceutical Marketing for Rare Diseases: Regulating Drug Company Promotion in an Era of Unprecedented Advertisement (Sham Mailankody and Vinay Prasad, JAMA Network, 5-18-17) Highlighting and quoting points made in the article: The US Food and Drug Administration (FDA) draws a distinction between direct-to-consumer advertising of specific drug products, which it regulates, and advertisements intended to create disease awareness, which it does not. This year, General Hospital, the longest running US soap opera, advanced a plotline whereby a star character was diagnosed as having polycythemia vera (PV) and a blood clot. Highlighting this specific cancer represents the culmination of a partnership between the Incyte Corporation and the producers of General Hospital to raise awareness for MPNs as part of the rare disease month. First, is disease awareness marketing in disguise? Second, do disease awareness campaigns promote specific drug sales? Third, does disease awareness have benefits? Fourth, could this campaign lead to overdiagnosis? "The challenge that faces the medical profession is balancing the need to regulate truthful but perhaps misleading medical communication with the strong constitutional interpretation of free speech. See also Collusion between Hollywood script writers and pharmaceutical companies isn’t new. Nor is the call to regulate it. (Mary Chris Jaklevic, HealthNewsReview.org, 6-1-17)
• Insurers Battle Families Over Costly Drug for Fatal Disease (Katie Thomas, NY Times, 6-22-17) Duchenne muscular dystrophy overwhelmingly affects boys and causes muscles to deteriorate, killing many of them by the end of their 20s. Nolan and Jack Willis are twins who took part in a clinical trial that led to the approval last fall of the very first drug to treat their rare, deadly muscle disease, Exondys 51, manufactured and sold by Sarepta Therapeutics. The drug can cost more than $1 million a year even though it’s still unclear if it works. "While insurers once covered drugs for rare diseases as a matter of course, that may be changing now that a wave of expensive drugs have reached the market. The pharmaceutical industry has been in hot pursuit of an increasingly enticing demographic target: An estimated 30 million people in the United States — about 10 percent of the population — are living with one of roughly 7,000 rare diseases. The agency’s approval of Exondys 51, though, prompted a rebellion among some insurers, who are refusing to play along and saying they are concerned about the cumulative impact of such breathtakingly expensive drugs on health care costs."
• Where Both the ACA and AHCA Fall Short, and What the Health Insurance Market Really Needs (David Blumenthal and Sara Collins, Harvard Business Review, 3-21-17) "First, these insurance markets were distressed before the enactment of the Affordable Care Act. Second, the ACA improved their functioning but was not sufficient as passed and implemented to stabilize all of them. Neither, however, is the American Health Care Act (AHCA), the repeal and replacement legislation proposed by House Republicans and embraced by President Trump. Third, the reforms that will improve individual markets, which we discuss below, are known. They include greater balance between premium subsidies and penalties for not taking up coverage, using proven mechanisms for stabilizing risks such as reinsurance, and accelerating efforts to control the costs of health care services. To date, the United States has just lacked the political will to adopt them."
• What’s Past Is Prologue: CBO’s Score for the House-Passed AHCA Reminds Us Why Insurance Markets Need Regulation (Sara R. Collins, Commonwealth Fund, 6-2-17)
• Poll: U.S. unready for future long-term care needs (Liz Seegert, Covering Health, AHCJ, 6-20-17) Medicare does not cover many long-term care expenses such as nursing homes or home health aides. Medicaid pays for most nursing home care and community-based long-term services and supports (LTSS) in the United States. Nearly 75 percent of respondents could not accurately estimate the costs of long-term care, either in a nursing home, assisted living, or hiring a part-time home care aide.
• Stopping surprise medical bills: Federal action is needed ( Loren Adler, Mark Hall, Caitlin Brandt, Paul B. Ginsburg, and Steven M. Lieberman, Brookings, 2-1-17) Surprise balance billing is widespread. "Even when patients are diligent in seeking an in-network hospital or lead physician, their care often involves consulting specialists – such as radiologists, anesthesiologists, pathologists, neonatologists, or assistant surgeons – who are out-of-network and whom the patient has no role in selecting. Legally, patients might be able to challenge such surprise bills in court, but existing law is not clear on what billing is permissible, and patients seldom are able or willing to undertake expensive and stressful litigation in such situations." Federal action is needed to protect all consumers and assure a “level playing field,” particularly as narrow networks grow increasingly common for employer-sponsored as well as individual insurance." States play an important part in the regulation of insurance markets...but states cannot protect more than half of commercially-insured consumers due to an arcane federal law, known as the Employee Retirement Income Security Act of 1974 (ERISA), which exempts almost 100 million people in private insurance plans from state regulation because their plans are self-funded by employers. And based on existing evidence, there is no reason to believe that surprise balance billing is substantially less prevalent under self-funded employer plans than under other, commercially insured private plans."
• Health policy issues (Association of Health Care Journalists, or AHCJ)
• A Regulation That Protects Big-Hospital Monopolies (Hal Scherz, Wall Street Journal, 6-13-17) By restricting construction of new medical facilities, certificate-of-need laws drive up health-care costs. In Cartersville, Ga., two highly regarded obstetricians, Hugo Ribot and Malcolm Barfield, hoped to add a second room to their one-room surgery center. But the plan hit a snag. They needed to obtain a “certificate of need” from Georgia’s Department of Community Health. Three large hospitals in the area—which provide similar services at far higher cost—blocked their application. Dr. Ribot and Dr. Barfield are now suing the state for restraint of trade.
• Health Reform reading list (Joanne Kenen, AHCJ, resources for journalists) ****
• Diagnosing Health of the Healthcare System (animated video, Peterson-Kaiser Health System Tracker, measuring the performance of the U.S. health system). See more Peterson-Kaiser charts, tracking health care trends.
• Who benefits from Health Savings Accounts (HSAs)?
• Many Parents With Job-Based Coverage Still Turn To Medicaid, CHIP To Insure Kids (Michelle Andrews, Kaiser Health News, 12-9-16)
• 12 steps to make America’s health care great again (Michael F. Weisberg, MD, KevinMD, 2-23-17) This is an agenda the Trump administration is likely to reject wholesale.
• The Tooth Divide: Beauty, Class and the Story of Dentistry (Sarah Jaffe, NY Times, 3-23-17), a review of Mary Otto's book Teeth: The Story of Beauty, Inequality, and the Struggle for Oral Health in America. "If the idea of death from tooth decay is shocking, it might be because we so rarely talk about the condition of our teeth as a serious health issue....Otto’s book begins and ends with the story of Deamonte Driver, a 12-year-old Maryland boy who died of an infection caused by one decaying tooth, and the system that failed him. In pointing out the flaws in that system, Otto takes us back through the history of dentistry and shows us how the dental profession evolved, separately from the rest of health care, into a mostly private industry that revolves almost entirely around one’s ability to pay. In other words, all of the problems with health care in America exist in the dental system, but exponentially more so....A dentist tells Otto that members of his profession “once exclusively focused upon fillings and extractions, are nowadays considered providers of beauty.” And thanks to decades of deregulation, allowing medical advertising and then medical credit cards...dentists make more per hour than doctors." BUT "One-third of white children go without dental care, Otto notes; that number is closer to one-half for black and Latino children. Forty-nine million people live in “dental professional shortage areas,” and even for those who do have benefits under public programs like Medicaid, which ostensibly covered Deamonte Driver and his siblings, it can be difficult to find a provider....Yet in a country where the party in power fights tooth and nail against expanding regular health care benefits, what chance do we have of publicly funded dental care? ...Though more women are dentists these days, the job of hygienist grew from men’s expectations of women’s appropriate work, and it has always, Otto notes, made dentists nervous when hygienists move to be more independent. Plans to put dental hygienists in public schools, for instance, have been squashed by dentists’ associations....In addition to the fear of competition from hygienists, Otto details dentistry’s fear of socialized medicine and how that fear kept the profession largely privatized." Otto's book explores "a two-tiered system — it is a call for sweeping, radical change."
• I remember a pre-NHS Britain. I don't want to see a post-NHS one (Shirley Murgraff, The Guardian, 10-7-11) "If our leaders won't protect the jewel in the crown of civilised society, it's time to act. Join me on the UK Uncut protest."
• A Chance to Talk About Drug Prices is Slipping Away (Richard Young MD, American Health Scare, 7-9-16) The new hepatitis C drug Harvoni costs $1000 per pill for a total of $84000 for treatment. Initially, state Medicaid plans did not cover the drug except in very narrow circumstances, but under reports of the threat of a lawsuit many Medicaid plans are expanding coverage. "According to a study by the AARP, the average retail price of 115 specialty drugs for diseases ranging from cancer to multiple sclerosis to rheumatoid arthritis cost more per year than the median household income." "Other countries have the maturity and courage to have conversations about the best use of collective resources that always include restrictions on expensive treatments to only those patients who will likely experience significant benefit."
• Medical Whistleblower Advocacy Network
• Curing Medicare: One doctor's view of how our health care system is failing the elderly and how to fix it by Andy Lazris. Don't have the book yet? Read the blog: An Inside Look at Health Care for the Elderly and Medicare
• Actuaries’ analysis of ACA alternatives can inform news coverage (Joanne Kenen, Covering Health: Monitoring the Pulse of Health Care Journalism, 2-24-17) The American Academy of Actuaries has released three papers analyzing long-time conservative ideas about health reform. These alternatives – high-risk pools, selling insurance across state lines, and association health plans (AHPs) – are playing a high-profile role in the debate over ACA “repeal and replace.” (AHPs allow an organization or group to pool together to buy insurance, likely without the current regulatory framework over required benefits and consumer protections.) The three actuary briefs:
---Using High-Risk Pools to Cover High-Risk Enrollees.
---Association Health Plans
---Selling Insurance Across State Lines
• What we know about how health insurance affects health (Carolyn Y. Johnson, Washington Post, 9-8-15) "The real question now may not be how big the effect of insurance is on health, but how to structure insurance so that it gives people the best chance of staying healthy. There is also growing interest in comparing insurance coverage to other ways that money could be spent to improve health, for example by reducing poverty, which is associated with poor health outcomes, spending on food stamps, or structuring insurance plans differently. 'We know we improve health care coverage, but .... what are some of the other strategies to improve health?' Long said."
• Study: Medicaid Expansion Encourages More Poor Adults To Get Health Care (Phil Galewitz, Kaiser Health News, 4-18-16) In states that expanded Medicaid under the Affordable Care Act, low-income adults were more likely to see a doctor, stay overnight in a hospital and receive their first diagnoses of diabetes and high cholesterol.
• The most important thing you’re not discussing with your doctor (Melissa Armstrong, The Conversation, 2-15-17) "The Institute of Medicine (IOM) released the landmark publication Crossing the Quality Chasm 15 years ago. The report proposed six aims for improvement in the U.S. health system, identifying that health care should be patient-centered, safe, effective, timely, efficient and equitable." That means shared decision-making, honoring the patient's goals and values,
• Why U.S. medical costs are so high and where the system needs fixing . Links to important series and articles on this problem.
• What being overwhelmed by rules and regulations looks like (Fred N. Pelzman, KevinMD, 8-31-14)
• Concierge Care (Deborah Pierce, Pulse, 12-20-13) "...very often the efficient, patient-centered care [my cat] Humphrey received is not available to human patients who face similar illnesses. Most people's medical insurance will not reimburse medical providers for two visits on a single day; nor can you obtain ultrasounds or CT scans on the same day as a consultation. Delay is often the norm, not the exception....And I wonder: what if we could set up the human healthcare system so that the communication, competence and kindness that made Humphrey's care so special--that made it so humane--were not only valued but also reimbursed?"
• Confessions of a 75-Year-Old Drug Addict (Arlene Silverman, Pulse, 1-22-10) "There's sort of a war going on in the field of pain management, he continues. One camp worries about opiate addiction; the other is more concerned about the effects of long-term pain. It seems that, given my pain's severity, my doctors opted for opiates.
• A Generation X physician embraces the millennial doctor perspective (Sherwin Gallardo, MD, Physician, posted on Kevin MD, 2-21-16) "And in the students and residents I teach, I see in their faces, with each repetitive click of the mouse and keyboard EMR shortcut, their passion for medicine slowly fade. Many of them match in our residency program with their wellness accounts already in negative balance, or precariously close to empty — the product of an obsolete, hierarchical medical education system that still often relies on overwork and humiliation as a sort of rite of passage with no formal teaching on how to deal with emotions, time management, financial or business competence, or self-care. What little they have left to give often evaporates in the face of endless utilization measurements, and required documentation for meeting regulatory mandates and Medicare coding. In the name of efficiency, my residents’ progress notes on the inpatient medicine service all begin to look frighteningly similar and generic. Often at the expense of learning why and how an ACE-inhibitor helps their heart failure patient, they are consumed in exercises of futile box-checking and the metrics game of whether or not they documented that the ACE-inhibitor was ordered upon discharge."
• We are not taking care of nurses. Who will heal the healers? (Michael Kirsch, Kevin MD, 10-3-16) Nurses are routinely required to care for more patients than they should because there is a nursing shortage on a particular day. Why do hospital administrators allow this to happen? Don’t administrators fear the risk of medical errors from overworked nurses? Nurses have confided for years how demoralized they are that no one speaks for them.
• What do we do when antibiotics don’t work any more? Public health journalist Maryn McKenna's excellent TED talk, recounting the often terrifying stories behind emerging drug-resistant diseases that medical science is barely keeping at bay. "We've squandered the advantages of penicillin and the antibiotics that followed. New, drug-resistant bacteria mean we're entering a post-antibiotic world -- and it won't be pretty. There are, however, things we can do ... if we start right now."
• Where Does Rationing Fit Into Healthcare Reform? (Trisha Torrey, About Health, 11-24-14) Rationing is not new, nor will it be any better or worse under healthcare reform. Private insurers too often deny care based on cost -- a form of rationing. Care is also rationed denial of coverage and care for people with pre-existing conditions. See What Is Healthcare Rationing?
• In a State of Denial (Norman Bauman, New Scientist, 10-7-95). Thousands of Americans will die of AIDS because politicians refuse to believe scientists who say needle exchanges make good sense
• Politicians need to get over their squeamishness about needle exchange programs (Christopher Ingraham, Wash Post, 3-24-15) There's widespread evidence going back decades that needle exchange programs are effective at preventing the spread of HIV and other blood-borne diseases, that they encourage drug users to seek treatment for their addictions, and that they do not promote or encourage drug use overall.
• Older people risk losing access to health information if services move online and to the phone (UK) (press release, International Longevity Centre, UK, 2-12-15)
• Controversies in Hospital Infection Prevention (Stopinfections.org)
• Finding the full story behind hospital mergers, consolidations (Joanne Kenen, Health Journalism blog, 3-10-15) "Across the country, health systems are getting larger, gobbling up community hospitals or smaller chains. Some of this has to do with payment incentives in Obamacare, but just as much has to do with changes to Medicare, Medicaid and providers’ desire for leverage as they negotiate payments with insurance companies." See New York’s leading health systems differ on growth strategy (Dan Goldberg, Capital Magazine, 3-10-15). Goldberg explains how the old model (fee for service, which meant chronically ill patients were good for business), differs from the new model (paying a set amount per patient or per service, encouraged by ACA, state Medicaid reforms, shifting demographics, and Medicare's ACO models and payment penalties), which provides an incentive to treat more patients but also provide less in-patient service. These five NY systems represent two camps: one "believes in aggressive upsizing"; the other, wary of affiliation with other hospitals, "made strategic investments and focused on ambulatory care and their traditional role as teaching hospitals. They have steered well clear of the insurance business." Excellent explanations.
• How to destroy a great ER: A step by step guide (Thomas Paine, MD, Kevin MD, 4-19-16) Take a small independent, locally administered hospital in the suburbs, make it part of a large regional health care system (in a merger), and follow his steps for creating an ER department in which emergency clinicians no longer feel valued, respected, and supported.
• The time a 28-year-old MBA told a physician where to round first (Sundeel Dhand, Kevin MD, 5-11-16) "The last couple of decades have seen a dramatic shift of power and clout away from individual physicians and towards administrators and the business side of health care....we’ve seen the relentless push towards consolidation and mass employment of physicians, a rise in mandates and bureaucratic requirements, and a general explosion in the number of administrative folks while the number of physicians appears to be shrinking!" and the subtle changes: calling them providers instead of doctors. How did the medical profession surrender so much to the business of medicine? Is there any way that physicians can wrestle back a bit of control over their own profession?
• Unnatural Causes....is inequality making us sick? (an important PBS series).
---In Sickness and in WealthWhat connections exist between healthy bodies, healthy bank accounts, and skin color? Four individuals from different walks of life demonstrate how one’s position in society – shaped by social policies and public priorities – affects health. Read transcript here
---When the Bough Breaks (“When the Bough Breaks” examines the mystery of the Black-white infant mortality gap, while “Becoming American” sheds light on the shifting health status of newly arrived Latino immigrants. Read the transcript here.
---Bad Sugar explores the causes and effects of diabetes within two Native American communities. “Place Matters” connects the dots between health, wealth and zip code. Read the transcript here.
---Collateral Damage traces the health challenges of Marshall Islanders from the South Pacific to Springdale, Arkansas, while “Not Just a Paycheck” explores the toll taken by layoffs and job insecurity in western Michigan. Read the transcript here.
• Bill Moyer Journal (12-18-09) Amidst fading hopes for real reform on issues ranging from high finance to health care, economist Robert Kuttner and journalist Matt Taibbi join Bill Moyers to discuss Wall Street's power over the federal government. You can read transcript here.
• Reform by the Numbers (Robert Wood Johnson Foundation, RWJF)), a source for timely and unique data about the impact of health reform. For example: Eight Million and Counting (RWJF, May 2014). A deeper look at premiums, cost sharing and benefit design in the new health insurance marketplaces. And Health Insurance Exchange Compare (RWJF, May 1, 2014) Benefit design and cost sharing information for health plans in all 50 states.
• Stop the privatization of health data (John T. Wilbanks and Eric J. Topol, Nature, 7-20-16) Tech giants moving into health may widen inequalities and harm research, unless people can access and share their data, warn the authors.
• HELP Is on the Way (Paul Krugman on why universal health coverage is affordable)
• Reach of Subsidies Is Critical Issue for Health Plan (Robert Pear, NY Times, 7-26-09—on another important issue: where the money comes from to cover the costs of the formerly uninsured)
• The Republican Case for Waste in Health Care (Phillip Longman, The Health Care Blog, explains why the Republican funders don't want cost-effectiveness research, 3-8-13). "Conservatives love to apply “cost-benefit analysis” to government programs—except in health care. In fact, working with drug companies and warning of 'death panels,' they slipped language into Obamacare banning cost-effectiveness research." Longman explains how that happened and why it can't stand. "[O]verthrowing the ban on cost-effectiveness research now must move high on the agenda, and it requires clearly and forthrightly explaining what it really is and why it’s essential to everyone getting the best care possible."
• Health Insurance Consumer Information (news you can use), with blogs that follow the health care debate and discuss news of health insurance coverage around the country, and a Consumer Guide for Getting and Keeping Health Insurance for each state and the District of Columbia. The American Cancer Society and the Robert Wood Johnson Foundation and other organizations provide support for this research by The Georgetown University Health Policy Institute. Worth checking out.
• Health Insurance Woes: My $22,000 Bill for Having a Baby (And I had coverage for maternity care!) by Sarah Wildman, DoubleX, 8-3-09). "Our insurer, CareFirst BlueCross BlueShield, sold us exactly the type of flawed policy—riddled with holes and exceptions—that the health care reform bills in Congress should try to do away with. The “maternity” coverage we purchased didn’t cover my labor, delivery, or hospital stay. It was a sham."..."The individual insurance market is like that old joke about the food being terrible and the portions too small; it’s expensive, shoddy, and deeply unsatisfying. Those of us who buy into it are not protected by the federal and state laws that govern employer-based health care. In fact, there’s no one looking out for us at all."
• The Politics of Healthcare (Claire Topal, an interview with Tadataka "Tachi" Yamada, of Takeda Pharmaceuticals, formerly of Gates Foundation, for National Bureau of Asian Research, 9-23-13). " The Affordable Care Act in the United States is meant to provide extended basic healthcare to millions of people, but it still uses a system of fee for service. So as you increase the number of people accessing healthcare, you are actually increasing the costs of healthcare, collectively as a nation, unless each episode of healthcare is somehow reduced in cost. " Read this for insight into how in the U.S. we are locked into an inefficient system of care. As co-pay increases and we pay more directly for our medical care, there will be a demand for change. "[S]ome countries are thinking in a very different way about how to deliver care to the masses . . .the most cost-effective solutions often come out of poorer countries that are not locked into an orthodoxy of past-practices."
• The Problem With 'Pay for Performance' in Medicine (Aaron E. Carroll, The New Health Care, 7-28-14) (Quoting Norman Bauman's summary:) "The basic problem with pay-for-performance, Carroll says, is that it doesn't work. We don't know how to define the endpoint of "quality." We measure what's easy to measure rather than what's meaningful. It penalizes hospitals that care for the poor. A panel commissioned by the Obama administration recommended that the Department of Health and Human Services change the program to acknowledge the flaw. To date, it hasn't agreed to do so. So pay for performance isn't working. It's never worked. It does actual
harm. The people who look at the facts know this. Policy-makers are
imposing it anyway."
• Health Care In Transition: Fee For Service Vs. Pay For Performance (listen to Kojo Nnandi show, WAMU-FM, or read transcript, 6-4-13) Many health innovators and reformers believe the current "fee for service" system, which rewards doctors and hospitals based on volume, is outdated and unsustainable. Instead, they are experimenting with new "pay for performance" models with a focus on preventive care, coordination between doctors and ways to lower readmission rates. Kojo explores how hospital systems and providers are adapting to the changing health care environment. Guests Bob Kocher and Toby Cosgrove.
• Are Price Controls the Answer? (Martin Gaynor, Compassionate Economics, 2-24-13). A few observations about the effects of rate-setting.
• Healthcare and the profit motive—do they work well together? Columbia Journalism Review on Eduardo Porter's article Health Care and Profits, a Poor Mix (NY Times, Business, 1-8-13)
• The Cost Conundrum: What a Texas town can teach us about health care (Atul Gawande, New Yorker, 6-1-09). Overuse of medical care (over-testing, over-medicating, often performing unnecessary procedures)--both to avoid lawsuits and to increase the bottom line--are increasing costs without improving outcomes.
• As medical providers consolidate, questions about effects on costs, quality of care (Phil Galewitz, Washington Post 4-18-14) “Consolidation has not been an effective way of reducing costs or providing more effective care,” [Zelda Geyer-Sylvia] said. “People here have all the best intentions, but once you eliminate competition it’s gone.”
• Letting Go Abraham Verghese's review of Katy Butler's book, Knocking on Heaven's Door: The Path to a Better Way of Death . "Although most of us claim no desire to die with a tube down our throat and on a ventilator, the fact is, as Katy Butler reminds us in Knocking on Heaven's Door: The Path to a Better Way of Death, a fifth of American deaths now take place in intensive care, where 10 days of futile flailing can cost as much as $323,000, as it did for one California man." ... "Much of what ails health care, as Butler discovers, revolves around reimbursement issues. Doctors are paid to do things to people, not for people." "My hope is that this book might goad the public into pressuring their elected representatives to further transform health care from its present crisis-driven, reimbursement-driven model to one that truly cares for the patient and the family."
• Resource Links on Health Reform (Association of Health Care Journalists)
• Post Supreme-Court Health-Care Decision Symposium (SCOTUS BLOG, varying opinions on what happened and what it may mean --between them, you get some sense of what the issues are and were and what Justice John Roberts' swing vote was about )
• Health Care and the Court: Who Won? (Clive Crook, The Atlantic, 7-4-12)., You must read this.
• Excluded Voices. Trudy Lieberman's penetrating series of interviews on health care reform, in Columbia Journalism Review. Start with her interview with Wendell Potter, who "didn’t want to be part of another health insurance industry effort to shape reform that would benefit the industry at the expense of the public." You can also listen to Bill Moyers interview Potter or read the transcript and Potter's testimony before Congress.
• C-Span's programs on health care a good place to find various town hall discussions, hearings, wonderful links. C-Span, you're wonderful!
• DrSteveB's blogroll (helpful Daily Kos blogger--and check his blogroll for other resources)
• Expert Interviews from CEO's of America's Healthiest Companies, wellness experts, and business leaders (Wellness Council of America, or WELCOA) Several free reports available after one-time registration.
• Consumer-directed health plans: Do they deliver? (PDF of report brief, M. Kate Bundorf, The Synthesis Project. Robert Woods Johnson Foundation)
• Cost-sharing: Effects on spending and outcomes (PDF of report brief, Katherine Swartz, The Synthesis Project, Robert Woods Johnson Foundation)
• Health Affairs (excellent issues on health care reform, in this important policy journal about health care)
• Health Reform Source *Kaiser Family Foundation (many excellent resources, including The States (a state-by-state view of health care reform implementation and news--click on a state for state-specific information)
• Medical Progress, Social Progress, and Legal Regression (Andrew Solomon, New Yorker, 4-13-13). If we want people to stop terminating pregnancies, we might start by providing better services for people with disabilities; our neglect of decent care is a national disgrace. Solomon has written a wonderful book about how people with disabilities benefit from peer groups with those disabilities (except for individuals with schizophrenia): Far From the Tree: Parents, Children and the Search for Identity . He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender.
• What ‘Dallas Buyers Club’ got wrong about the AIDS crisis (Dylan Matthews, Washington Post, 12-10/13). The movie isn't the "story of a man who got the treatment he needed despite a government that tried to stop him. It's about a man who tried whatever he could in hopes of extending his life as long as possible, and in the process often rejected helpful treatments and embraced harmful ones."
• Dallas Buyers Club-inspired “right to try” laws: Good movies don’t make good policy (Orac, Science Blogs, 3-6-14) Analysis of Right to Try laws.
• Income, Poverty, and Health Insurance Coverage in the United States: 2012 (by Carmen DeNavas-Walt, Bernadette D. Proctor, Jessica C. Smith, released September 2013 by U.S. Census Bureau, P60-245). 88-page PDF. Real median household income and the poverty rate were not statistically different from the previous year, but the percentage of people without health insurance coverage decreased. Some additional links to census data:
---Health insurance data
---Current Population Survey (CPS) table creator (gives you the ability to create customized tables from the Current Population Survey's Annual Social and Economic Supplement)
• Employers Must Offer Family Care, Affordable or Not (Robert Pear, Health, NY Times, 12-31-12)
• Who Benefits From Health Savings Accounts? ( Julie Rovner (@jrovner) of Kaiser Health News, on Here and Now, NPR, 3-13-17) Listen or read summary of main points. ""It's one of the most tax-advantaged accounts you can find. The money is tax-free going in. It is tax-free as it grows over the years if you don't use it. And it is tax-free coming back out, as long as you use it for qualified medical expenses." but..."they benefit most people who are healthy — so they don't use a lot of money for health care — and people who are wealthy, so they have enough money sitting around that they can put into these accounts. As I mentioned, employers can put money in, but the average employer contribution is under $1,000. So if you really want to get it, you know, funded all the way up to where you would be protected in case of a serious health problem, you would have to have, if you're a family, $13,000 to put away."..."...health savings accounts are intended, in fact can only be used, in conjunction with a high-deductible health insurance plan. So there is a catastrophic plan underneath all of this. The question is whether you can afford to put as much into this health savings account as you would need to reach that deductible."
• Health Savings Accounts (HSAs): ‘Tax-Break Trifecta’ Or Insurance Gimmick Benefiting The Wealthy? (Julie Appleby, Kaiser Health News, 2-3-17) Republicans hope to expand the use of health savings accounts to encourage consumers to be more judicious in using their coverage. The theory behind HSAs is that making consumers bear a bigger up-front share of medical care — while making it easier to save money tax-free for those costs — will result in more judicious use of the health system that could ultimately slow rising costs. HSAs all generally seek to allow larger tax-free contributions to the accounts and greater flexibility on the types of medical services for which those funds can be used. Supporters say premiums for the insurance linked to an HSA are lower, and they like HSAs’ trifecta of tax savings — no taxes on contributions, the growth of the funds in the account or on their withdrawal if spent on medical care. But skeptics note the tax break benefits wealthy people more than those with lower incomes. Critics also point out that older or sicker consumers could blow through their entire fund every year and never accumulate any savings.This article explains what you need to know about HSAs, including what they cannot be used for.
• Health Savings Accounts Are Back In The Policy Spotlight--FAQs (Julie Appleby, Shots: Health News, NPR, 2-2-17) A good Q&A: How do HSAs work? How would they change under GOP proposals? What services can HSA funds cover? How common are HSAs? How much do they cost and what are the advantages? What are the disadvantages?
• The Perplexing Psychology Of Saving For Health Care (April Fulton, Shots: Health News, NPR, 2-15-17) Even many people eligible for a health savings account who have extra cash to contribute to one don't do it. Therapists say that's partly because nobody wants to admit they will get old or sick. "Then there's the issue of figuring out how much you, as an individual or a family, would need to save for health care — it's not easy to find out the average price for a medical test or procedure in your town, let alone how much that price varies from doctor to doctor or hospital to hospital."
• Health Savings Accounts and Other Tax-Favored Health Plans IRS Publication 969 (2016) Explains Health savings accounts (HSAs), Medical savings accounts (Archer MSAs and Medicare Advantage MSAs), Health flexible spending arrangements (FSAs), Health reimbursement arrangements (HRAs).
• Your Guide to the Health Savings Account (Selena Maranjian, Motley Fool, 10-1-15) Surprisingly powerful, a Health Savings Account might serve you very well -- either now or in retirement. And you don't even have to use it for your health expenses, though it's especially effective in that regard.
On March 23, 2010, President Obama signed comprehensive health reform, the Patient Protection and Affordable Care Act, into law. The eight basic consumer protections the Obama White House wants health care reform to cover:
(1) No discrimination for pre-existing conditions,
(2) No exorbitant out-of-pocket expenses, deductibles or co-pays,
(3) No cost-sharing for preventive care,
(4) No dropping of coverage if you become seriously ill,
(5) No gender discrimination,
(6) No annual or lifetime caps on coverage,
(7) Extended coverage for young adults,
(8) Guaranteed insurance renewal so long as premiums are paid.
For more about the Obama White House plans for health care, see http://www.whitehouse.gov/healthreform .
Various sites, articles, judicial arguments (etc.) of interest and often helpful:
• Repealing The Affordable Care Act Could Be More Complicated Than It Looks (Julie Rovner, Kaiser Health News, 11-9-16). President-elect Donald Trump has pledged to end the Affordable Care Act. But promising to make the law go away, and actually figuring out how to do it, are two very different things. Interesting analysis.
• The Complex Mess of Health Insurance (David Leonhardt, OpEd, NY Times, 1-5-17) "A lot of Americans are deeply frustrated by the logistical headaches built into our health care system. Strikingly, some of the Trump voters told Kaiser that they resented lower-income people who were enrolled in Medicaid, which they viewed as a better deal. Medicaid has its own complexities (and its own problems), but government-run programs do tend to be simpler than private ones. It’s true of Medicare, and it’s true of single-payer systems in other countries....Wouldn’t that be ironic? The Republican passion for getting rid of Obamacare could ultimately lead to a bigger dose of Big Government."
• Health Care Reform: What It Is, Why It's Necessary, How It Works by Jonathan Gruber (clear explanations in graphic novel format of the Affordable Care Act, by an MIT economist, and one of the architects of both RomneyCare and ObamaCare). Here's YouTube version, in short.
• (Timothy Jost, Health Affairs, 12-11-15) Section 1332 of the Affordable Care Act provides for waivers for state innovation,. The idea behind this provision is that if individual states can find a better way of reaching the goals of the ACA, they should be allowed to try, so long as they delivered patient-centered, high-quality, cost-effective care. To be granted a waiver, states must demonstrate that their alternative proposal will stay within certain guardrails: as journalist Renee Despres has put it, 1) provide coverage that is "at least as comprehensive" as that mandated by the ACA; 2) limit out-of-pocket expenses to the same levels as required by the ACA; 3) cover at least as many people as the ACA; and 4) not increase the federal deficit. Other provisions of the ACA, including the prohibitions against imposing preexisting condition requirements or underwriting based on health status, cannot be waived. Some Republicans eager to do away with the ACA apparently want to use the waivers to avoid meeting ACA requirements.
• State Innovation Waivers (Centers for Medicare & Medicaid Services) CMS explanation of little-known waivers that became newsworthy under Republican efforts to kill ACA.
• The ACA’s Section 1332: Escape Hatch Or Straightjacket For Reform? (Jonathan Ingram, Nic Horton, and Josh Archambault, Health Affairs blog, 5-26-16) According to some proponents, the waivers in Section 1332 of the Affordable Care Act will “turbocharge state innovation” and will provide states with an “exit strategy” from the ACA. "State lawmakers on both sides of the aisle are coming to the realization that Section 1332 waivers will require more money and effort than they are worth. Policymakers should instead focus their time on proven, state-level reforms that drive costs down, agnostic to the ACA."
• Ten Titles: Understanding the Affordable Care Act (pdf, John McDonough, Hunter College, October 2010)
• Equitable Access to Care — How the United States Ranks Internationally (Karen Davis and Jeromie Ballreich, NEJM, 10-23-14) "The United States has been unusual among industrialized countries in lacking universal health coverage. Financial barriers to care — particularly for uninsured and low-income people — have also been notably higher in the United States than in other high-income countries. As more Americans become insured as a result of the Affordable Care Act (ACA), differences in access to care between the United States and other countries — as well as among income groups within the United States — may begin to narrow."
• Obamacare’s trade-offs left too many Americans feeling like they got a raw deal (Trudy Lieberman, Center for Healthcare Journalism, 1-10-17) The failures of the national conversation during the run-up to Obamacare's passage are now hastening its demise, with too few Americans seeing firsthand benefits. The public discourse did not make it clear that all Americans did not have an equal stake in the outcome. Most already had insurance and wouldn’t be helped by the subsidies and other benefits bestowed on those who didn’t. The discourse must change if all Americans are to have health insurance someday. If the U.S. is ever to achieve real universal health coverage, then we’re going to have to all join the insurance pool together. Until our discourse embraces that concept of shared risk, we’ll continue to have large numbers of uninsured Americans.
• Are More Americans Benefiting From Obamacare Than Realize It? (Drew Altman, Wall Street Journal, 5-20-15) The ACA guarantees coverage despite pre-existing conditions (previously denied coverage), requires a range of preventive services (without co-pays), eliminates lifetime caps on insurance coverage. Many Americans don't realize that that free flu shot is one benefit that resulted. "...gradually, more people may become aware of the popular benefits the ACA provides beyond expanding coverage for the uninsured."
• The Kaiser Family Foundation's summary of the law (pdf), and of changes made to the law by subsequent legislation, focuses on provisions to expand coverage, control health care costs, and improve health care delivery system. Kaiser also posts the implementation timeline for health reform , an interactive tool designed to explain how and when the provisions of the Affordable Care Act will be implemented over the next several years.
• Frequently Asked Questions about Health Reform (Kaiser Family Foundation)
• Medicare’s Rush To Risk: Confounding Theory And Practice, Leaving ACOs Vulnerable (David Introcaso and Clifton Gaus, Health Affairs blog, 6-19-15) It's hard to summarize this piece, which is well worth reading. While tying payment to value makes perfect sense, transforming the Medicare program without the evidence that explains how to do this does not.
• HHS interactive state-by-state map.
• Preventive Services Covered by Private Health Plans under the Affordable Care Act (Kaiser Foundation 10-28-14) A key provision of the ACA is the requirement that private insurance plans cover recommended preventive services without any patient cost-sharing. Full discussion.
• The Great Cost Shift comes into focus (Trudy Lieberman, CJR, 12-24-14). "Consumers, even consumers who have insurance, are paying a larger share of their healthcare costs. This shift has been in the works for years, but provisions in the ACA have made it more visible."
• The ‘unmitigated disaster’ of Obamacare in Mississippi (Trudy Lieberman, Columbia Journalism Review, 11-5-14). Sarah Varney and Jeffrey Hess report the heck out of a grim, ominous healthcare story. The story: Mississippi, Burned: How the poorest, sickest state got left behind by Obamacare. (Sarah Varney with Jeffrey Hess, Politico, Oct. 2014).
• Obamacare’s Secret Success (Paul Krugman, NY Times Opinion page, 11-28-13) The law establishing Obamacare was officially titled the Patient Protection and Affordable Care Act. And the “affordable” bit wasn’t just about subsidizing premiums; t was also about “bending the curve” — slowing the seemingly inexorable rise in health costs. Follow the bending cost curve and you will find that the slowdown in health costs has been dramatic.
• Feds Target Health Law Loophole That Allows Large Employers To Offer Plans That Don’t Cover Hospitalization (Kaiser Health News, 11-4-14) The administration intends to disallow plans that “fail to provide substantial coverage for in-patient hospitalization services or for physician services,
• A death blow for Obamacare? (Laurence H. Tribe, Boston Globe, 7-18-14) "The moment the Affordable Care Act was enacted in 2010, it became a litigation magnet. The lawsuits threatening to derail it were initially dismissed as ridiculous but became deadly serious by the time Chief Justice John Roberts’s decisive fifth vote two years later barely upheld the law’s individual mandate, while the Court’s decisive 7-2 vote left the health law’s Medicaid expansion in tatters. Last month, the court struck a second blow to the ACA by allowing some for-profit corporations to opt out of offering contraceptive coverage they deemed religiously offensive. And even House Speaker John Boehner is joining in the litigation..."
• Another Baseless Attack on Health Law (NY Times editorial, 12-12-14) A suit filed by the "Republican-dominated House aims to block another important subsidy: federal payments to insurance companies to keep deductibles, co-payments and other cost-sharing low for the poor. ... If the federal government cannot assist, a lot of other individual policyholders may have to pay more."
• A closer look: Did the ACA result in more canceled plans? (Joanne Kenen, Covering Health, AHCJ, 4-29-14)
• Warren: It's too soon to call Obamacare — or Obama — a failure (James Warren, Daily News, 12-1-13) There was a lot of melodrama over Saturday's 'sort-of deadline' for repairing HealthCare.gov. Though Obama's approval ratings are tanking and the Obamacare website had early missteps, the President and his health care plan shouldn't be written off so quickly.
• Safety Leaders. Actor Dennis Quaid's family is joining forces with the Texas Medical Institute of Technology (TMIT) to raise public awareness about our broken medical system, to eliminate human error, and to make caregivers aware that patients have the right to know all information that could have an impact on their health and well-being, with major focus on increasing awareness of the dangers of medication errors. See also Preventable Medical Malpractice: Revisiting the Dennis Quaid Medication/Hospital Error Case (Rick Schapiro, The Legal Examiner 8-9-10).
• Bringing local, national perspectives to report on ACA in rural Kentucky (Joanne Kenen, Covering Health, AHCJ, 6-17-14)
• The AP downplays its Obamacare scoop (Trudy Lieberman, Columbia Journalism Review 4-11-14). AP calls "minor' a change in legislation that shifts costs to consumers by raising deductibles.
• Rooting for Failure (Timothy Egan, NY Times Opinion page, 11-28-13) It's hard to remember a time when a major political party and its media arm were so actively hoping for fellow Americans to lose. Tim Egan's unvarnished take on the shamelessness of the anti-Obamacare creed.
• Challenges For The New Health Insurance Exchanges (transcript for Diane Rehm show, with guests Susan Dentzer of The Robert Wood Johnson Foundation, Louise Radnofsky of The Wall Street Journal, Jon Kingsdale of the Wakely Consulting Group, who led the agency that implemented the Massachusetts health insurance exchange, and David Simas, speaking from the White House, 10-16-13).
• Special Investigation: How Insurers Are Hiding Obamacare Benefits from Customers (Dylan Scott, Talking Points Memo, 11-4-13). "By warning customers that their health insurance plans are being canceled as a result of Obamacare and urging them to secure new insurance plans before the Obamacare launched on Oct. 1, these insurers put their customers at risk of enrolling in plans that were not as good or as affordable as what they could buy on the marketplaces."
• Middle class families wary of higher premiums Carla K. Johnson, AP story in Portland Press Herald, 9-13-13). "The new Affordable Care Act health exchanges won't offer any bargains for higher-income families, who fear that their current health insurance policies may get more expensive under the new law's requirements. As many as nine in 10 Texans buying health insurance on the new federally run exchange will get a break on costs, according to federal health officials. Steve and Maegan Wolf won't be among them."
• Medical Device Industry Fears Health Care Law’s Tax on Sales (Barry Meier, Tracking the Affordable Care Act, NY Times, 10-1-13)
• Questionable design blamed for healthcare website woes (Carla K. Johnson and Ricardo Alonso-Zaldivar, AP, 10-8-13)
A decision by the Obama administration to require that consumers create online accounts before they can browse health overhaul insurance plans appears to have led to many of the glitches that have frustrated customers, independent experts say.
• How Obamacare’s medical device tax became a top repeal target (Sarah Kliff, Wonkblog, WashPost, 9-28-13). See also:
• In Need of a New Hip, but Priced Out of the U.S. (Elisabeth Rosenthal, NY Times, 8-3-13) Paying Till It Hurts: A Trip Abroad. Part of an excellent series on what's wrong with American health care.
• How can I get an estimate of costs and savings on Marketplace health insurance? (Healthcare.gov)
• Kaiser Family Foundation information site on the Affordable Care Act (extremely helpful)
• LocalHelp.HealthCare.gov (for state-specific information)
• ACA-Mandated Insurance Quick Tips (Bob Rosenblatt, Aging Today)
• 2015 Marketplace health insurance plans and prices right now (HHS, Assistant Secretary of Planning and Evaluation)
• New York State of Health: The Official Health Place
• Covered California, the new marketplace for affordable private health insurance
• Millions of Poor Are Left Uncovered by Health Law ( Sabrina Tavernise and Robert Gebeloff, NY Times, 10-2-13)
• A Nevada Health Plan -- Without The Insurance (Pauline Bartolone, Kaiser Health News, Capital Public Radio, NPR, 9-14-13) An unusual Nevada nonprofit that helps connect 12,000 uninsured residents to doctors and hospitals who are willing to accept a lower-cost, negotiated fee for their services. Giving care to the uninsured before they require urgent care helps lower costs by keeping their members out of the ER.
• Health Reform D-Day? Or not for a few more months? (Joanne Kenen, Covering Health, AHCJ, 10-1-13). See also Tracking exchange activity.
• Shutdown Din Obscures Health Exchange Flaws (Robert Pear, NY Times, 10-4-13)
• TransUnion, Equifax and Experian Agree to Overhaul Credit Reporting Practices (Tara Siegel Bernard, NY Times, 3-9-15) "The three companies will also establish a six-month waiting period before reporting medical debts on consumers’ credit reports, providing more time for consumers to resolve issues that might amount only to a delayed insurance payment or another dispute. The credit agencies will also remove medical debts from an individual’s report after the debt is paid by insurance." "“Too many people are surprised to learn of medical billing problems only after having a bill sent to collection and being forced to deal with damaged credit,” said Mark Rukavina, a longtime consumer advocate and principal of Community Health Advisors, a consultancy that works with nonprofit hospitals on billing and collection issues. “Having the agencies finally agree to remove medical debts that were reported and subsequently paid by insurers is long overdue.”
• Drugs, Big Pharma, conflicts of interest, and why U.S. patients pay too much for medication. A roundup of articles and analysis on the subject. For example: (a) It doesn't matter if a cheaper (often generic) version may be available if doctors don't pay attention to costs and consumers believe the more expensive drug is probably more effective. Moreover, doctors who do pay attention to costs have an incentive to prescribe the more expensive version of a drug, not the generic version. (b) Step therapy ("fail first" protocols insist that a patient start with a traditional lower-cost drug and advance to a newer, more expensive drug only if the first drug fails to produce the desired results. For new drugs that are clearly more effective, this means doctors and patients have to jump through hoops to get patient to the more effective drug, in order to get insurance coverage." (c) Why do drug companies charge so much? Because they can. (d) The United States does set medical prices for the 50 million elderly Americans who rely on Medicare. The Republican plans put the burden of high prices more squarely on patients. (e) 'It’s sort of embedded in the health care system that the price is never the price, unless you’re a cash-paying customer,' Mr. Fein said. 'And in that case, we soak the poor.'”' And so on.
• Want to see how problematic Medicare pricing is? Look to ophthalmology (Max Ehrenfreund, Washington Post, 4-9-14) "...doctors also receive commissions of 6 percent to cover their own expenses. The commission a doctor collects on each dose of Avastin would be only about $3, as opposed to $120 on each dose of Lucentis. Congress and the courts have refused to allow Medicare to save money by scrutinizing doctors' decisions."
• Doctors Often Receive Payments From Drug Companies (Neal Conan, Talk of the Nation, NPR, 9-13-11) A Pro Publica investigation shows that many doctors are being paid by the same drug companies whose medicines they prescribe. By 2013, all doctors must report any payments from pharmaceutical companies to the federal government, and those records will be available to the public.
• Prescriptions. No room to negotiate. The Soaring Cost of a Simple Breath (Elisabeth Rosenthal, NY Times, 10-12-13) Part 4 of Paying Till It Hurts In her series on the cost of health care, Elisabeth Rosenthal interviews patients, physicians, economists, hospital and industry officials to examine the high price of health care. Her book: An American Sickness: How Healthcare Became Big Business and How You Can Take It Back . And read the series here--including the readers' comments (from both patients and doctors).
• Pay to Prescribe? Two Dozen Doctors Named in Novartis Kickback Case (Theodoric Meyer, ProPublica, 5-3-13)
• Dollars for Docs How Industry Dollars Reach Your Doctors (Eric Sagara, Charles Ornstein, Tracy Weber, Ryann Grochowski Jones and Jeremy B. Merrill, for ProPublica, Updated 3-3-14). See if Your Health Professional Has Received Drug Company Money.
• As Full Disclosure Nears, Doctors’ Pay for Drug Talks Plummets (Charles Ornstein, Eric Sagara and Ryann Grochowski Jones, ProPublica, 3-3-14) As transparency increases and blockbuster drugs lose patent protection, drug companies have dramatically scaled back payments to doctors for promotional talks. This fall, all drug and medical device companies will be required to report payments to doctors.
• Medicare Drugs Turn Doctors into Millionaires (Walter Russell Mead & Staff, The American Interest, 4-10-14)
• Prescribing Under the Influence (E. Haavi Morreim, Markkula Center of Applied Ethics, Santa Clara University)
\• Why do drug companies charge so much? Because they can. (Marcia Angell, Washington Post, 9-25-15) "Unlike every other advanced country, the United States permits drug companies to charge patients whatever they choose. ...Drug companies say high prices are necessary to cover their research and development costs" but most drugs "are invented not by the companies that sell them now but by someone else. Then, like big fish swallowing little fish, larger companies either buy small firms outright or license promising drugs from them. Very often, the original discovery occurs in a university lab with public funding from the National Institutes of Health (NIH), then licensed to a start-up company partly owned by the university and then to a large company. There is very little innovation at the big drug firms. Instead, their major creative output is trivial variations of top-selling medications that are already on the market (called “me-too drugs”), to cash in with treatments just different enough to justify new patents." Pharmaceutical companies are among the most profitable and "they spend more on marketing and administration than on R&D." ... "Congress has blocked Medicare from negotiating the price of drugs or creating a formulary for patients. It’s time that we, too, move to stop price-gouging by the pharmaceutical industry — even when no one notices."
• Why markets can’t cure healthcare (Paul Krugman, The Conscience of a Liberal, NY Times, 7-25-09)
• Uncertainty and the Welfare Economics of Medical Care (Kenneth J. Arrow, The American Economic Review, Dec. 1963) Health care can’t be marketed like bread or TVs. As Avik Roy points out in the following article, which I lean on here, Arrow identified five principle distortions in the market for health care services and products: 1. Unpredictability of need. (And yet often urgently needed.) 2.Barriers to entry. (There are medical-school driven restraints on the number of medical professionals, and not everyone can practice.) 3. The importance of trust. (Trust is a key component of the doctor-patient relationship, and patient's can test-drive a surgeon etc.) 4. Asymmetrical information. (Patients know less than doctors about what's needed and are thus subject to exploitation.) 5. Idiosyncrasies of payment. (Patients usually pay for services after they're received and rarely directly.)
• A physician tells a health insurance CEO what she really thinks (Cathleen London, Kevin MD, 8-24-16) A doctor serving in an underserved area of rural Maine, who believes in a single-payer health care system, is troubled by a health insurance company saying she would get a fee schedule only after she signs a "provider" agreement. She explained that at this point in her career anything under 150 percent of Medicare rates would be unacceptable. They could not meet that. She is starting a direct primary care (DPC) model to avoid headaches of dealing with insurance companies more concerned about company and stockholder profits than about helping patients.
• Liberals Are Wrong: Free Market Health Care Is Possible (Avik S. A. Roy, The Atlantic, 3-18-12) Roy explains that Kenneth Arrow endorsed the view that "the laissez-faire solution for medicine is intolerable," that the delivery of health care deviates in fundamental ways from a classical free market, and therefore, that government must intervene to correct these deviations. Roy explains the five market distortions for health care Arrow cited, but says, "No, you can't shop for health care when you're unconscious, or when you're in acute or emergent situations. Does this justify nationalizing the health care system? No." "So, it seems to me, those who strongly believe in the shopping argument for socialized medicine should adopt a hybrid approach. Let's have a free market for the 70-plus percent of health care where market forces can most directly apply, and let's have universal catastrophic insurance for those situations where market forces work less well. This way, we might get the best of both worlds: an efficient, affordable, high-quality market for chronic and routine health care, and a universal system for those who get hit by a bus, or have a stroke, or get cancer. Such a system would leave no one behind. But it would also allow our health-care system to benefit, as much as possible, from the forces of choice, competition, and innovation."
• Consumers’ Interest In Provider Ratings Grows, And Improved Report Cards And Other Steps Could Accelerate Their Use (Steven D. Findlay, Health Affairs, April 2016). "In addition to new technology, recent laws and changes in society and the delivery of care are laying the foundation for greater use by consumers of provider performance report cards. Such use could be accelerated if the shortcomings of current report card efforts were addressed. Recommendations include making online report cards easier to use and more understandable, engaging, substantive, and relevant to consumers’ health and medical concerns and choices. "
• Ratings for hospitals, doctors, surgeons, home health agencies, nursing homes
• What journalists should know about hospital ratings (Liz Seegert, Covering Health, Association of Health Care Journalists, 6-24-16) "Journalists should take hospital ratings with a healthy dose of skepticism, according to experts at a recent AHCJ New York chapter event. Simply looking at an institution’s overall rating is just the start. Reporting that without understanding what’s being rated and how ';success' is measured does a disservice to your audience."
• What quality measures can tell us about nursing home ratings (Liz Seegert, Covering Health, AHCJ, 7-27-16). "Nursing home star ratings are misleading and disingenuous, according to a recent analysis comparing ratings with quality measures alone. More than a thousand nursing homes nationally with high overall ratings had only one or two stars in quality measures, which could point to some serious health implications for residents."
• Donabedian’s Lasting Framework for Health Care Quality (John Z. Ayanian, M.D., M.P.P., and Howard Markel, M.D., Ph.D. N Engl J Med 2016; 375:205-207July 21, 2016DOI: 10.1056/NEJMp1605101) In a landmark article published 50 years ago, Avedis Donabedian proposed using the triad of structure, process, and outcome to evaluate the quality of health care. That triad, along with his eventual seven pillars of quality, continues to inform efforts to improve care. "Health care is a sacred mission . . . a moral enterprise and a scientific enterprise but not fundamentally a commercial one. We are not selling a product. We don't have a consumer who understands everything and makes rational choices -- and I include myself here. Doctors and nurses are stewards of something precious . . . " With thanks, as so often, to Norman Bauman for links and references.
1. Alarm hazards: Inadequate alarm configuration policies and practices
2. Data integrity: Incorrect or missing data in electronic health records and other health IT systems
3. Mix-up of IV lines leading to misadministration of drugs and solutions
4. Inadequate reprocessing of endoscopes and surgical instruments
5. Ventilator disconnections not caught because of mis-set or missed alarms
6. Patient-handling device use errors and device failures
7. “Dose creep”: Unnoticed variations in diagnostic radiation exposures
8. Robotic surgery: Complications due to insufficient training
9. Cybersecurity: Insufficient protections for medical devices and systems
10. Overwhelmed recall and safety alert management programs
Further to point 2, read the brief 3 reasons why health care IT will always be terrible (Suneel Dhand, MD, Kevin MD, 2-15-17) IT caters to hospital administration, not to doctors. It's a monopoly once installed. And doctors have allowed themselves to be turned into data-entry clerks without demanding major change.
• 50 Ways to Leave a Refill Request (Fred N. Pelzman, MD, Building the Patient-Centered Medical Home, MedPageToday, 5-18-17) Imagine a system in which, when your medication is running low, you ask the pharmacist to ping the doctor, and the pharmacist fills the order -- instead of dozens of phone calls, voicemails, emails, faxes, electronic messages, and walk-ins eating up time and man-hours inefficiently. We "have to keep trying, streamlining the way we do things, hopefully eliminating the excess baggage of dealing with all of these multiple systems, to get us to a place where we can much more easily take care of our patients, and our patients can much more easily get the care they need."
• Genetic testing fumbles, revealing ‘dark side’ of precision medicine (Sharon Begley, STAT: Reporting from the frontiers of health and medicine, 10-31-16) 'Enthusiasm for precision medicine, from the White House down to everyday physicians, is at an all-time high. But serious problems with the databases used to interpret patients’ genetic profiles can lead to “inappropriate treatment” with “devastating consequences,” researchers at the Mayo Clinic warned on Monday....“This is the proverbial dark side of genetic testing and precision medicine,” said Ackerman. Because databases that companies use to interpret DNA tests are riddled with errors, “we’re starting to see a lot of fumbles,” with patients told that a DNA misspelling is disease-causing when it actually isn’t....That raises the very real concern that some people treated with “precision” approaches will be misdiagnosed and given useless or even harmful treatment.'
• Genetic test costs taxpayers $500 million a year, with little to show for it (Casey Ross, STAT, 11-2-16). Unnecessary medical care is estimated to cost the United States between $750 billion and $1 trillion dollars a year, accounting for nearly a third of its overall spending on health care. Wasteful testing is one of the primary drivers of those costs. In the case of inherited thrombophilia, said Dr. Christopher Petrilli (a University of Michigan hospitalist who coauthored the study cited), doctors appeared to be complicit in the waste — possibly due to fear of litigation or simply a shared desire to get the answers for their patients. “You can explain to them that getting a test is not going to change therapy and that it’s just going to lead to more anxiety, unclear results, and more testing,” said Dr. Nitin Damle, president of the American College of Physicians.
• One Hospital Tells Bronx's Sick: You Call Us, We’ll Call You (Amanda Aronczyk, WNYC, ) A patient's "accountable care manager" helps him coordinate his complex health care procedures and visits.
• Choosing Wisely (aimed at teaching physicians to think more carefully about default screening options--at eliminating unnecessary or overused procedures)
• Community paramedicine. Beyond 911: State and Community Strategies for Expanding the Primary Care Role of First Responders
• Development of Community Paramedic Programs (Discussion paper for Joint Committee on Rural Emergency Care (JCREC), National Association of State Emergency Medical Services Officials, National Organization of State Offices of Rural Health. Rural EMS systems should be able to respond in a timely, appropriate manner whenever serious injury or illness strikes someone in need. The concept of community paramedicine represents one of the most progressive and historically based evolutions available to community-based healthcare and to the Emergency Medical Services arena. By utilizing Emergency Medical Service providers in an expanded role, community paramedicine increases patient access to primary and preventative care, provides wellness interventions within the medical home model, decreases emergency department utilization, saves healthcare dollars and improves patient outcomes. Planning for a system in which the role of EMS providers is expanded role as part of a community-based team of health services and providers.
• The Essential (Before I Kick the) Bucket List (Amy Berman, Health AGEnda, John A. Hartford Foundation, 8-30-12) Diagnosed with Stage IV inflammatory breast cancer in October 2010, Berman decided instead of making a personal bucket list of things to do before she dies to make a health care bucket list (for the system). Read about the five things she listed:
1) Care centers on the patient;
2) Care addresses the needs of the family;
3) Care is better coordinated;
4) Care focuses on quality of life and patient goals;
5) End of life care is more compassionate and driven by preferences.
• The Doctor Who Championed Hand-Washing and Briefly Saved Lives (Rebecca Davis, Morning Edition, NPR, 1-12-15) It's not enough to discover an important way to improve health care--one has to convey it in an acceptable manner, suggests this story of a Hungarian doctor named Ignaz Semmelweis.
• N.C. Program A Model For Health Overhaul? (Rose Hoban, North Carolina Public Radio, Morning Edition, NPR, 10-15-09). The state Medicaid program in North Carolina is helping people stay healthier--and saving the state money. Medicaid (not the clinics) pays nurses and social workers to do case management. They're placed in clinics and sites that see lots of patients and their priorities are those of the state, not the clinic managers (who might be interested in churning to create revenue). See also this policy profile of Community Care of North Carolina (Kaiser Commission on Medicaid and the Uninsured, 2009).CCNC's website has links to more stories and information.
• The Checklist Manifesto: How to Get Things Right by Atul Gawande, who argues persuasively that medicine has become so complex that without a checklist for medical teams to work by, medical professionals will inevitably make fatal errors or omissions.
• The Simple Idea That Is Transforming Health Care (Laura Landro, WSJ, 4-16-12). A focus on quality of life helps medical providers see the big picture—and makes for healthier, happier patients. Focusing on well-being might seem like a basic idea, but it is a departure from the traditional approach, especially with chronic-disease sufferers.
• The Radical Rethinking of Primary Care Starts Now (Dan Diamond, The Health Care Blog, 3-7-13)
• Safety-net clinics adopt medical home model (Mike Sherry, Health Care Foundation of Greater Kansas City, 1-10-13). Health care reform advocates cite patient-centered medical homes as a best-practice in providing comprehensive primary care while reducing the need for costly treatments.
And the federal Department of Health and Human Services has set a goal of having 25 percent of the nation’s community health centers certified as medical homes in fiscal year 2013, which ends Sept. 30. Proponents say certification ‘more than just paperwork,’ it’s a better model for practicing medicine.
• Sharing Psychiatric Records Helps Care (Nicholas Bakalar, Well column, NY Times, 1-7-13)
• A doctor's touch (Abraham Verghese's TED Talk, July 2011). Verghese describes our strange new world where patients are merely data points, and calls for a return to the traditional one-on-one physical exam.
• Checking Boxes (Regina Harrell, Pulse, 10-18-13). A primary-care doctor who makes house calls in and around Tuscaloosa, Alabama, could spend more time caring for frail elders in their home if she didn't waste so much time filling in irrelevant boxes on computer forms so that she'll get paid.
• U.S. Preventive Services Task Force (recommendations for, against, and for a specific number of various screening procedures).
• Cost of not caring: Nowhere to go (Liz Szabo, in excellent series in USA TODAY, ). The financial and human toll for neglecting the mentally ill. First story: A man-made disaster: A mental health system drowning from neglect. “We have replaced the hospital bed with the jail cell, the homeless shelter and the coffin” (Rep. Tim Murphy, R-Pa.) States have been reducing hospital beds for decades, because of insurance pressures as well as a desire to provide more care outside institutions. Tight budgets during the recession forced some of the most devastating cuts in recent memory, says Robert Glover, executive director of the National Association of State Mental Health Program
• Mental illness cases swamp criminal justice system (Kevin Johnson, USA Today) On America's streets, police encounters with people with mental illnesses increasingly direct resources away from traditional public safety roles. Chapter 1: Hordes of inmates are ill. Fractured system plagued by problems. “They end up here (the criminal justice system), because we are the only system that can't say no.” ~Cook County sheriff Tom Dart. Chapter 2: Taken away in cuffs. Exhausted cops transport those needing help all over the state. Chapter 3: A gunshot, and a teen dies. Not all officers are trained to deal with mental patients. Chapter 4: Lessons from a fatal shooting. A call goes out for special officer training. Chapter 5: A call for help, then Navy Yard. Aaron Alexis and the 'vibrations' in his body
• Cost of not caring: Stigma set in stone (Liz Szabo, USA TODAY) Mentally ill suffer in sick health system. Chapter 1: A separate and unequal system. People with mental illness face legal discrimination. “'There is no other area of medicine where the government is the source of the stigma.' ” Rep. Tim Murphy, Rep. PA. Chapter 2: Lost in darkness. Many wait nearly a decade for treatment. "“'If someone had listened to me the way that psychiatrist listened to me in jail. I think maybe my illness wouldn't have gotten that far.'” Chapter 3: Working for change. Advocates chip away at discriminatory policies. “'Every parent I know has to fight for treatment for their child.'” Chapter 4: Overcoming the shame: Speaking up heals old wounds. “'Where we are at is where the cancer community and HIV community were 25 years ago.'” NFL player Brandon Marshall
• The Fortunate Mother: Caring for a son with schizophrenia (Rick Hampson, USA TODAY) The lucky one: Despite hardships, a mother knows it could be worse. For the mentally ill, relatives are the last to leave.
• Early intervention could change nature of schizophrenia (Liz Szabo, USA Today) Programs aim to prevent psychosis or halt a patient's decline.
• Solutions to woes of mentally ill exist but aren't used (Liz Szabo, USA TODAY) Millions could be helped if programs were put into place.
• Substance abuse treatment often impossible to find (Larry Copeland, USA Today) Promising strategies gather dust: 'It's hard to get anyone to pay attention until it happens again.' Joan Ayala now works as a mental health clinician trying to help others avoid her decades-long ordeal.
• Mental disorders keep thousands of homeless on streets (Rick Jervis, USA Today) Thousands with mental illness end up homeless, but there are approaches that can help out. Dorothy Edwards hugs her 8-year-old dog, a shepherd-pit bull mix that helped protect her when she lived on the streets.
• 40,000 suicides annually, yet America simply shrugs (Gregg Zoroya, USA Today) There's a suicide in the USA every 13 minutes.
• Navy SEAL Loses Battle with PTSD (Here and Now, WBUR, 1-14-13). For a Navy Seal, getting help for PTSD disqualifies you for security clearance, and in this case, Rob Guzzo, who served in Iraq, went for help too late. "For a SEAL, if you don’t have a security clearance, you don’t go on secret classified missions, therefore you’re not a Navy SEAL.”
• You can watch Michael Moore's documentary, Sicko online. You can hear on Bill Moyers' interview with Wendell Potter how the insurance industry planned to defuse reactions to Moore's documentary. As Potter states: "The industry has always tried to make Americans think that government-run systems are the worst thing that could possibly happen to them, that if you even consider that, you're heading down on the slippery slope towards socialism. So they have used scare tactics for years and years and years, to keep that from happening. If there were a broader program like our Medicare program, it could potentially reduce the profits of these big companies. So that is their biggest concern." Potter himself says of the documentary, "I thought that he hit the nail on the head with his movie. But the industry, from the moment that the industry learned that Michael Moore was taking on the health care industry, it was really concerned."
• Agency for Healthcare Research and Quality, including Center for Outcomes and Effectiveness and Centers for Education and Research on Therapeutics
• Association of Health Care Journalists (AHCJ) , an invaluable organization for journalists covering health care and health care reform. Core topics at September 2013 conference include health reform, aging, oral health, and medical studies. Topics to be covered in future include insurance, health insurance, health professionals, and health information technology. Many of the resources listed here I learned of from AHCJ, which also provides special informal toolkits for members. The annual conference is excellent and very helpful at keeping members up to date on what's happening in the health care field. See Health Reform resource links and Topic overview. Any journalist covering health care reform should belong to this organization.
• CDC's National Center for Chronic Disease Prevention and Health Promotion
• CDC's Center for Emergency Preparedness and Response
• Cochrane Database of Systematic Reviews (CDSR--systematic reviews of primary research in human health care and health policy -- the highest standard in evidence-based health care). See, for example, the top 50 reviews (The Cochran Collaboration).
• Commonwealth Fund's health reform resource center , including a timeline for an overview of the Affordable Care Act's major provisions and a "Find Health Reform Provisions" tool to search for specific provisions by year, category, and/or stakeholder group. Also see related Commonwealth Fund content and links to regulations as they become available.
• e-patients.net (because health professionals can't do it alone). See particularly e-Patient Dave on BMJ's evaluation of online symptom checkers: Evaluation of symptom checkers for self diagnosis and triage: audit study ( BMJ 2015;351:h3480)
• Find Help (SAMHSA's links for substance abuse and mental health services)
• Get Health Care (HRSA links to free and inexpensive care)
• Health Affairs, including its blogs and health policy briefs.
• HealthCare.gov. Official site of Affordable Care Act.
• HealthFinder.gov, U.S. government database/encyclopedia of information and interactive tools. See Health Topics A to Z, find services near you, and check out the gazillion other helpful topics.
• Medicare Rights Center, national nonprofit consumer service organization, National Helpline: 1-800-333-4114. Counselors are available Monday through Friday, and are happy to answer your questions about insurance choices, Medicare rights and protections, payment denials and appeals, complaints about care or treatment, and Medicare bills.
• Medicine (Science Blogs)
• Medline Plus makes available information from the National Library of Medicine (NLM), the National Institutes of Health (NIH), and other government agencies and health-related organizations. Provides access to medical journals and extensive information about drugs, an illustrated medical encyclopedia, patient tutorials, and health news.
• NAIRO (National Association of Independent Review Organizations, dedicated to protecting the integrity of the medical review process)
• Physicians for a National Health Program (supports single-payer national health insurance)
• Reporting on Health (USC Annenberg)
• Reports from the Institute of Medicine (National Academies)
• Rural Health Information hub (RHIhub) (formerly the Rural Assistance Center, U.S. Dept. of Health and Human Services) 1-800-270-1898. See online library. Helps rural communities and stakeholders gain access to wide range of programs, funding, and research.
• Smokefree.gov , links to resources for people who want to quit smoking.
• Society for Participatory Medicine (a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners)
• SurgeonRatings.org (Consumers' Checkbook's new website lists surgeons Checkbook has identified as having better–than–average outcomes -- covers 15 types of surgery, but only lists surgeons significantly above average on 90-day mortality, readmissions, and same-stay complications_
• Surgeon Scorecard. ProPublica's website shows death and complication rates in eight types of surgery, showing results on all surgeons, good or bad. with 20 or more surgeries in a category. See USA Today story 'Surgeon scorecard' measures docs by complications.
Paul Burke compared methods for the Checkbook and ProPublica rating systems (Globe1234). Globe1234.com provides all kinds of data a patient might/should want to have
• SurveyUSA News Poll on Health Care Data (showing public opinion on various aspects of the health care debate, by gender, race, party affiliation, ideology, level of college education, income,region, and age)
• Medicare Payment Plan on Cancer Drugs Sparks Furious Battle (Ricardo Alonso-Zaldivar, ABC News, 4-10-16) A Medicare proposal to test new ways of paying for chemotherapy and other drugs given in a doctor's office has sparked a furious battle, and cancer doctors are demanding that the Obama administration scrap the experiment. At issue are some of the most expensive drugs for treating life-changing diseases. The question isn't whether those drugs are fairly priced, but whether Medicare's current payment policy encourages doctors to prescribe the costliest medications so they can make more money. Injected and infused drugs for such conditions as macular degeneration, rheumatoid arthritis and Crohn's disease are also affected. "The new formula announced last month combines a 2.5 percent add-on (as opposed to 6 percent) with a flat fee for each day the drug is administered. A control group of doctors and hospitals would continue to be paid under the current system. "A second wave of experimentation would try to link what Medicare pays for a given drug to how well it works." "Specialist doctors, drugmakers and some patient advocacy groups are trying to compel Medicare to drop the plan. Primary care doctors, consumer groups representing older people, and some economic experts want the experiment to move ahead."
• UnitedHealth Warns Of Marketplace Exit – Start Of A Trend Or Push For White House Action? (Julie Appleby, Kaiser Health News, 11-20-15) UnitedHealthGroup laid out a litany of reasons Thursday why it might stop selling individual health insurance through federal and state markets in 2017 — a move some see as an effort to compel the Obama administration to ease regulations and make good on promised payments. “Disproportionately, the sick are signing up and the healthy are dropping out,” said former insurance executive and consultant Robert Laszewski, adding that alternative plans with fewer benefits but lower costs should be made available.
• Core topic: Insurance (invaluable resource page, Association of Health Care Journalists). See, for example, Glossary; key concepts; resource links; multimedia archive.
• Safety net programs for the poor.
• Repairing Medicare (Wash Post, 1-6-13) "There are two major reasons for Medicare’s rising costs. The first is the program’s design, often tweaked but left fundamentally intact since its creation in 1965, which basically pays doctors and hospitals fixed fees for whatever they do. The ultimate solution is structural: to limit growth in expenditures per beneficiary. Easier said than done. he current Medicare program includes a hodgepodge of cost-sharing requirements that neither give participants clear incentives to limit consumption of services nor shield them from catastrophic expenses. "
• How does health spending in the U.S. compare to other countries? (Bradley Sawyer and Cynthia Cox Kaiser Family Foundation, Health System Tracker, 5-22-17) Helpful chart.
• Medicine’s Top Earners Are Not the M.D.s (Elisabeth Rosenthal, Sunday Review, NY Times 5-12-14) The base pay of insurance executives, hospital executives and even hospital administrators often far outstrips doctors’ salaries. (There are more doctors than administrators, so she's talking about individual, not total, salaries for a group.)
• Remembering What Matters About the Affordable Care Act (Paul Waldman, American Prospect, 1-30-14) On the Affordable Care Act front today, there's very good practical news, and not-so-good political news. That gives us an excellent opportunity to remind ourselves to keep in mind what's really important when we talk about health care.
• GOP Views of Medicaid Expansion Differ From Conventional Wisdom (Drew Altman, WSJ blog, 11-4-15) Many Republicans in states that have not expanded Medicaid are favorable toward expansion. "That even a slim majority of Republicans favor expansion is notable given the tone of debate on this issue on the campaign trail, where expansion has become like a third rail for GOP candidates. ...But Medicaid may not be as unpopular with Republicans overall as the conventional wisdom suggests, and other issues may be more salient for Republican voters in primary and general elections across the country than opposition to Medicaid expansion."
• Bernie Sanders, Hillary Clinton, and Medicare for All (Drew Altman, WSJ blog, 12-20-15) A skirmish broke out recently between Hillary Clinton and Bernie Sanders about the merits of single-payer health care, an idea that Mr. Sanders has long advocated. Most Democrats either strongly favor (52%) or somewhat favor (24%) the general idea of Medicare for all. Meanwhile, 62% of Republicans either strongly or somewhat oppose the idea. In his advocacy of Medicare for all, a policy that he recognizes cannot be achieved any time soon, Mr. Sanders is signaling his outside-the-box approach to policy and politics, while in opposing the idea Mrs. Clinton may have been signaling her more practical and incremental approach to achieving policy change.
• Health Insurance Is Not a Favor Your Boss Does For You (Paul Waldman, American Prospect, 7-9-14) Everyone seems to have forgotten that insurance is a form of compensation, no less than your salary. Click here for more Waldman stories on health care and insurance.
• The Tennessean pushes for better healthcare (Trudy Lieberman, Columbia Journalism Review, 12-1-14) on how one reporter's (Tom Wilemon's) stories show readers the effect of state government policy on real people. For example, Twin babies' $200K hospital bill illustrates TennCare flaws (10-4-14), Thousands caught in TennCare limbo await hearings (11-14-14), TennCare patients on ventilators face cuts in home care (11-9-14), and TennCare point system leaves some seniors fending for themselves (video and print story on TennCare's scoring system, under which those who have difficulty walking and eating still may not qualify for nursing home care) 2-16-14).
• Behind the Scenes on Those Enormous Medicare Billing Numbers (Kevin Jones, Mother Jones, 4-10-14)
• A British Woman Spent Three Days in a U.S. Hospital. Here's What She Learned About Obamacare. (Eleanor Margolis, New Republic, 10-18-13. First appeared in New Statesman) "I begin to wonder how the Republicans have managed to convince even those in the very midst of a system that punishes the poor, that the slightest implementation of state-funded healthcare is an evil, communist conspiracy. ...As a foreigner with travel insurance, I’m lucky enough to observe American healthcare from a safe distance. But to someone fully enmeshed, like Carmen, Obamacare is a tiny drop in the murkiest of quagmires."
• What's in a name? Lots when it comes to Obamacare/ACA (Steve Leisman, CNBC, 9-26-13) In CNBC's third-quarter All-America Economic Survey, we asked half of the 812 poll respondents if they support Obamacare and the other half if they support the Affordable Care Act. And 30% of those polled don't know what ACA is, vs. only 12% when asked about Obamacare; 29% support Obamacare compared with 22% who support ACA; and 46% oppose Obamacare and 37% oppose ACA. "So putting Obama in the name raises the positives and the negatives." Republicans coined the term Obamacare as a pejorative, but not everyone perceives it that way.
• Understanding the Right’s Obamacare Obsession (Joshua Holland, What Matters Today, Moyers.com, 9-2-13) Excellent overview.
• Why Republicans can't come up with an Obamacare replacement (Ezra Klein, Vox, 1-16-15) Making "sure poor people have health insurance is politically popular, at least in the abstract. But the plans that achieve it tend to be in tension with both broad tenets of conservatism — it raises taxes, it redistributes wealth, and it grows the government — and with key factions of the conservative coalition....It is ironic that the law Republicans loathe most is actually based on ideas they developed, and that their most recent presidential nominee actually implemented."
• Supreme Court Case May Be A Wake-Up Call For Republicans (Julie Rovner, KHN, 2-23-15) About Obamacare: "“Republicans are united around repeal. And they’re united around replace. But obviously they’re not united around ‘replace with what...’”
• Obamacare: The Rest of the Story (Bill Keller, Opinion Page, NY Times, 10-13-13) "You realize those computer failures that have hampered sign-ups in the early days — to the smug delight of the critics — confirm that there is enormous popular demand. You have probably figured out that the real mission of the Republican extortionists and their big-money backers was to scuttle the law before most Americans recognized it as a godsend and rendered it politically untouchable. What you may not know is that the Affordable Care Act is also beginning, with little fanfare, to accomplish its second great goal: to promote reforms to our overpriced, underperforming health care system. " An interesting account of "accountable care organizations" (ACOs), which are springing up all around the country.
• Americans' Top Health-Care Priorities for the President and Congress (Drew Altman, WSJ, 5-4-15) Surprising results of the Kaiser Family Foundation’s April 2015 Health Tracking Poll. #1 priority: Making sure that high-cost drugs for chronic conditions are available at affordable costs.
• Medicaid Expansion in Red States (Drew Altman, WSJ's Think Tank, 12-18-14) "In the struggle between pragmatism and ideology over Medicaid expansion in red states, pragmatism may slowly be winning."
• Majority Favors the Affordable Care Act’s Employer Mandate, But Opinion Can Shift When Presented With Pros and Cons (Kaiser Family Foundation, 12-18-14) Recent news stories on the health law did not attract most Americans’ attention, and many are unaware of details and implications of the developments.
• Three Words and the Future of the Affordable Care Act (PDF, Nicholas Bagley, draft accepted for publication in Journal of Health Politics, Policy and Law, 2014, open access)
• The Piecemeal Assault on Health Care(NY Times editorial, 11-22-14) "Now that they will dominate both houses of Congress, Republicans are planning to dismantle the Affordable Care Act piece by piece instead of trying to repeal it entirely....All of the provisions they are targeting should be retained — they were put in the reform law for good reasons."
• Hospitals and health law (Opinion, NY Times, 12-7-14) "The American people aren’t the only ones who will suffer from the systematic dismantling of the Affordable Care Act. It’s also bad news for America’s hospitals."
• The Affordable Care Act Will Work (Sen. Jay Rockefeller, Reader Supported News, 10-3-13)
• Where Poor and Uninsured Americans Live (interactive map, NY Times, 10-2-13). The 26 Republican-dominated states not participating in an expansion of Medicaid are home to a disproportionate share of the nation’s poorest uninsured residents. Eight million will be stranded without insurance.
• Church Insurance Improvements To Obamacare Threatened By Partisan Fighting (Sarah Pulliam Bailey, Religion News Service, 8-9-13)
• Little Evidence Obamacare Is Costing Full-Time Jobs (Kaiser Health News' Daily Report, 10-23-13) Roundup of stories from WSJ, NYTimes, Reuters, Wash Post, Politico and others.
• States Are Focus of Effort to Foil Health Care Law (Sheryl Gay Stolberg, NY Times, Politics, 10-18-13) In Virginia, conservative activists are pursuing a hardball campaign as they chart an alternative path to undoing “Obamacare” — through the states.
• The Republican party's 'defund Obamacare' disorder (Michael Cohen, The Guardian, 8-25-13) In denial of political reality thanks to its Tea Party fringe, the GOP is revving up for a debt ceiling showdown it can only lose.
• How the ObamaCare defunding fight became a political showdown (Sam Baker, HealthWatch, 8-29-13)
• as part of a whole section on
Health Care Reform, Medical Error, and the Affordable Care Act, including one section on What you need to know about long-term care insurance.
When the partner over 65 picks up Medicare (and a secondary insurer), the under-65 person is left out in the cold, says one member of Association of Health Care Journalists, through whom I learn much of what you find here).
• The Hidden Marriage Penalty in Obamacare (Garance Franke-Ruta, The Atlantic, 11-5-13) Childless couples and empty nesters pay more. Much more. The Obamacare subsidies "are more generous to single people and one- or two-parent families with children in the house than to couples who lack children. They were designed to help single moms and struggling middle-class families with children, not married creative-class millennials in pricey cities who have not yet settled into well-paid work, or barring that, work for a single employer."
"Any married couple that earns more than 400 percent of the federal poverty level—that is $62,040—for a family of two earns too much for subsidies under Obamacare. "If you're over 400 percent of poverty, you're never eligible for premium" support, explains Gary Claxton, director of the Health Care Marketplace Project at the Kaiser Family Foundation."
• Some Face Marriage Penalty In Obamacare Subsidies (Robert Calandra, The Philadelphia Inquirer and Kaiser Health News, 12-4-13) Some couples are complaining that "the law has a hidden marriage penalty. Here’s why: Say a couple has a household income of $70,000 with one spouse making $30,000 and the other $40,000. Combined, they are ineligible for a subsidy. But if they were just living together, each would be eligible for a subsidy." “We’ve known all along that some people will do better in this market and some people will do worse,” said one expert. "The ACA, like the tax code, is complicated, and it sometimes provides a marriage subsidy and a penalty, said Mark Duggan, a health economist at the University of Pennsylvania’s Wharton School." Changing "the way health insurance is delivered in America is a huge undertaking.... the country will have to break a few eggs to make this omelet."
• Resources for Agents and Brokers in the Health Insurance Marketplaces (The Center for Consumer Information & Insurance Oversight, CCIIO, CMS)
• Why The GOP’s ‘Marriage Penalty’ Is A Myth (Igor Volsky, ThinkProgress, 10-27-11) Issue one: "since the majority of the uninsured are not married and marrying lowers uninsurance rates, providing more subsidies to individuals is a better way of targeting affordability credits to those who need them most....to expand the affordability definition and allow more people to take advantage of the tax credits within the exchanges would cost the government “an extra $50 billion a year” — spending Republicans would surely oppose....Republican health care prescriptions — look to the Boehner alternative introduced in the House for an example — don’t provide subsidies to anyone — married or unmarried and it’s actually their efforts to repeal the ACA and do little to nothing for health care spending that would significantly strain families and their economic well being."