DYING, SURVIVING, AND AGING WITH GRACE


Not necessarily in that order
Resources on illness, death and dying, loss, grief, and positive aging

Selected Works

Enjoying the golden years
Autism, Asperger's syndrome, Savant Syndrome
Depression, bipolar disorder (manic-depressive illness), schizophrenia, and other forms of mental illness
Including suicide and assisted dying
Plus memorials and requiems
Plus cemeteries, coffins, headstones, memorials, etc.
(stories about specific diseases, conditions, syndromes)
Narrative medicine (or medical narrative) Memoirs of illness, crisis, disability, differentness, and survival
Assisted living, nursing homes, cohousing, or living in place (with or without caregivers)

Charity and volunteering: Giving wisely and doing good

Want to give to the charities that spend most of what they take in on the charity program itself, not on fundraising? Me, too. I've linked here to sites that provide the most help figuring out which programs are worth supporting. Other things you can donate: food, blood, organs (kidney, etc.), computers, vehicles, and surplus items (things you don't want or need and hope someone else can use). Combine decluttering with philanthropy, and earn a tax deduction.
Volunteering
Charity ratings
Tips on charitable giving
Rethinking charity
Teaching the next generation about giving
Practicing philanthropy
Worst practices in charity world
Donating your body or body parts


Volunteering

Armchair Advocates (using social media to advocate on behalf of the causes that matter most). Facebook page. How are companies, organizations & individuals using the web to move people from armchair to action and invest in global causes? Read Are You an Armchair Advocate?" (Charles A. Bentley, Huff Post, 3-17-13)
Catchafire (matches professionally-skilled volunteers with nonprofits and social enterprises. Read Catchafire CEO: If I Don't Use My Time Well, My Employees Won't Either (Catherine Clifford, Entrepreneur, 1-15-14)
Create the Good (AARP, search function for finding volunteer activities in your area) Some interesting projects turn up, such as the Lost Ladybug Project: Observers Needed!
Focusing Philanthropy (identifying nonprofit organizations as candidates for personal philanthropy)
Encore.org, a nonprofit group that is building a movement to tap the skills and experience of people in midlife and beyond to improve communities. Awards the Purpose Prize.
Idealist (find volunteer opportunities, nonprofit jobs, internships, and organizations working to change the world) Volunteer, work, intern, organize, hire, and connect.
The Mission Continues (helps wounded veterans coming home continue being contributing members of their society. Listen to Talk of the Nation radio interview Challenging Assumptions Made About Veterans. "Often, the stories we come across about vets, whatever war they fought in, are stories of difficult transition back to civilian life. Former Navy pilot Ken Harbaugh says actually, most soldiers return just fine."
Moving Worlds Experteering: Volunteer your real skills abroad, make an impact, and live for free. Apply your skills for social good. "Voluntourism can't solve real problems... That's where Experteers come in." See FAQs for Experteers
Omprakash (connecting volunteers with grassroots organizations around the world)
Volunteermatch Find a cause that lights you up. Get in touch with a nonprofit that needs you. (Advocacy and human rights. Animals. Arts & culture. Board development.)
Volunteer Vacations: How to Be Sure You’re Helping (Donna L. Hull, Next Avenue, 2-12-12) Due diligence is essential to ensure that your money — and hard work — truly benefit people
Voluntourism: Are You Up to the Challenges? (Bart Astor, Next Avenue, 3-12-14) Helping out in an exotic locale can be ideal if you ask key questions first
Where Older Workers are Valued and Honored (Kathryn Lance, Next Avenue, 5-28-15). Volunteering as a docent in retirement can deliver generous rewards. Excellent article. Who knew docents needed all that training -- and that learning was one of the chief benefits of volunteering? Google "docent training" and names of your favorite museums, research centers, parks, etc. and see what comes up!
Social Programs That Work, interventions identified by the Coalition for Evidence-Based Policy (nonprofit, nonpartisan).
Let me know if anything important or useful is missing.
"That's what I consider true generosity. You give your all, and yet you
always feel as if it costs you nothing." ~ Simone de Beauvoir

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Top charity ratings


Charity Navigator rates 3,600 charities with one to four stars, providing free financial evaluations of America's charities, rating them on organizational efficiency and organizational capacity. Many other resources, including How to stop solicitations by mail.
Give Well (a very short list of "evidence-backed, thoroughly vetted, underfunded organizations")
Charity Watch, a nonprofit charity watchdog, rates nonprofits with a letter grade (A to Z). Formerly American Institute of Philanthropy (AIP). For a $50 contribution, you can get its Charity Rating Guide & Watchdog Report, which among other things lists salaries paid to fundraisers.
GuideStar Charity Check (pre-grant due-diligence product that is compliant with all IRS requirements for verifying eligibility to receive grants and payouts)
GiveWell (evidence-backed short list of good charities, thoroughly vetted and underfunded--principally in developing, often African, countries)
Give.org, BBC Wise Giving Alliance (rates charities as accredited, not meeting standards, etc.) Some charities choose not to disclose financial info.
Top-Rated Charities (Charity Watch, with letter grade)
Charity Watch's links to other resources for evaluating charities, including the Washington Post's searchable database of nonprofits that have reported a diversion of assets
Forbes's list of America's 200 Largest Charities. Forbes lists American's largest charities (by donations) and provides data on their efficiency.
Evaluating Charities Not Currently Rated by Charity Navigator. One helpful tool is the Foundation Center's 990 Finder
America's Top 50 charities: How well do they rate? (Christian Science Monitor)
Red Cross Misstates How Donors' Dollars Are Spent (Laura Sullivan, NPR, for All Things Considered, and Jesse Eisinger and Justin Elliott, for ProPublica, 12-4-14). Same story as reported on ProPublica (and there you'll see links to other stories on the topic.
Charity Checker (searches the top charity watchdog and review sites and shows you their ratings)
• A Snopes.com article reports that six veterans-related charitable organizations don't receive very high marks for efficiency (as determined by Charity Navigator, the BBB, or Form 990 information):
American Legion: 55%
Veterans of Foreign Wars: 84%
Disabled American Veterans: 77%
Military Order of Purple Heart Service Foundation: 35%
Vietnam Veterans of America: 25%
Wounded Warrior Project: 58%
Read more at http:/​/​www.snopes.com/​politics/​business/​charities.asp#hgUMepk3opOuqGCy.99
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Tips on charitable giving


Top 10 Best Practices of Savvy Donors (Charity Navigator)
Charity Navigator's tip sheets on savvy donating to charity include Top 10 Best Practices of Savvy Donors and 7 Questions To Ask Charities Before Donating.
Friday5. For $5 a week (charged to your credit card), you donate to charitable causes through Friday5. See How it picks its causes and an article about the good story: Friday5 makes you look virtuous while it does all the work – and for only a fiver (Michael Carney, PandoDaily, 3-22-13). Through this subscription-based donation model you outsource all the research and check-writing and mailing, while Friday5 does background checks and makes what appear to be good choices on charitable giving. Follow who gets weekly donation on Friday5's Facebook page
Three Questions To Ask Before Donating To A Charity (Anjali Sastry and Kara Penn, Cognoscenti, Thinking That Matters, 12-19-14). "Look for a clear story that connects what the organization does to the actual changes in the world that it seeks. The more transparency, the better." For example, Give Directly offers unconditional cash transfers to the poor (see pp. 35-35 of this evaluation of such transfers in a randomized controlled trial of such transfers in rural Kenya).
Charity Navigator's tip sheets on savvy donating to charity include Top 10 Best Practices of Savvy Donors and 7 Questions To Ask Charities Before Donating.
What to do when a charity calls (Charity Navigator). Among other things: If you determine that the telemarketer is calling you on behalf of a charity that you wish to support, contact the charity and find out how to donate to it directly. That way you avoid having part of your donation taken by a for-profit company.
Guide to Donating Noncash Items (Charity Navigator)
Guide to donating your car (Charity Navigator)
Tax-Deductible Clothing Donations Are Great, Except Your Used Socks (Ron Lieber, NY Times, 5-15-15) Slideshow: The Good, Bad, and Ugly Guide to Donating Clothing
Eight Tips for Deducting Charitable Contributions (IRS)
Tax Benefits of Giving (Charity Navigator)
When Donating to Charity, Don’t Send A Money Transfer to An Individual (Shelley Bernhardt, Better Business Bureau, 12-3-13)
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Teaching the next generation about giving


The Opposite of Spoiled: Letting the Kids in on the Charitable Giving Conversation (Ron Lieber, Parenting blog, NY Times, 2-6-14) One family’s experiment in letting their daughter help decide how to divide the money it gives away each year.
To Teach Children to Give, Tell Them How Much Your Family Has Been Given (Ron Lieber, Motherlode, NY Times, 10-25-15) At some point, your family was lucky enough to get help. Now, you help others. If you want to teach your children about money, giving them an allowance is a great place to start. They’re going to need a place to put it, which is how the three-jar system came into existence: one for spending, one for saving and one for giving.

Best Charity Sites to Teach Kids About Giving (Emma Johnson, Forbes, 2-26-15) Johnson lists:
---Watsi.org (fund healthcare for people around the world)
---Oxfam Unwrapped America (children and families choose gifts by category--health, education, environment--and then choose specific gifts, such as "a dozen chicks for $45, to help a rural family start for-profit flock, $35 for a school meal program for a child or $100 for a donkey cart"
---David Sheldrick Wildlife Trust online fostering of orphaned and endangered elephants, rhinos and giraffes, especially baby calves, which are orphaned when their parents are killed for their tusks,
9 Ways to Teach Your Child About Charity (Chick Moorman and Thomas Haller, Parents, originally published on HealthyKids.com, January 2005) By the authors of The 10 Commitments: Parenting with Purpose
Charity Starts at Home: Teaching Kids About Charity (Jennifer Cooper, PBS, 11-18-13) "Kids often operate from a center of self so talk to them about how their actions will affect others. For instance saying, “When we raise money for this charity, the money will go to kids who need medicine so they will get healthy” will have more of an impact than, “because it’s the right thing to do.” Both are true, but one helps frame it in a relatable way."
Kids and Philanthropy: Teaching Your Children to Be Charitable (Beth Kanter, 12-21-12)
Build Great Giving Habits: Teach Children to Give (Neesha Rahim, The Osborne Group, 12-13-12). Rahim writes about seven organizations that help bring children into the giving fold--more by volunteering than by raising money--engaging them in ways that resonate with them. She describes and links to Teach for UNICEF, Room to Read, The Global Fund for Children, Fidelco, The New York Blood Center‘s “Little Doctors Program,” Girl Up, and the Friendship Through Education Consortium

BOOKS ON THE SUBJECT:
Raising Charitable Children by Carol Weisman. She and her husband offered to match the funds her children raised because they both worked for companies that matching gift programs.
The Opposite of Spoiled: Raising Kids Who Are Grounded, Generous, and Smart About Money by Ron Lieber
Doing Good Together: 101 Easy, Meaningful Service Projects for Families, Schools, and Communities by Jenny Friedman and Jolene Roehlkepartain
The Giving Book: Open the Door to a Lifetime of Giving by Ellen Sabin
The Kid's Guide to Service Projects: Over 500 Service Ideas for Young People Who Want to Make a Difference by Barbara A. Lewis
Real Kids, Real Stories, Real Change: Courageous Actions Around the World by Garth Sundem (for children 9 to 13)

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Rethinking charity


The revolutionary technology helping to fight food waste. (Terrence McCoy, Washington Post, 12-6-15) GW law student Grant Nelson co-founded with Maria Rose Belding a sprawling online network that connects thousands of food pantries in 24 states, allowing them to quickly share surplus food that might have otherwise gone to waste. That network/​database: MEANS (Matching Excess and Need for Stability), a database that may "close lapses in communication between pantries and chip away at the country’s colossal problem with chronic waste."
A Philanthropist Drills Down to Discover Why Programs Work (Paul Sullivan, Wealth Matters, NY Times, 2-5-16) After examining hundreds of applications, she picked eight organizations to support and encourage to dissect what they were doing and why it had proved successful. Her goal: to find the secret sauce and reveal it to other organizations trying to do similar work -- to explore how agency, resiliency and other skills play a role in preparing youth to adapt and thrive in a rapidly changing world.
A Charity That Just Gives Money To Poor People (Jacob Goldstein, Planet Money, NPR, 8-2-11) Give Directly: Send money directly to the extreme poor. "A group of economists is launching a charity with a simple but radical plan: Give money to very poor people, and let them spend it however they want." Read what GiveWell says (pro and con) about this "charity to watch."
What makes millennials give to charity? (Melissa Schorr, Boston Globe, 10-28-15) Fancy dinners and pleas for checks don’t resonate with younger donors. They want a deeper connection to a cause. Young donors want to be inspired, and they want to be actively involved, whether that means pedaling for a purpose or swinging a hammer. “Millennials like to think of themselves as not just donors, but investors...They don’t give out of obligation. They give out of a sense of mission.”
Modest Needs (provides short-term financial assistance to individuals and families in temporary crisis who, because they are working and live just above the poverty level, are ineligible for most types of conventional social assistance but who (like many of us) are living one or two lost paychecks away from the kind of financial catastrophe that eventually leads to homelessness). See FAQs.
Weighing the Best Vehicles For Philanthropic Giving (Paul Sullivan, Wealth Matters, NY Times, 1-28-11) As private foundations attract more IRS scrutiny, some wealthy philanthropists are considering the benefits of donor-advised funds, which are also less costly to manage.

Deciding How to Slice Your Charitable Pie (Ron Lieber, NY Times, 12-7-12) "To lead a truly ethical life, Peter Singer writes, we should be doing much more to help poor people in faraway places. Our money can go farther there, too, giving us more bang for our charitable buck." Singer compares the ethics of giving to reduce global poverty to giving to educational institutions, giving to houses of worship, giving to cultural institutions
The Life You Can Save: How to Do Your Part to End World Poverty by Peter Singer. From PW review: “Part plea, part manifesto, part handbook, this short and surprisingly compelling book sets out to answer two difficult questions: why people in affluent countries should donate money to fight global poverty and how much each should give. . . . Singer doesn’t ask readers to choose between asceticism and self-indulgence; his solution can be found in the middle, and it is reasonable and rewarding for all.”
Making a Difference in This Season of Giving (Tara Siegel Bernard, NY Times, 12-6-13) “If you are truly driven by altruism, then you don’t care about the color of the person’s skin you are helping or the passport they carry,” said Dean Karlan, an economics professor at Yale University and founder of Innovations for Poverty Action, which uses randomized trials to test what social policies work.

What Gives: Generosity in America (Backstory, public radio with the American History Guys), a whole hour, in these segments:
---Give it all away (Scholar Isiah Wilner talks about the tradition of Kwakwaka’wakw potlatches -gatherings where you might give not only the shirt off your back, but the roof over your head.) From there you can click on the following links:
--- To Give & Buy in the U.S.A. Expanding on the potlatch, the Guys talk about giving and philanthropy throughout American history, starting with the Big Master giving Christmas gifts to their slaves.
---Democratic Institutions. Historian Johann Neem and host Peter Onuf examine charity in the Early Republic – and why Thomas Jefferson would not have been a fan of large private charitable foundations.
--- Scientific Method. Historian Alice O’Conner and host Ed Ayers talk about the rise of ‘scientific’ giving and modern philanthropy (organized giving as a top-down way of shaping society--e.g., through intermediate institutions such as libraries, as opposed to giving charity to individuals.)
---For Whom the Bell Tolls. The Guys take a call from a listener curious about the tradition of Salvation Army Santas.
---Theater of Giving. Scholar Shelia Moeschen discusses the rise of philanthropy performances, decades before the modern telethon was born.
--Red Crossing a Line. Historian Kevin Rozario discusses the Red Cross at the turn of the 20th century, when the organization realized it must compete with the increasingly sophisticated entertainment industry for the attention of possible donors.

In Defense of the Personal Crowdfunding Campaign (Ron Lieber, NY Times, 11-20-15) The siblings Luke and Dana Nowakowski started a campaign on GoFundMe to raise $25,000 to help their father pay for the care of their mother, who has dementia and mobility challenges.

A Better Way to Encourage Charity (Ray D. Madoff, Opinion, NY Times, 10-5-14) "Reducing taxes for all private foundations does nothing to encourage greater payouts. Instead of abandoning the incentives, Congress should make them cleaner and easier to apply....Retain the current 2 percent excise tax for those private foundations that spend 6 percent or less; reduce the rate to 1 percent for those that spend between 6 and 8 percent; and eliminate the tax completely for those that spend 8 percent or more. Each year the foundation could choose its own payout and excise tax rates."
Finding a Purpose, and Winning a Prize for It (Kerry Hannon, Retiring, NY Times, 11-13-15) Now in its 10th year, the Purpose Prizegranted $100,000 to one winner and $25,000 each to five others this year. In addition, 41 Purpose Prize fellows were honored for their innovative work. The Purpose Prize for Americans 60 and older was created by Encore.org, a nonprofit group that is building a movement to tap the skills and experience of people in midlife and beyond to improve communities.
Focusing Philanthropy (identifying nonprofit organizations as candidates for personal philanthropy)
GiveDirectly Send money directly to the extreme poor. (But read: GiveDirectly? Not So Fast (Kevin Starr & Laura Hattendorf, Stanford Social Innovation Review, 3-11-14). Great idea, but does it provide lasting benefits?
Giving Tuesday: Where Would Your Children Give? ( KJ Dell'Antonia, NY Times, 12-2-14)
The Holidays: A Bit More Giving, a Bit Less Getting (Ron Lieber, NY Times Motherlode blog, 11-14-13) Wonderful tips for getting children and the whole family involved in charitable giving.
Donors Choose makes it easy to help classrooms in need. Public school teachers post classroom project requests which range from pencils for poetry to microscopes for mitochondria.
Duck Tape for Camille (one of several examples of imaginative giving, on Nate Goldman's radio program on KBUR, Kind World).
Kind World: A Minister's Challenge Church members were given envelopes containing from $5 to $20 and told to give it to someone who might need it, and come back and tell the story. "Somebody had folded up their $5 bill in their wallet, and they said they were walking through their life with a different kind of vision for the need that was around them. It was only $5, but the money helped them grow new antennae for the world around them. For five bucks, that’s a priceless thing."
Building a Bigger Tent for Effective Philanthropy (Paul Connolly, Stanford Social Innovation Review, 5-26-15) By embracing a more-inclusive outreach approach, effective philanthropy advocates can attract more funders.
Forces for Good: The Six Practices of High-Impact Nonprofits by Leslie R. Crutchfield and Heather McLeod Grant
The way we think about charity is dead wrong (Dan Pallotta's TED Talk, Mar 2013) Too many nonprofits, he says, are rewarded for how little they spend — not for what they get done. Instead of equating frugality with morality, he asks us to start rewarding charities for their big goals and big accomplishments (even if that comes with big expenses). In this bold talk, he says: Let's change the way we think about changing the world. Transcript of talk and Dan Pallotta's reading list (articles about nonprofit finances — and why Pallotta argues we should fight capitalism with capitalism) and his book:Charity Case: How the Nonprofit Community Can Stand Up For Itself and Really Change the World
The Charitable-Industrial Complex (Peter Buffett, Op Ed, NY Times, 7-26-13) "Money should be spent trying out concepts that shatter current structures and systems that have turned much of the world into one vast market. Is progress really Wi-Fi on every street corner? No. It’s when no 13-year-old girl on the planet gets sold for sex. But as long as most folks are patting themselves on the back for charitable acts, we’ve got a perpetual poverty machine."
"For what it is worth, we think that there is a new story unfolding, one that has been under way for a few years. It is led, in some ways, by Mr Buffett’s father and his pal, Bill Gates. It stresses the importance of philanthropic money being used as risk capital, and of achieving systemic change. We call it "Philanthrocapitalism."
The Pros and Cons of Financial Efficiency Standards (Urban Institute). Since nonprofit organizations are not legally obligated to divulge audited financial statements to the public, Form 990 is the only publicly available document that reports on the finances of the majority of nonprofit organizations. These forms are useful but figures can be manipulated. "Watchdogs, regulators, and donors would do well to focus on the question of how well nonprofits deliver their services rather than dwell on the issue of how they choose to spend their money."
Philanthropic Equity ( George Overholser and Sean Stannard-Stockton, Tactical Philanthropy, 1-21-09)
Philanthropic Giving: To Be or Not to Be—Some Thoughts on the Life of Family Foundations (John Warnick, Purposeful Planning Institute, Aug-Sept 201) The two leading reasons for deciding to exist in perpetuity are a desire to have a long-term impact on the community and a desire for family engagement across generations. Why do some philanthropists and/​or foundation trustees and executives choose to spend down foundation assets?
Alicia Keys Asks: Why Are We Here? (Nicholas Kristof, NY Times, 9-20-14) The superstar singer "is now starting a We Are Here movement to channel her music and her fans to social justice causes, from stricter gun laws to criminal justice reform, from gay rights to global girls’ education."
Global Giving (Connecting donors with community-based projects that need support)
Nicholas Kristof: Transforming Lives Through Philanthropy (WAMU program, Kojo Nnamdi show, 9-29-14). Americans are among the most generous donors to charity in the world, yet we often know very little about the groups we support. Where does all their money go, and whom does it really help? New York Times columnist and author Nicholas Kristof talks about how to be a high-impact donor and why both journalists and charities often struggle to make people care about far-away hardships.
A Path Appears: Transforming Lives, Creating Opportunity by Nicholas D. Kristof and Sheryl WuDunn ("a sweeping tap­estry of people who are making the world a better place and a guide to the ways that we can do the same—whether with a donation of $5 or $5 mil­lion, with our time, by capitalizing on our skills as individuals, or by using the resources of our businesses"). Read Paul Collier's piece about the book (NY Times, 10-16-14). By the same authors: Half the Sky: Turning Oppression into Opportunity for Women Worldwide (showing how a little help can transform the lives of women and girls abroad).
Philanthrocapitalism "For what it is worth, we think that there is a new story unfolding, one that has been under way for a few years. It is led, in some ways, by Mr Buffett’s father and his pal, Bill Gates. It stresses the importance of philanthropic money being used as risk capital, and of achieving systemic change. We call it "Philanthrocapitalism."
The Pros and Cons of Financial Efficiency Standards (Urban Institute). Since nonprofit organizations are not legally obligated to divulge audited financial statements to the public, Form 990 is the only publicly available document that reports on the finances of the majority of nonprofit organizations. These forms are useful but figures can be manipulated. "Watchdogs, regulators, and donors would do well to focus on the question of how well nonprofits deliver their services rather than dwell on the issue of how they choose to spend their money."
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Donating your body or body parts

I’d rather be dissected (Brooke Borel, Aeon, 10-4-13)
In death, a promise for the future. As her world diminished, Elizabeth Uyehara signed her body over to researchers to help unravel the mystery of Lou Gehrig's disease. (Thomas Curwen, Los Angeles Times, 8-28-10, on the course of Uyehara's ALS and on what happens when organs are donated for science)
Anatomical gifts (Empowering Caregivers)
Make Me a Match (Freakonomics, 1-29-16) Sure, markets generally work well. But for some transactions — like school admissions and organ transplants — money alone can’t solve the problem. That’s when you need a market-design wizard like Nobel Prize winner Al Roth. You’ll hear how Roth and others have revolutionized the organ-donor market.
The Gift of Life 10 Frequently Asked Questions About Organ, Eye, and Tissue Donation.
A Struggle To Define 'Death' For Organ Donors (Rob Stein, Morning Edition, 3-28-12). Listen or read online. A new method of obtaining organs for transplantation is raising a host of ethical questions, including whether the donors are technically "dead."
The Solvable Problem of Organ Shortages (Jane E. Brody, NY Times, Health, 8-28-07)
For Living Donors, Many Risks to Weigh (Jane E. Brody, NY Times, 9-4-07)
Organdonor.gov
Read inspiring donor stories. Why organ, eye, and tissue donations? 121,675 people are waiting for an organ; 22 people will die each day waiting for an organ; 1 organ donor can save up to 8 lives. Read the stories and the numbers.
State laws facilitate organ and tissue donation commitment and make transplants happy
A Medical Dimension to a Religious Debate (Anthony Ramirez, NY Times, 11-18-06) "According to Jewish law, when can an observant Jew donate a loved one’s organs for life-saving transplant operations? More broadly, when does life end and death begin?"
Living Kidney Donors Network
Finding a Donor (for bone marrow transplants)
Organ Donation and Organ Transplant Stories (Finger Lakes Donor Recovery Network)
Stories of organ, eye, and tissue donation (Colby Foundation -- stories of loss and of hope)
Frozen embryo 'open adoption' raises hopes, questions (TODAY Parents, 2-27-12) "Carmen Olalde really wanted children. She went through years of infertility treatment and IVF, then a difficult pregnancy, to have her twins. And as her twins turned four, she realized that two kids were enough. But she still had four frozen embryos from her last IVF cycle....Meet the modern “open adoption” family – at least two hopeful humans and one embryo, brought together by science, trust, complicated legalities and a goodly bit of luck."
Donor's Death Shatters Family, Stuns Surgeon (Liz Kowalczyk, Boston Globe, 2-2-14) Pure generosity drove Paul Hawks to donate part of his liver to his desperately ill brother-in-law. Then disaster struck, and transplant medicine has had to rethink its rules.

The Frozen Children: The Rise—and Complications—of Embryo Adoption in the U.S. ( Rebecca Buckwalter-Poza, Pacific-Standard, 5-5-14) efficient than in vitro fertilization and cheaper than traditional adoption, embryo adoption, which also provides parents with the experience of carrying a child, is becoming more popular. But our legislature is still struggling with serious legal issues surrounding the practice.
Cash for Kidneys: The Case for a Market for Organs (Gary S. Becker and Julio J. Elias, WSJ, 1-18-14) There is a clear remedy for the growing shortage of organ donors.
Meeting the growing demand for kidney transplantation in older CKD patients (Kidney International, official journal of the International Society of Nephrology). •‘Enlarging the donor pool by accepting expanded-criteria donors: ≥60 years old or ≥50 with any two of the following conditions: history of hypertension, serum creatinine ≥1.5 mg/​dl, or death due to cerebrovascular accident. •‘Old for old’: preferentially using kidneys from older living donors for older recipients •Transplanting two marginal kidneys instead of one.
Inside the growing global market of organ trafficking (PBS NewsHour, 8-17-14) Nearly 4,000 people die every year in the United States waiting for a kidney transplant. And while it's illegal almost everywhere, there is a thriving global market of organ trafficking. Kevin Sack of The New York Times, who’s been investigating the global organ trade, joins Hari Sreenivasan.


Organ Procurement Organizations (OPO). By federal law, all OPOs must be members of the Organ Procurement and Transplantation Network (OPTN). All OPOs are members of the Association of Organ Procurement Organizations. Find links to state organizations here. Other organizations involved in organ and tissue donations:
American Association of Tissue Banks: www.aatb.org
Home for Donor Families (National Kidney Foundation): www.kidney.org
American Board of Transplant Coordinators: www.abtc.net
American Red Cross: www.redcross.org
American Society of Transplantation: www.myast.org
National Marrow Donor Program ("Be the Match"): bethematch.org
The Organ Procurement and Transplantation Network: www.optn.transplant.hrsa.gov
United Network for Organ Sharing: www.unos.org
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Worst practices in charity world


America's Worst Charities (Kris Hundley, Tampa Bay Times, and Kendall Taggart, Center for Investigative Reporting, June 2013, joined later by CNN)
The 50 worst, ranked by money blown on soliciting costs (Matt McCleskey hosting, Kojo Nnamdi show, 5-26-15). Interviewed: Stacy Palmer Editor, "Chronicle of Philanthropy" and Jacob Harold President and CEO, GuideStar. "Last week the Federal Trade Commission announced that, along with all 50 states and the District of Columbia, it was taking legal action against four “sham” cancer charities. Allegations that the groups deceived donors to the tune of $187 million have rippled through the nonprofit world. We consider what red flags donors should be on the lookout for and how data can — and can’t — help us decide who’s a good actor." The four charities: Cancer Fund of America, Inc., Cancer Support Services Inc., Children’s Cancer Fund of America Inc., and The Breast Cancer Society Inc. Here's the NY Times story 4 Cancer Charities Are Accused of Fraud (Rebecca R. Ruiz, 5-19-15).
Planet Aid's "Recycling" Program, Debunked! (Charity Watch, 1-18-16)
Charity Watch articles. When you're serious about investigating wrongdoers in the charity world, these links to Charity Watch articles are a good place to start.
The Afterlife Of American Clothes (podcast, Gregory Warner and David Kestenbaum, Planet Money's T-Shirt Project, All Things Considered, 12-2-13)
The Trouble with Second-Hand Clothes (Tansy Hopkins, OpEd, Business of Fashion, 11-10-13) As the Christmas season approaches, millions of Westerners will flock to charity shops to donate their second-hand clothes. But the multi-billion dollar global market for used clothing is not what it seems, posing difficult questions for those hoping to do good by donating.
Is It Nuts to Give to the Poor Without Strings Attached? (Jacob Goldstein, NY Times Magazine, 8-13-13)
Money for Nothing and Your Cows for Free. (Podcast, This American Life, WBEZ, 8-16-13). Planet Money reporters David Kestenbaum and Jacob Goldstein went to Kenya to see the work of a charity called GiveDirectly in action. Instead of funding schools or wells or livestock, GiveDirectly has decided to just give money directly to the poor people who need it, and let them decide how to spend it. David and Jacob explain whether this method of charity works, and why some people think it's a terrible idea. (28 minutes)
Bogus Cancer Charities Are Harmful To Patients: How To Give Wisely (Elaine Schattner, Forbes, 5-20-15)
Money Well Spent?: Navigating Charitable Giving
A printable list of CIR's 50 worst
--Part 1: Dirty secrets of the worst charities (6-6-13)
Part 2: A failure of regulation (6-7-13)
Part 3: How one family turned your goodwill into their livelihood (6-13-13)
Disabled workers paid just pennies an hour – and it's legal (Anna Schechter, NBC News Investigations, 6-25-13) One of the nation's best-known charities, Goodwill industries, is paying disabled workers as little as 22 cents an hour, thanks to a 75-year-old legal loophole that critics say needs to be closed. "If they really do pay the CEO of Goodwill three-quarters of a million dollars, they certainly can pay me more than they're paying," said Harold Leigland, who is legally blind and hangs clothes at a Goodwill in Great Falls, Montana for less than minimum wage.

The worst charities: Get information before you make a donation
America's 50 Worst Charities (Leslie Salzillo, Daily Kos, 8-20-13)
Professional Fundraiser Is Ring Leader of Triple Charity Scheme (from Charity Rating Guide & Watchdog Report, Charity Watch, Summer 2014)
MinistryWatch.com (consumer reporting website of faith based charities)
Perfectly legal: Charities kept most cash for themselves (Robert Anglen's excellent exposé, The Arizona Republic, 5-3-09). A yearlong investigation into a network of charities tied to the Don Stewart Association televangelism ministry in Phoenix revealed that 22 charities used legal but controversial accounting methods to take credit for donating supplies that they never physically collected, handled or warehoused.
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Philanthropy -- giving to make a difference


The Philanthropy Workshop. Read the TPW blog.
Foundation Source provides comprehensive support services for private foundations
Effective Altruism: A Primer (Christine Emba, Washington Post, 9-8-15) "Is it wrong to help your neighbor rather than a needier stranger in Bangladesh? Should we value art museums as much as we do homeless shelters? How should you give? How can you do the most good? For those seeking better ways to answer those questions, a new philosophy for giving is gaining traction — especially among younger and more quantitatively-driven potential philanthropists. 'Effective altruism'... leans on utilitarian principles to say that it is a moral responsibility not only to give to charity but also to optimize your charitable donations to ensure that they are as “high-impact” as possible."
Paul Allen’s Philanthropy Mirrors His Passions and Business Approach (Quentin Hardy, NY Times, 11-2-15) Like many of his ultrarich peers in tech, Mr. Allen, the Microsoft co-founder, has allocated much of his giving to efforts seeking big breakthroughs that will transform society. Unlike refineries and steel plants, the software and biological businesses of the information age arise from small teams of gifted individuals who don’t require a lot of infrastructure to get rich. Their products get big fast. This has led to a mentality of shock and awe, or so-called venture philanthropy, which seeds with relatively small amounts of money projects that seem as if they could make an outsize difference.
Give Well, in-depth charity research to find evidence-backed, thoroughly vetted, underfunded charities
For Guidance, Would-Be Philanthropists Turn to Peers (Paul Sullivan, Wealth Matters, NY Times, 11-13-15) Many struggle with the arcana of setting up a foundation, and with questions on risk: Giving to big institutions is safe; social change is difficult.
Traditional charity fosters love. Effective altruism doesn’t. (Jeremy Beer, Washington Post, 9-11=15) Jeremy Beer is author of The Philanthropic Revolution: An Alternative History of American Charity . "In this marvelous history of American charitable giving, Jeremy Beer helps us see what we have lost in the triumph of outcomes-focused and "scientific" philanthropy. He argues for the recovery of an older face-to-face charity that humanizes both giver and recipient."~ R.R. Reno, editor of First Things
When Family Members Run Foundations, Scrutiny Never Ends (Paul Sullivan, Wealth Matters, NY Times, 9-11-15) The penalties for spending a private foundation’s money inappropriately are severe. Family giving is serious work.
Wealthy Donors Don’t Get Giving Advice They Want (Doug Donovan, The Chronicle of Philanthropy, 10-9-13) Provide more than tax advice, please; understand a client's charitable passions and what may be holding them back.
Most Americans aren’t “efficient” philanthropists. That’s a good thing. (William Schambra, Washington Post, 9-9-15)
Donations: The gift that keeps on giving for donors (Shelly Schwartz, special to CNBC.com, 7-16-15). Philanthropy is a catalyst for positive change, but it can also be a powerful estate-planning tool. By leaving money to charities, donors get to align their personal values and interests with their financial goals—ensuring a portion of their wealth is used to support causes they care about even after they are gone.
A Path Appears: Transforming Lives, Creating Opportunity Nicholas D. Kristof and Sheryl WuDunn explore how altruism affects us, the markers for success, and how to avoid the pitfalls.
Wealthy Donors Don’t Get Giving Advice They Want
Major Foundations, Eager for Big Change, Aim High (David Gelles, Giving, NY Times, 10-31-15) Some of America’s biggest private foundations are focusing on major issues like climate change, a broken criminal justice system, and income inequality with an eye toward rapid results.
Giving with Confidence by Colburn Wilbur (former CEO of the Packard Foundation) with Fred Setterberg
Inspired Philanthropy: Your Step-by-Step Guide to Creating a Giving Plan and Leaving a Legacy by Tracy Gary with Nancy Adess
The Seven Faces of Philanthropy: A New Approach to Cultivating Major Donors by by Russ Alan Prince (Author), Karen Maru File (Author)
Toward a new gospel of wealth (Darren Walker, Ford Foundation, 10-1-15) A widely read, thoughtful look at how to address income inequality. Now is the time for philanthropy to reimagine a "gospel of giving."

"Good people treat others as they would like to be treated.
"Generous people treat others better than they would like to be treated.
"Wise people do not indulge in being either good or generous. Instead, they treat people as they need to be treated" – Sufi Proverb found on Seedlings, John A. Warnick's blog post about The Pillars of Purposeful Philanthropy

"Charity refers to the direct relief of suffering and social problems. Philanthropy systematically seeks out root causes of these issues and endeavors to find a solution. As John Rockefeller said, "The best philanthropy is constantly in search of the finalities—a search for a cause, an attempt to cure evils at their source." ~ Karen Goetz, "Philanthropy vs. Charity- What's the difference?" Richard Shineman Foundation
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